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Welcome to the Versus Arthritis forum.
It’s good to hear that you’ve found some of the existing posts useful and have decide to join.
Your OA has led to you having both hips replaced but your knees continue to give you pain. You’d like some advice on what sort of exercise you should be doing and feedback from other members who have tried knee supports.
I don’t know if you’ve visited out website but I hope these links are useful:
I’m sure that you’ll receive some useful feedback.
I think a diagnosis helps. a few years ago I was diagnosed as very hypermobile and it explains a lot of my health problems. Its a relief to know what the cause is and also it was very helpful in regards to physio /surgery options as to what is sensible and what is not. I won't be 'cured'. it is not fixable but it is easier to control and deal with when I know what it is.
I used to ride love it and unfortunately miss it so much I have cervical spondylosis and osteoarthritis in my spine, knees, hands, feet and shoulders have been thrown a couple of times In my youth I asked if I could still ride 3 years ago and was told no but they said I could dance???? I would much rather ride anyhoo I would check with a professional like a physio have you had X-rays or scans as they will show how good or bad it is hope this helps also as a thought maybe check your saddle maybe it could be adapted
love Jona 😊
My favourite jam is raspberry, especially with scones and clotted cream ( I know it should be strawberry but I find that a bit sweet)
in answer to Wazz42’s question ( think a couple of posts crossed), my favourite plant in my garden is a lacecap hydrangea that grew from a cutting from my Mum’s garden that grew from a cutting from my Grandmother’s garden!
DTPBM remember their favourite book when they were a child?
Thank you for your response Mags. My GP hasn't suggested blood tests so far and I have only spoken to them once. However, last year I had blood tests which looked for inflamation when I had very dry mouth symptoms for several months. I'm not sure which tests I had but the GP said that as they did not show any abnormality they could not refer me for a further test which looks for a similar thing. I think I'll have to contact the GP again as my symptoms are getting worse. I'll also read the hip pain information you suggested.
Morning gang, Elliott went home from hospital over the weekend thankfully. I have ordered an M&S caterpillar bag of goodies to be delivered to them tomorrow as the lad has lost a lot of weight so a load of choccie will do him good. I have an OT visiting this morning to measure me up for a new riser recliner courtesy of Cornwall Council so good news all round for the start of the week. Not only that but on Wednesday my visiting hairdresser will be arriving to cut my hair so no more wispy bits tickling my lugholes 😊
I did have a paper based award. I was 'consistent' with my form and the medical evidence provided to back it up. I have been awarded enhanced living and mobility for 3 years. Thank you.
Thank you. I'm not bothered about being given a diagnosis (someone told me I shouldn't try for one as it might be 'upsetting' to know, but my view is that if I've got something, I've got it, whether I know I've got it or not - and if I have a diagnosis, it will help me know what to do when I feel bad), I've just been made to feel like a total time-waster in the past!
I've told the GP to go ahead with the referral, but she's said it will take a long time as there is a huge backlog due to Covid.
Thank you everyone for your support.
Thank you Anne. I’m happy to offer positive encouragement where I can. Xx
I am in similar position to you and a similar age. There’s a lot of irony in my case as I’m a retired orthopaedic nursing sister! I have active OA in multiple joints and two years ago, after a couple of falls, I sustained acute sciatica to the point I could barely walk. I was spirally downwards, consumed with pain and thought I would never be well again, never be able to get back to my happy new life as an artist.
I can’t stress enough that you must ask for help....
I changed my GP to one who would support me through the long haul. I took strong painkillers to be able to start moving again. I sought help from a NHS physio via the GP, private chiropractor to assess my back, psychologist to help me emotionally, and then I had an epiphany where I realised...the only person who was going to get me well was ME! So, I started to exercise in a chair, small movements, I did everything the physio asked me to, I joined a gym, and now I cycle a few miles regularly until I can get back to the gym. But, it’s difficult to do all of this in acute pain so seek help from your GP or orthopaedic surgeon. I am too young to have a TKR too so, I am learning to manage my condition as best as I can. I’m currently using ice twice daily on my irritated joints. Over the last two years, I have reduced my drugs, watched my weight, moved more, and embraced small pleasures. Pain is whatever the patient says it is and it can unbearable, but it doesn’t need to be with the right help. I’ve also read about detaching our emotions from pain. Through our own thoughts, we actually increase our suffering, letting pain be the main focus of our day. We can change how we think about pain and our condition to make the best of our lives and focus on all that we achieved in a day. It’s so easy to wake up and only focus on how much pain we are in and how unhappy it makes us feel. I still have bad days and endure pain but mostly, I have good days. I’ve learned to take short rest breaks between activities, protect and care for my body, learn to work with it.
Ask for help, seek support from people who love you.
I hope you find relief for your pain and be able to enjoy life once again.