Best Of
Re: Being diagnosed
Hi Sam47. Sorry to hear you are in so much pain. I can't help with your hip pain, but wanted to share that I am in a similar situation. I have the symptoms of arthritis but my bloods came back normal. I have just had an xray and I'm going for my results tomorrow. What I am worried about is, these results are normal, what then? My 3 pages of symptoms don't just go away! How rude to say its all in your head, being in constant pain is difficult, frustrating and draining and you wouldn't make it up. I said the same as you just to my hubby who is going to listen if all indicators are saying normal. Fingers crossed we get the answers soon.
dij1966
5
Re: Does anybody struggle with exercise?
Hi @Jamielee , I really struggle with exercise too. I was still just about able to do mild pilates till lockdown, but after a fall in March my hip kicked off like crazy and just climbing into bed and lying down was agony. My physio, GP, MSK consultant and general advice on this site was to do particular exercises to strengthen the muscles around my rubbish hip, so I gave it ago, but the pain was so intense and it set off lingering inflammation in my hip, and it just made it so much worse that I stopped.
I have tried some of the exercises with Leon on this site a few weeks ago, and it was very gentle and nice to stretch other parts of my body. I still have some residual fitness from pilates, so I’d slot in a few gentle stretching moves into the routine as well, but after doing 10 gentle squats, two days in a row, I could barely walk around the house. So much for building up those muscles! The stretching exercises that pulled on attachments to my hip also aggravated it.
i will have a go at some of the other exercises, but it took so long for the inflammation to settle, and my job needs me to be on my feet quite a bit, so I can’t risk setting that off again. Any real exertion just sets me back further, so I’m finding it hard to know what to do for the best.
I’m sorry to hear you’re having to deal with all this so young. I’ve at least had the pleasure of abusing my body for 60 years, I hope you can get a treatment and exercise regime that works for you.
Lilymary
1
Pets' Corner
As many of us use a photo of our pet as our account photo I thought that it may be a nice idea of setting up a Pets' Corner to put larger photos up, photos of them doing something daft, accounts of things that they do, how they support us and so forth. Vixen is the third cat that I have had since leaving the RAF in 1988. My first was called Arnie but he disappeared when my ex-wife moved in with me, I found him elsewhere in the village and brought him home several times but on each occasion he legged it again, if only I had known then what I was later to discover I would have legged it with him! Fluffy was my next cat and she passed away 4 years ago which drastically affected me, more so than my parents passing. I went spiralling downwards until friends presented me with Vixen, initially I was told that she was a boy so I called her Vulcan, that was until I took her to the Vets for her first check up, on chatting to the Vet he announced that he was a she and it was the quickest gender realignment he had ever done! Living alone and virtually housebound (especially now), I would not be without her. I have the names of all 3 cats tattooed on my arm beneath a picture of a Sabre-toothed tiger.
Mike1
5
Re: Does anybody struggle with exercise?
@Jamielee I have OA in both of my feet and have had my big toe fusion in 2012 because of the pain and have OA in mind of my left foot since 2014, have had loads of steroid injections for pain which gives temporary pain relief and on daily painkillers.
I have sports massage once a month which helps abit and I am going to take up swimming as it's ment to be good if you have arthritis.
I hope you find some type of exsersice to relif your pain it's not easy living with pain.
Re: Does anybody struggle with exercise?
I am beyond exercise due to being too crippled, physios have said they can do nothing for me, hydrotherapy not applicable either. Depressed when so much is made of the need to exercise without recognition that some of us simply cannot. My "exercise" consists of getting dressed - sometimes that is enough effort for hours; hobbling from the lounge to the kitchen to make a brew; feeding the cat; and generally doing what I need to do to survive as I live alone and only have a Home Help once a week. Promoting "exercise" all the time is depressing and could even be construed as being a form of discrimination to those of us who are unable, indeed Disability Rights UK in conjunction with Durham University have labelled this "ableism" and are to publish a letter in the British Journal of Sports Medicine.
Mike1
2
Re: Will new vaccine work as I take methotrexate to suppress my immune system?
Hi @Stephd
Welcome to the Online Community, it's great to have you join us.
To get straight to your question. We know the Pfizer vaccine is NOT live, which means it MAY be suitable for those of us on immune suppressant medications. Each of us needs to have a conversation with our health care teams to work out if it is suitable for each of us individually.
I would like to have concrete simple advice to give, sadly we are, each of us, unique in the number of conditions we have and how they present and the variety of medications we take and the dose of each that a simple answer would not work.
I can say that we are on the case and as we have any updates on this particular vaccine we will share it as clearly and simply as we can. As other vaccines are proved to be effective we will do the same with each of those too.
I'm looking forward to seeing you posting, offering support and companionship to fellow members as we wait for answers
Take care
Yvonne x
YvonneH
1
Re: Struggling at work
Hi @Username
Welcome from me too, you have come to the right place to share you story and get help and support while you decide what you need to do.
I think this is the link you need to help make the best decision
It includes getting assessments and help to complete your work and their is a link to the gov.uk sie for benefits. The 2 you would need to look at are Employment and Support Allowance (ESA) and Personal Independence Payments (PIP). PIP is a benefit you can claim whilst in work.
Biologics can work really well but it's not guaranteed and it may be you would need a second biologic. Scroll down here to see about different biologic drugs
Take care and keep posting
Yvonne x
Would you like me to change your username?
YvonneH
1
Re: Struggling at work
Hi and welcome @Username ,sorry you are suffering and you need to do whats best for you - if that be ESA then so be it - yes there are people worse off than you but that's a minority,many claim and are better off.
there's a link that may be of use
or you could phone our helpline - 0800 5200 520
hope this helps
Al
Al
1