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Newly Diagnosed Rheumatoid Arthritis 39
Hello! I Am feeling a bit overwhelmed, after nearly 2 years of undiagnosed pain, fatigued and mobility issues I was finally diagnosed with RA yesterday. I’m starting medication Friday but I’m feeling a bit overwhelmed and not sure what I should be doing. Any advice for a newbie? The last decade has really beaten me down…
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Need help with Medicine decision
I have been diagnosed with Early rheumatoid arthritis and I have been taking sulfasalazine but the specialist thinks I need to change medication and is suggesting methotrexate or leflunomide and I have read up about the side effects and the words 'cancer treatment' are scaring the hell out of me. 'Hair loss' 'can cause…
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Val's Cafe
Val's Café is open. Drop in for a virtual cuppa, bun and chat. All welcome.
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First appointment with consultant
Well today is a day I’ve been waiting for and now it’s here I’m so anxious. First appointment on the NHS. It’s been a long 6 months of me fighting my corner and trying to get doctors etc to listen to me. I’ve got rheumatoid arthritis plus psoriatic too. I ended up paying to go private 2 months ago and they diagnosed both…
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Real person to help with PIP
Hello, I can’t believe that at the age of 45 I am writing about my chronic pain. At the start of 2025, I had no major pain. Now, I’m exhausted 90% of the time, and even simple tasks leave me drained… Recently, I was made redundant, and the thought of job hunting only adds to my fatigue.Because of my health, I’ve decided to…
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My future with JIA and flare ups
Hello everyone, i was diagnosed with JIA when i was 2 in my knees and then following steroid injections and physiotherapy i was put into remission when i was 7. Then after not having any pain (i did swimming for this period of time) i started playing football which then i would have some flare ups in my knees and hips but…
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Joint Relief Cream
I am suddebly getting snowed with ads for "Joint Releif Cream" - I cannot find any scientific references to this product or its efficacy. Does anyone know anything about it? I am searching for something for my knees. Roger
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Need Total hip replacement at 55
I developed pain in my growing about a year ago and three months ago was told by a consultant orthopaedic surgeon that I need a hip replacement. In a year I have gone from being very adventurous and active, yoga, swimming and cycling and working full time to being off sick and only able to walk short distances. The pain is…
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Managing post op pain
seven days post total left hip replacement
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JIA and my future. Shared this on young peoples community, thought i would share it here
Hello everyone, i was diagnosed with JIA when i was 2 in my knees and then following steroid injections and physiotherapy i was put into remission when i was 7. Then after not having any pain (i did swimming for this period of time) i started playing football which then i would have some flare ups in my knees and hips but…
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Hip replacement, living alone and with responsibility for pet.
I’m going in for my hip replacement in two weeks’ time and thought it might be helpful to share some of the preparation I’ve had to do, especially as I live alone in a house with stairs and own a cat, whose needs also have to be catered for. I’ve found the discussions on this forum really helpful for preparing, but…
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Living with arthritis
Hi all thank you for letting me join the group I suffer with osteoarthritis in both knees my hips and spine thankfully only mild in spine but due to my age am 47 I've had 3 operations on my left knee to try and help but nothing has worked and they won't do a replacement till am 50 they have basically told me nothing more…
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test
to test email notifications Peter
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Tingling in legs with neck osteoarthritis
neck mid back
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Its hard every day
Hello 👋 my name is Sandra. I've had rheumatoid arthritis in all of my joints since the age of 3 and I am 60 next Saturday. I find every day a struggle with fatigue and I work full time. I had a hip replacement in 2021 and since then have lost any confidence I had and I suffer from anxiety. When I go out I think people are…
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Hello
I am new here. One of my sisters aged 62 is crippled with RA. She has been on a variety of drugs and nothing is working just wondering how others cope. It is all over her body Thanks in advance Sue
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1 week until surgery and I'm feeling stressed and anxious- advice please!
Hi! I'm 55, and due to have a replacement of my left hip in a weeks' time. After having an outburst of anger at work this week which is not like me at all, I've realised that I'm not coping with the pre-op stress. I don't feel prepared, for example the house isn't as clean as I'd like!. I'm worried about the op being…
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Rheumatoid Arthritis
Hi everyone, I am new here and wanted to introduce myself. I was diagnosed with rheumatoid arthritis after my first child in 2016. I am now 38 and suffering from carpal tunnel and flare ups. I have terrible anxiety mainly about life and how this may affect me later in life and would love a community to chat to. Please…
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Hip replacement in Greece
Hello from a newbie, I live in rural Greece, in the Peloponnese, with my husband and our lovely dog, Emmy. I've recently been diagnosed with osteoarthritis in both hips and knees. It was a bit of a shock I must say! Apparently, I have level 4 (whatever that means?) in my right hip and have been advised that a hip…
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Ray Brooks (Actor)
Actor Ray Brooks has dies at the age of 86. He was in many films and tv shows as well as being the voice of Mr Benn.
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Does pain relief make any real difference
As luck would have it since July last year, about a year ago, I was able to come off pain killers and travel my normal route, without much risk of a flare up or anything more significant than a twinge or two in whatever joint fancied complaining about it. More recently the aches and tiredness has been a bit more…
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Newbie - making the decision for surgery
Hi I'm newly registered and this is my story I've had intermittent pain in left hip since early 2023 and eventually went for Xray in August 2024 when it was waking me up; this confirmed moderate OA in both hips but was otherwise able to continue with an active life including outdoor (hill walking etc). A second Xray in…
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Steroid injection for sacroiliac joint question
This is my 1st post here. I am wondering if the benefits of the steroid shot can vary from one day to another. Sometimes I think the shot suddenly stopped working then the next day I get good relief. Adding to the confusion is the relief I get from a drug called Cymbalta (DULoxetine). 30 mg every morning. That drug works…
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Waiting List for surgery
Hi there, I was told my hip surgery would be around 6 months so here's hoping I hear something soon as that's me waited 6 months so far. I know everywhere is different, I'm in the west of Scotland, but was wondering how long people were told they would have to wait for there surgery until they actually received their…
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Hypotension (very low blood pressure) & anaemia
A warning if, like me, you have low blood pressure around 100-110 normally. Before having surgery, check with your surgeon what the treatment will be if this drops further to hypotension level after surgery. After my TRHR my BP struggled to get over 90. I was dizzy and faint and the physios couldn't get me up and moving…
