Angharad is 26 and is currently studying at home in Swansea. She was diagnosed with SAPHO syndrome (a chronic condition that affects the skin, bone, and joints) two years ago but has had symptoms from the age of 15, which she has struggled at times to manage. Mental health and anxiety have been a huge part of Angharad’s…
Hello, I was wondering if anybody else has experienced a phobia of taking their medication? I was originally prescribed methotrexate injections which gave me bad sickness and also became very upset when the day came to taking my medication. I was then changed to tablets and also put on humira as I wasn’t responding well to…
Hey, I'm new to this and don't really know how to start this discussion but at the age of 15 I was diagnosed with polyarticular JIA, at the age of 20 I had a metal plate screwed to hold my left wrist together. I have a partially fused right wrist, and a fully fused right elbow that is stuck at a 45 degree angle. I cannot…
As everyone is already aware of COVID-19, I thought I would come on here to ask how people are feeling about the current situation. COVID-19 stopping everything in our lives is already hard enough but to live with a chronic condition makes it increasingly difficult. Many of you may have received a letter saying you should…
Just a little about myself. I’m 23 years old and was diagnosed with RA when I was 19. I’ve always been an extremely active person riding horses and playing various sports, so have always been confused why this happened to me. RA doesn’t run in my family, when I was born I had congenital toxoplasmosis and have always wonder…
Hi i’m new here I’m Dan 22 from West London with Ankerlosing Spondylitis Looking to meet and talk to new people
Hey everyone, I’ve just recently been diagnosed with early osteoarthritis after years of pain and stiffness in my joints. Just wondered if anyone else with osteoarthritis could let me know how it effects them? I’m a little worried about it.
Hello everyone, This is my story so far so let me divulge into it via a chronological timeline. 1) I was an active 16 year old with a promising football career when my knees became very swollen. Also my jaw became very stiff and even locked up sometimes. I had no idea what it was and after a year the doctor diagnosed me…
I’ve been on steroids for two years now. Had three infusions of steroids for big flare ups. My cheeks have gone round and chubby and despite working out for two hours everyday, eating right and keeping healthy I still have all this water weight around my belly. Realistically I’m going to be on steroids for another couple…
I've had PSA for 3 years (since I was 17) and was wondering if anyone on here is currently (or recently went to) university. I tried to go last September but had to defer after a few weeks due to symptoms and side effects of mtx. I'm now on a better dose of mtx so no side effects but I'm having a small flare and am worried…
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