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Information and Support Talks
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Diagnosis/pain medications
Hello I have had oestoarthritis in my right knee for a number of years now but I am pretty sure it is in other bits of me as well, most recently I had sciatica flare up which is still with me and had strong pain killer for that , a boney lump appeared on the same side on my shin (an X-ray which showed soft tissues…
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Val's Cafe
Dear Mods When we get our new cafe can it be called Val's Cafe please. She hit on a great idea doing this and we are so glad she did. It gives us a place to go to meet up and natter about anything. It is also a popular place. So can it be called Val's Cafe please Mods. Trish xxxx
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Pain in glutes, calf and foot
Hi everyone, Just looking to see if anyone else has had this issue. I'm on week 11 since my THR and trying to increase my walking. I've had issues all along with my hip flexors down through the knee into the lower leg. My osteo explained that it was due to stretching pulling and twisting during the operation plus many…
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Sleep patterns
Does anyone else find that after a hip replacement sleeping isn't regular? Sometimes I have a great sleep other nights not so good. I take paracetamol if I'm in pain but then I struggle to fall back to sleep. Any good sound advice would be so helpful.
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TKR a week ago
hello all. I’m new here and one week on from my first TKR. Frozen peas definitely my friend and I didn’t know how hard it would be to get to the loo in time, so tena pull-ups too!!! Think the tramadol either makes me wee more or not wake up on time. But my old pain is gone. - new pain is not fun of course but I know that’s…
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Delayed diagnosis but at last a diagnosis
Hello, I’m newly diagnosed with psoriatic arthritis. I’m 62 and the pathway to this has been 3yrs and 2nd opinions. Is it weird to be happy to be told there is actually something wrong with you? Even more intriguing is that the doc who saw me on listening to me said this had clearly been going on since at least my 20s,…
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Fear of knee replacement
I have had knee arthritis for some years , not agony but painful when I walk. GP referred me for physio which I have done half heartedly, and I've had 2 injections which didn't help much. An x ray showed reduction in cartilage in right knee. I asked to be referred to a specialist and saw a consultant. He said I could carry…
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Methotrexate help
Hi Everyone, I am 37 and I have psoriatic arthritis. Only diagnosed November 2024 after 4 years of pain. I started methotrexate two days ago. First medication I tried I was allergic to it. I have had nausea all weekend, and pains in my abdomen. I’m only on 7.5mg this week. I’m just worried going up to 10mg next Friday. The…
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Out n about
So yesterday was my first outing of the house, garden experience. It was wonderful being able to sit and enjoy the view, drink coffee not be afraid. 17th April 2025 was the date of hip replacement. Still physioing , drinking plenty of water. I've invited the holy Spirit to heal me as I do my physio , it's been fantastic to…
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Yuflyma wipes me out
I have had 2 discs of yuflyma thus far and each time I've started to swell, overheat get chills, awful tinnitus, brain Fog more stiffness and pain plus exhaustion. Dies anyone else get these side effects....?
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Knee osteoarthritis
Hello, I'm new to this forum. I've had pain in one knee, gradually getting worse, for 14 years and had an arthroscopy 12 years ago. I've had 3 X-rays on the knee showing gradual degeneration over the years, the last a year ago. I've had 2 steroid injections since last June, the 2nd of which only gave pain relief for a few…
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Went to church.
It took me ages to get ready but it was so good to see friends and be around people again. Such a good thing for our mental health to be social and get out of our homes. It's good to be able to rest when I need to at home, sleep when my body tells me to. Still doing my physio but I'm so happy to be able to not be isolated…
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Osteoarthritis plus Fibromyalgia
Hi, my name is Miles, and I have had Fibromyalgia since 2014. My wrists, knees, fingers and elbows since Nov 2024 have been getting worse pain and fingers going out of shape with lumps at the joints in the fingers. I thought it was RA but I was diagnosed with Osteoarthritis yesterday. The pain is gradually getting worse.…
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Should I take hydroxychloroquine for palindromic arthritis?
Hi all, I was recently diagnosed with Palindromic arthritis afte 2 years of symptoms. I currently have a really bad flare up in my right hand. I was prescribed hydroxychloroquine but only "if it gets worse". I am not sure what that means - a single flare? or over several years? I was only given 1 month's supply. My GP…
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Recently diagnosed with reactive arthritis
Hi all, I would just like introduce myself and hopefully we can share our experiences and tips with each other. My name is Yael, 31 y old and I live in The Netherlands. Last week I've been diagnosed with reactive arthritis. I had never heard about this illness before. 3 weeks ago I was on a holiday in India and…
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My hip op is done
Hi everyone, I finally received my total right hip replacement surgery on the 8th April. The surgery itself was uneventful, opting for the spinal and sedation. I did wake up in recovery spewing black vomit. But that quickly passed, thing it was down to all the drugs and stuff. I spent one night in hospital, passed the…
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Pain in calf and foot
Sorry I appear to have duplicated a post so please see my other one
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Early onset OA at 35 years old and battling with fibromyalgia at the same time
Hello I'm new and I'm lost. I was already told I have joint hypermobility syndrome when I was younger but was never offered any support. Fast forward a good 20 years and I'm almost unable to move some days. I was undiagnosed ADHD and ASD which come with lots of stimming behaviours that may have exacerbated areas. As a kid,…
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RA...does your Body fight the steroids
Newly diagnosed with RA was given steroids to help bring inflammation down but the day after i started steroids and since my stiffness and pain got worse, felt i was running a temp and felt like id been run over by a truck…since starting them nothing has improved and feels very much like my body is fighting them. Anyone…
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RA newly diagnosed
Hi there recently diagnosed with RA in February. Affecting my wrists knees and feet , yuk . I just wondered if you always get swelling ? A recent flare in my knee hospitalised me for 5 days due to pain , although there was some swelling there wasn't much . I'm wondering if swelling is always present , I seem to have more…
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Newly diagnosed
Hi. I've just been diagnosed with osteoarthritis in hips and degenerative hip disease. I don't have a clue what to expect or what to do! Anyone else with any advice please?
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to young to help....
so I was diagnosed with moderate osteoarthritis in both hips with bony spurs my hips can't fully go back into joint... I also have Ehlers Danlos Iwas told I need hip replacements on both hips but they won't refer me for that until I'm at least 50 I'm currently 41! I am very limited on what I can do I need help with…
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Moving on, more exercises and new aches,
Hi. I’m now one month into my new hip, and think I’m doing pretty well. I saw the hospital physio last week who was pleased with my progress which was great to hear. I’ve stepped up the excercise routine to including some of the strengthening exercises, ones where you stand on your operated leg and are obviously putting…
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Arthritis in joints
How many people suffer heat on there feet and get itchy with arthritis in toes ankles
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Going out side ? Public places ?
What stage did people wait until going outside? I was figuring waiting until 8 weeks after operation, where risk of dislocation is lower. I've been out in the garden. How is it in places with lots of people ? How can I be safe and ensure I do not get knocked over or hurt ?
