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Neck pain
Hi, I've been suffering from chronic pain in my neck which causes severe migraines. I was diagnosed with klippel feil syndrome last year in C4/5 with degeneration in C6/7 and no disc material in C3. Also bone spurs. Steroid injection last year in C6/7 but made no improvement. I struggle daily with pain and use a scarf to…
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Hip replacement, living alone and with responsibility for pet.
I’m going in for my hip replacement in two weeks’ time and thought it might be helpful to share some of the preparation I’ve had to do, especially as I live alone in a house with stairs and own a cat, whose needs also have to be catered for. I’ve found the discussions on this forum really helpful for preparing, but…
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Val's Cafe
Dear Mods When we get our new cafe can it be called Val's Cafe please. She hit on a great idea doing this and we are so glad she did. It gives us a place to go to meet up and natter about anything. It is also a popular place. So can it be called Val's Cafe please Mods. Trish xxxx
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Managing post op pain
seven days post total left hip replacement
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Pain relief
Hi new to this Had knee problems for years and I’m told they will both need replacing , but will not consider till I reach 60 , I’m an expert in hobbling around including work , always careful about walking around as if I slip over years both have dislocated , just lately the pain at times is 8 out of ten My job involves…
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Will private medical support biologics? Any experience please
Hi I’m new to the community, but was hoping some of you may be able offer some advice re. a situation I am in. I am currently taking methotrexate & hydroxychloroquine for my RA and in January this year my consultant recommended that I should be treated with biologic therapy if this combination of treatment proved…
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My THR recovery diary
After a long day, my operation took place at 5 pm. I was a nervous wreck all day but the op was amazing. The theatre team were fab. I even saw my old hip bone and the reason I was suffering so much with it. Exposed bone and extra bone growth. How I wasn't in more constant pain I really don't know. Back in my room now ,…
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PsA and fibre
Hi all, I was diagnosed with PsA at around 16/17, I’m now 34 and am currently in the process of getting a diagnosis of fibromyalgia. I’ve had a blood test to rule out lupus, just waiting on the results for that but going off symptoms I think it’s more likely to be fibro. I'm used to the swelling and pain of PsA but I’m…
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Total reverse shoulder replacement Feb 2019
Have read comments that little is reported of this procedure from 'inside experience' so will share mine if anyone is interested. Had 3 fractures to head of humerus late September 2017. These became displaced so were plated, screwed and pinned two weeks later with the surgeon warning that his handiwork might not provide a…
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Steroid injections
Hi, I'm new to the site and I have been reading some posts and it s real supportive to hear some of your stories as I can identify with some of the feelings being expressed. I had a steroid injection 3 weeks ago in my hip and it feels worse than what it was before and that was bad enough. I 'm feeling my mental health is…
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Disappointment - the ultimate reality for OA?
Hello. I've been a forum follower for many years and have always posted with positive intentions of encouraging others. Recently that approach has become more difficult to maintain and I have made only occasional contributions here, being aware of the depressing effects of reading online wingeing and the apparent reduction…
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Hello
Hi Everyone, Just thought I would say Hello. I have Osteoarthritis in my spine and it is giving me lots of pain. Not a good way to start a conversation when you have just joined. I’m wondering if there is anyone on here who lives in Plymouth, as it would be good to get together sometime. Let me know if you live in Plymouth…
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Shoulder replacement
Can I ask anyone out there if they have had shoulder replacement. I'm worried and would like to know what the success rate was, and how long was recovery please.
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Pain management for Ankylosing spondylitis
Hi, I’m 21 been diagnosed with AS (Ankylosing spondylitis) since I’m 15 and it’s feels like it’s gotten worse pain and discomfort wise. I started on some orange coloured pills, then methotrexate (both useless) and then biologics (2 years after diagnosis). First biologics was amgevita and I felt normal with that up until…
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Total Reverse Shoulder Replacement from a Rheumatoid’s Viewpoint
This is an account of my experience of being a rheumatoid and having my shoulder replaced. It’s not really for comment but just meant as a guide for anyone else with RA looking at having the same procedure. I will write in installments and add a couple of photos of the scar as we go along. This is just my experience. We’re…
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Hot weather
Has anyone noticed an increase in pain and inflammation whilst we have this lovely weather. My Knee feels swollen and tight, but with work and a busy home not much rest time.
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Any new DISH research and treatments ?
For a year I have been told that my neck pain was simply an age related wear and tear issue and the local clinic simply offered standard pain relief suggestions. Research now shows it is not just an 'age' issue but also a distinct disease often related to metabolic issues. There is very little about this on most…
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Knee support
Knee Hello im looking for advice for knee supports so i can try and run again or at least get back up some hills. It appears the condition is only in the outside section of my left knee, are there any supports better than others for this Thanks Tony
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Fatigue getting worse
Hi all, I have inflammatory arthritis and take Methotrexate. My fatigue has recently got so much worse. My body feels constantly extremely tired. I love exercise but recently I am struggling to do this as I am so fatigued. Also when I don't work I seem unable to do much due to this terrible tiredness. I will get my bloods…
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R.I.P Hadleigh
Actor Gerald Harper has died at the age of 94. He will be remembered for his tv roles in Hadleigh and Adam Adamant.
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Arthritis at a young age/looking for friends with same situation
Hey guys, I’ve had arthritis since I was 23. I’m now 31. It’s changed my life. I really wanna be able to talk to/make friends with people my age who understand what I’m going through.
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injections
My dependence on crutches started within one hour of an ultra-sound guided injection at Charing Cross Hospital, in London. Is it unusual for a patientl to pick up a supposed box of Hyaluronic Acid from an outpatient clinic, and then give it to a doctor in ultra-sound to inject it into one? I'm cynical of doctors,…
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Hey, I really need some help or advice from anyone who might know more about this.
My daughter has this condition where her heartbeat suddenly becomes irregular. It's not all the time, but when it happens, it’s really scary. What’s strange is, our Labrador always seems to know before we do. He’ll just get up, go to her, and wrap himself around her like he’s trying to calm her down. And honestly, it…
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Possible Bakers cyst
hi . I’m under a rheumatologist ( watch and wait ) but have developed what I think is a bakers cyst . I have swelling at the back of both knees but worse on the left with tenderness. Should I let the team know ? Is this significant to my diagnosis?
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New diagnosis DISH Disease
Recently diagnosed with DISH disease. It has been 18 months since I first contacted GP about severe neck ache. It took 8 months to get an MRI scan appointment and then another 4 months to get a follow on CT Scan, plus another 8 weeks for the consultant to give me the diagnosis. The Consultant asked me to hold on while he…