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A new Community is coming
Over the past year we have been exploring ways to improve the community. Your feedback has helped us to understand the benefits and the drawbacks of the current community platform. We need to ensure: New and existing members can easily make meaningful connections and be active and engaged in the community. All community…
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Trying to help my Dad
Hello, my name is Charlotte and I joined because my dad who is 80 this month has incredibly bad RA. He has had it for 30-40 years, and has had several drugs for it in that time. In February this year he developed uveitis and after a trip to Moorfields Eye Hospital, he was told to come off the drug he was on as it was…
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Newly Diagnosed Hip osteoarthritis
Hello After many years of hip pain and despite previous normal x-rays, physio and chiropractor involvement, I have been diagnosed with mild to moderate arthritis in my left hip. I feel that I couldnt have done any more to resolve my pain. is it a given that I will develop it in my right hip also as I now have pain in that…
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Arthrosamid
Hi guys I had Arthrosamid injected into me right knee last Tuesday and am interested to hear peoples experiences week 2 and 3 of what to expect? I have AO and bone on bone on the outside of knee plus a bulging meniscus and arthritic bone spur. Use to be majorly active, netball couple times a week, 8 classes at the gym and…
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Val's Cafe
Val's Café is open. Drop in for a virtual cuppa, bun and chat. All welcome.
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Sleep
Hi, I have osteoarthritis in both knees and I am currently struggling to sleep at night as I just cannot get comfortable. I have one of those sleep pillows to put between my knees but it doesn't help for long. I am constantly tired and although my husband, bless him, is a deep sleeper, I do feel bad for constantly moving…
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Need advice for dealing with pain when driving
Hi, I am Molly I am 20 and I have RA in my hips (right is technically worse than left) I am a new driver (passed in may, but only got my motablity car last friday) I am driving an automatic which has definitely helped out a lot with driving, I have driven more than I ever thought I could, however, the pain is still very…
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Feeling down
Hi, I am nearly 55 and I have osteoarthritis in both knees. I also have tennis elbow (unconnected but still painful). I am feeling really down at the moment and I am just not myself. I had two jobs and have just given up one job (which I really love) as it is too much for me. I am taking Flexiseq Max Strength which has…
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Losing mobility
I have recently been diagnosed with severe osteoarthritis in both knees and left shoulder. A few months ago I was active and mobile. Now I need a rollator to get from room to room downstairs. I have to sit down to wash up etc. To get upstairs I have to crawl. Is this normal and what can I do. Thanks for reading . Helen
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Post Trapeziectomy Hand Therapy
Hi All I hope this is permitted, I have attached here the PDF document my brilliant hand therapist gave me in 2020 which I stuck to religiously and it works. @Zuccho77 following our chats on your threads you might like to try these. I hope others find it useful. Please ignore the notes in the margins - recovery isn't a one…
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NOT Sciensus? ..
I was not surprised when looking through the history on this site to find that the emotive topic of home medication deliveries has arisen before on here, so I figured you folks might be the right ones to ask. Has anyone managed to secure home deliveries through an outfit other than Sciensus? Sciensus was one of the reasons…
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Hip replacement, living alone and with responsibility for pet.
I’m going in for my hip replacement in two weeks’ time and thought it might be helpful to share some of the preparation I’ve had to do, especially as I live alone in a house with stairs and own a cat, whose needs also have to be catered for. I’ve found the discussions on this forum really helpful for preparing, but…
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CTLS clinic trials lab.
Hi all. Has anyone been to the Clinical Trials Laboratories Services in London? They are looking for donors from people who have RA and I just wondered if anyone had heard of them and done anything like this before. I am always happy to help with any trials but I’ve not heard of this company and so asking on here. Many…
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Methotrexate and the sun
hi all 👋 Has anyone had a problem with the sun and methotrexate? We’re off to Greece (booked before the diagnosis as a family wedding, and being prescribed the mtx) Can I stop the mtx whilst I’m away to stop the potential burning? I use factor 50 anyway, as I’m pale and can still burn. I know that if I get a cold, covid or…
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It’s Not Just the Pain… The Mental Fights Are Even Harder
Hello guys, New member here, but just another one sharing pain. So here is my story, I was diagnosed with RA at an early age, and it’s been a daily struggle ever since. Most days I start out trying to keep up, but by night I feel completely drained and end up being hard on myself for not meeting my own expectations. I know…
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best food choppers.
anyone tell me your valuable opinions on which one I should buy. Kuhn Rikon Pull Chop Chopper Cuisinart Mini Prep Plus
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New to group
Just wanted to say hi. Am new to the group
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Just had my PIP reassessment form
Thought these would get easier but finding it hard to fill in. Why? Because I no longer am under any medical help or Physiotherapy. I have had two knee replacements and still trying to get fitter with active health sessions and more walking. I still work part time in a busy school kitchen. I have arthritis in all my joints…
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How often do you see/speak to your consultant?
Hi, I wondered how often other people have contact with their consultant, maybe especially at the start of their treatment and/or if they have bad side effects?
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Adalimumab change
Hi all The hospital has recently changed adalimumab brands from Amgevita to Uflyma. On Amgevita I would feel washed out and lethargic for about 24 hrs and then level out to my norm and it had always been the same, this week I started Uflyma and 48 hrs later I still feel washed out and lethargic and nauseous, which wasn't…
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Keeping you informed
How frequently would you like to be updated about the community by email and what would be important to know in the email?
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Discussion Area Names - New Platform
We are currently creating new spaces on our shiny new platform (same as the Categories on here) and are looking to you to say if there are others that should be there and if the names make sense. Currently we have: "Hello" (where people do a quick Hello, I'm here type of post and some simple info about yourself. Living…
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Local support group
Well, having found out from your website about the VA support group nearest to me, I turned up at 7.00pm to Barlanark Community Centre, only to be told by a Janitor that the group met briefly yesterday afternoon, and has disbanded. Would have been good to know ☹️
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Adapting lifestyle to live better with Psoriatic Arthritis
A little about me - I’m a 38 year old, white British male and I was diagnosed with Psoriatic Arthritis when I was 21 - my left knee became very swollen after a squash game. I had it aspirated and then begun my treatment journey - 10 years of Methotrexate, then various anti-TNF drugs and finally landed on Infliximab via IV,…
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Anti tnf injections and skin cancer
I have been taking anti tnf injections for nearly 2 years. I remember reading that there was an increased risk of skin cancer. I went to dr about a scaly patch on my leg and dr said it was fine but then after talking about other areas of concern she thinks I have basal cell carcinoma on my nose and I have been refered to…
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I need a pillow
I am suffering with a very sore neck and stiff shoulder and I think it’s due to my pillow. Has anyone got any suggestions for a good pillow for a restful nights sleep. Thank you.
