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Have your say on the Versus Arthritis digital service!
Have YOUR say on what you like and dislike about the current digital service and proposed new digital services? Using your experience, you will play an important role in ensuring that in the future, everyone has access to useful information about arthritis and tools for managing their condition. This group will meet online…
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Val's Cafe
Dear Mods When we get our new cafe can it be called Val's Cafe please. She hit on a great idea doing this and we are so glad she did. It gives us a place to go to meet up and natter about anything. It is also a popular place. So can it be called Val's Cafe please Mods. Trish xxxx
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Bladder weakness and incontinence with flare ups
Hi, I’m 52 female and have had Rheumatoid Arthritis for 22 years Just before a flare up I have noticed that I start getting bladder weakness and incontinence. This clears up as soon as the flare settles down. Initially I thought it has to be stress incontinence due to giving birth to my children and did pelvic floor…
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Side effects methotrexate
I’ve recently started on this for my relapsing polychondritis after waiting 6 months for my specialist to confirm the diagnosis by constant obs of my symptoms. those that know me on here will recal my posts of migraine city in the café on a regular basis before i left somewhat abruptly due to a third party. week one of mtx…
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To use or not to use
Hello 👋 I'm nearly 60, and I have been diagnosed with prosaic arthritis and fibromyalgia, just to add to this, osteoarthritis in my knees. I've joined the group as I'm struggling with pain control I'd love to hear people's lived experiences with methotrexate, I've been put on the meds but I'm reluctant to take them because…
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Total Hip replacement pain - THR
Good evening. I am CERTAIN I am being a stress head for no reason so apologies in advance for being a drama queen but I've made the mistake of Googling this and of course, I am now worrying! Dr Google is not helpful at times 🤣 I had a total hip replacement on 26 October (2.5 weeks ago). Things are going OK with the wound…
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THR in two weeks
Time flies and in two weeks I'll have my 2nd hip done. I've been reading the diaries, including mine for a little bit of encouragement because I'm really frightened. I'm excited because this pain will disappear soon but I'm frightened because the success isn't guaranteed 100%. The worst thing is the 6 weeks of sleeping on…
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Anyone got a flare up due to Prednisole/started as new med..?
Mid-October 24, I was prescribed Prednisolone (1st time ever) while 'in waiting' 3 weeks - a transfer from oral to injection Methotrexate. (Methotrexate does not seem to be working for me/anyhow/but that's another story). I am in pain everyday… ps: presently diagnosed seronegative. I am left very curious, as 2 days after…
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Cold weather
Does anyone find their joints hurt more when it's cold weather? My knee is hurting more today, with more cold weather to come, I would appreciate some advice xx
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Pain and Fatigue
Hi. I’m new to the group and just wanted to introduce myself. I have inflammatory arthritis and osteoarthritis and have suffered with joint pain for over 20 years. I suffer greatly from crippling fatigue and this really affects me physically and mentally. Does anyone else suffer with this problem and can offer advice on…
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Hi, newbie, Apixaban post hip surgery and joint pain
Hi all, newbie Wizza here. I had hip replacement on 17th October 2024 and was rehabbing very well up until week 3 when I developed a very painful swollen foot on operated leg . Couldn’t place foot down , swollen around instep and ankle both sides , then into my big toe /ball of foot where I have a broken sesamoid bone. I…
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THR - what help will I need?
Finally I have given in and am having the right hip replaced 26 November. It seems there is very little support after. I have just spoken to physio at the hospital and they said that I will be given the equipment (including raised toilet seat) to take with me so have to fit the toilet seat myself (well someone else will…
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Possible gout advice pls
Hi all, Unfortunate new member - currently believe I'm suffering with an acute Gout attack at the moment I had similar attack 5 years ago which I didn't take seriously and just used over the counter meds. Big mistake and was in agony for easily over week. Bloods got taken back then - uric was up slightly, but not enough…
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Sudden flare up/attack
Hi I've had JIA since age 2 I'm now 40s have bilateral hip/knee replacements and not had severe flare ups for years, but every now and then I'll get a sudden attack which has always happened in the night, I can go to bed fine and wake up now and then as normal then ill wake up again and my hands, arms will be stiff…
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Morning struggles with hip arthritis
I was diagnosed with hip arthritis in the summer following a scan. It's so painful in the morning that I'm struggling to get to the bathroom. I'm tired all the time but if I rest during the day it's then a struggle again when I get up. Does anyone have any tips on what to do before I get up that will make it less painful.…
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Pain control
Nearly 60, and I have been diagnosed with prosaic arthritis and fibromyalgia, just to add to this, osteoarthritis in my knees. I'm in a lot of pain most of the time. My flares last for acouple of weeks where I'm totally wiped out. I've joined the group as I'm struggling with pain control I'd love to hear people's lived…
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Life after Methotrexate
After taking methotrexate for 5 years, with constant remission and no flare ups - I have been very fortunate - I have now been told I can take a break from MTX and see how I get on. I was down to 7.5mg for 6 months, down from 15 then 10. I would be interested to hear if anyone on this community has managed to stop taking…
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Thigh pain after THR
I had a right hip replacement 12 weeks ago, off crutches at 6 weeks seemed to be doing well. At 10 weeks started to have front of thigh pain which is worse when walking. I had a cementless hip replacement has anyone else experienced this and does it go away?
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Cross with myself
Took my 4th methotrexate injection today but annoyingly for some mad reason I forgot to wait for the 2nd click on the injection. I think I just forgot (goodness knows why?) when I lifted the injection up from my thigh I found a little pool of the drug sitting on my skin!! I’ve absolutely no idea if any of the drug managed…
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Bilateral Ankle Arthrodesis
Has anyone had both their ankles fused? We would love to hear any tips and advice. My husband has had one ankle fused, and the other is deteriorating rapidly. ( the downside of playing semi pro football for 16 years). Might an ankle replacement be a better option for ankle number 2?Many thanks
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Hello ☺️
Thank you for accepting me into this community. After years of grumbling knee pain, I was diagnosed with OA in both last year aged 39. I've also had years of intermittent back issues, spasms and the like, but earlier this year I suddenly was waking up with lumber stiffness, stiffness in the ankles, shooting pain in lateral…
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Pain Management Siatica
Having severe pain when walking and when I sit have pain spasms in my buttocks but no pain when I sit for a few minutes.Medication I have tried co codimal morphine patches which did not help. I have been now prescribed amitripline 10mg which can be increased to 25mg.Have been taking them for 10 days pain not much better…
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Hello
Just joined ! I have osteoarthritis! Had both my knees replaced in 2015 and my right hip in 2017.. I was told my left hip should have been done already and my right a few years prior. I still went skiing twice a year until last year .. I need an ankle replacement ! in 2022 went skiing , was quite painful so 2023 was missed…
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Rapid symptoms
Just been diagnosed with osteoarthritis. Has shown up in knees on xray but feeling it in every joint. Came on rapidly, starting in summer. Suspected rheumatoid or fibromyalgia. I'm a teacher and mum to a young child. Very shocked and scared.
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Hello all.
I am new to this community and wanted to say hello and introduce myself. My name is Dale and I have been diagnosed with Mixed Connective Tissue Disease (MTCD). This condition consists of Systemic Lupus Erythematosus (SLE), Rheumatoid Arthritis (RA) and Raynaud's Syndrome. I have Covid to thank for this. The doctors told me…
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Newbie
I’m new here and not sure how it all works, but thought I’d say hello and hopefully become a part of this online community. :)
