Anyone else here with fibromyalgia?

Shafaq
Shafaq Member Posts: 4
edited 21. Mar 2012, 16:13 in Benefits and Working Matters archive
Hi guys... just created a post as I want to get in touch with other people suffering from fibromyalgia. I have suffered a lot last two years, trying to keep my place at uni as a student nurse. Sadly I have had to go off sick and will be returning part time for the final year. I am feeling lost, and my depression is deepening. I am being treated for for depression and fibromyalgia, but it feels like a dead end.

I would love to hear from other people so we can share our experiences on this forum.

love Shafaq

Comments

  • jac1566
    jac1566 Member Posts: 12
    edited 30. Nov -1, 00:00
    i have fibromyalgia
  • Emily
    Emily Member Posts: 124
    edited 30. Nov -1, 00:00
    I am sure I got it, but never diagnosed how is it diagnosed, I am in so much pain all the time and very tired in the afternoons.
  • CJHunter
    CJHunter Member Posts: 1,038
    edited 30. Nov -1, 00:00
    Will find out for sure on the 12th, but probablr Inflamitory arthritis (in my case P.A) and Fibro.

    Have you sought help for the depression and been offered any form of counselling to discuss both depression and fibro? Apparemntly CBT (cognitive behavioural therapy) is good for those with fibro.

    all the best
    Clare xxeyeore-1.jpg
  • ruthos66
    ruthos66 Member Posts: 1
    edited 30. Nov -1, 00:00
    Hi my name is Ruth and I have fibromyalgia. I am a qualified nurse, but when I started my training I did not know I had fibromyalgia just a bad case of hypocondria as my doctor told me as nothing was showing up in my bloods. I had a hard time working in a busy liver ITU unit at Kings College Hospital. Recently I have cut down my hours and now work in a detention centre in Dover. Some of my collegues are supportive but I do find that even in the medical profession there is a lot of ignorance of this disease. Surfing the internet has helped me a lot and it is nice to know that there are other people with this disease.
  • Emily
    Emily Member Posts: 124
    edited 30. Nov -1, 00:00
    Hi Ruth
    How is it diagnosed, I am sure there are lots of people with this problems, I say problems as I do not know whether it is a disease or not.
    I get so much pain in my neck and shoulders and upper back and feet but GP puts it down to Osteoporosis and Osteoarthritis or some other doctors at surgery says it is wear and tear what, how can you have wear and tear in neck, I can understand wear and tear in fingers whcih I have and can see what it is and as fingers have gotton more use then other part of the body, but what about the neck upper back and shoulders.

    From your post, I expect that you have not been diagnosed, is there any way of diagnosed this disease.
  • CJHunter
    CJHunter Member Posts: 1,038
    edited 30. Nov -1, 00:00
    Hi Emily, if you look on Fibromyalgia UK theere is a new diagnostic tool and key factors.
    It is very interesting.

    Dont get me started on O.A n wear n tare. If the docs knew the pain they woulnd say such off the cuff crass things.

    There are specialists, google 'Dr Foster' and look for fibro consultabts. I am seeing one at Guys. There are others.

    :smile:
    Clare xxeyeore-1.jpg
  • purplesparkle
    purplesparkle Member Posts: 38
    edited 30. Nov -1, 00:00
    Hi, I'm not sure what I hve (if you look back through my posts) but my Doc told me tonight that if all the tests from the rhuemy came back negative they will probably tell me I have fibromyalgia.
  • magenta
    magenta Member Posts: 1,604
    edited 30. Nov -1, 00:00
    Hi,

    I have fibromyalgia. Diagnosed, properly, last year but have had it mentioned several times in the past. Probably have had it for years. Depends who I see, whether I get told my 'pains' are due to this or my 'age-related' wear and tear!

    Magenta x
  • jac1566
    jac1566 Member Posts: 12
    edited 30. Nov -1, 00:00
    8) i have fibromyalgia as well.
  • cheekygirl
    cheekygirl Member Posts: 128
    edited 30. Nov -1, 00:00
    hi I have fybro too i have had it for ten years now and i feel its got worse over the years .i dont sleep most time cant sit , cant stand .i do have other arthritic problems too .without trying to sound patronising .its a matter of accepting the fybro .i found accupuncture was a massive help i still have it now . i find heat very helpful sometimes i get bad facepain so i put a hot flannel on my face its heaven . i have 4 heatpads to put in microwave . its a terrible condition . i am lucky my gp is brill . i now have to use a wheelchair or i wouldnt get out anywere ..just try to think positive .i do know how difficult it can be when you having such a bad time think about changing your diet ,or go to the local swimming baths when the waters warm in just sit in it for 20 mins then get hot shower before you come out to go home have plenty warm drinks ,wrap up well in cold i cant stand being cold at any time ..please take care and lots lots gentle hugs to you all xx
  • lilac63
    lilac63 Member Posts: 19
    edited 30. Nov -1, 00:00
    Hi Everyone
    I am also a fibro suffer, until someone has it they have no idea what pain you go through i also have arthritis, and have been off work for nearly a year with it all, have good days and bad ,but its getting progressively worse now...thing is,.. if it was a cut , people could see it and say blimey yeah that looks painful, but as you cant actually see it people have no idea at all how it feels day in day out...

    wendy
  • roses1
    roses1 Member Posts: 1,850
    edited 30. Nov -1, 00:00
    Hi i too have fibro OA and poss something else i'm still waiting to find out!

    I totally agree with you lilac they have NO idea of how it affects us!


    Shafaq, take it easy on yourself i have been to the near bottom of the pit,
    talk to people who have it, we understand, if you want to talk anytime feel free to pm . Days will seem dark but i promise you days will be good too! Acceptance is the first hurdle, whatever aids you think will help use them!
    You are NOT alone (((((hugs))))

    Rose x
  • jaja
    jaja Member Posts: 135
    edited 30. Nov -1, 00:00
    Hi shafac.....yes me too....wasnt told directly...found out few years ago when i changed consultant...Iv had RA for many years...but when i mentioned some things my new...very nice rhuemy said...oh thats your fibro...amazin...the web is useful but there is frightening stuff so i never look into it iv just done..one day at a time..rest when you can and stress really doesnt help...hope you get some relief all the best ...JAJA
  • CJHunter
    CJHunter Member Posts: 1,038
    edited 30. Nov -1, 00:00
    Hiya, Yup just been diagnosed with fibro too, well im with a good bunch i see, :lol:

    take care.xx
    Clare xxeyeore-1.jpg
  • purplesparkle
    purplesparkle Member Posts: 38
    edited 30. Nov -1, 00:00
    me too!
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