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Information and Support Talks
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Val's Cafe
Dear Mods When we get our new cafe can it be called Val's Cafe please. She hit on a great idea doing this and we are so glad she did. It gives us a place to go to meet up and natter about anything. It is also a popular place. So can it be called Val's Cafe please Mods. Trish xxxx
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Partial Knee Replacement
Hi there I was just wondering if anyone had had a similar situation to mine and should appreciate your advice: 10 years ago was diagnosed with OA in knee, 8 years later the pain was excruciating, couldn't sleep, had pain when resting etc and it took a year and a half to get a referral to Physio which worked to a certain…
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THR for right hip now really close (Feb. 11th)
Hi everyone, It’s been 9 years next month since my TKR which you lovely people helped me through. Sometimes throughout the day and night as I panicked about pain relief, exercises, etc. Well it’s now 5 days until my first THR. I’m sure I’m going to panic again. I’ve tried hard this time to control as much as I can about…
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Total hip replacement in next 3 months
Hi All, So I found out last week that I have to have a total hip replacement on both hips due to my severe osteoarthritis. The first hip(left) will be within next 3 months. I've read alot of the posts regarding surgery, and tbh I'm finding it pretty difficult. I'm 38 and was not expecting to be going through something like…
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TKR a week ago
hello all. I’m new here and one week on from my first TKR. Frozen peas definitely my friend and I didn’t know how hard it would be to get to the loo in time, so tena pull-ups too!!! Think the tramadol either makes me wee more or not wake up on time. But my old pain is gone. - new pain is not fun of course but I know that’s…
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Hello just diagnosed with RA
Thank you for letting me joined thia community. Just got diagnosed with RA yesterday. I tried to digest and sink it in but real hard, feel like the world is collapsed in front of me. Scare , fear and emotional. Wishes someone can tell me : it will be ok....
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Lab Grade Turmeric + Lab Grade Boswellia Serrata
I came across a recomendation for the above while reading up on RA. Has anyone tried it? Has anyone tried tumeric generally ? what do you all think?
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CT SCAN with iodinated radiocontrast
I have to have a CT coronary artery Scan with iodinated radiocontrast, however I am reading some worrying stuff with regards to MTX interaction with the iodinated contrast used for CT. Unfortunately I recently had a stroke following some bad news and i think it knocked me out of my remission. I had a contrast scan after a…
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Farmer with AS
hi, I’m a farmer with AS and I’ve been told there putting me on adalimumbab. I just wanted to know if anyone else has been in this situation and if so what did the doctors say?
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First few weeks after hip replacement
Well I've finally had a total hip replacement 2 years 2 months after going on waiting list. Had it on Saturday, home on day 2. Feel like I've been run over, I know what's involved and expected pain but really aching. Taking cocodamol only for pain, constipation was grim after oxycodone in hospital but think I'm on top of…
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Can I get my rheumatoid arthritis markers down just by healthy eating?
Hi, I have been told I have rheumatoid arthritis but. My adult children say to rather eat very healthily rather than allow my consultant to put me on steroids and Methotrexate (of course they are not medically trained but believe in alternative methods) because of the potential side effects. My recent markers are RF 250,…
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Walking stick issues
Good morning. I have osteoarthritis in both knees and I think my right hip is now starting to show signs too. I use a walking stick when walking any distance (not in the house). I have bought two different folding sticks recently as I am going on holiday next month and it will be useful to fold up and put in my bag when I…
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My hip op is done
Hi everyone, I finally received my total right hip replacement surgery on the 8th April. The surgery itself was uneventful, opting for the spinal and sedation. I did wake up in recovery spewing black vomit. But that quickly passed, thing it was down to all the drugs and stuff. I spent one night in hospital, passed the…
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Opinions please
Hi this is my 1st post, I have left knee OA on waiting list for new one, right knee starting with OA. Right hip OA and degenerative disc disease with spinal stenosis also OA in back. Oddly I can walk up to two miles as this helps back , left knee copes but hurts for a couple of days after, I try to manage without pills,…
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Hello
Hello, My name is Michael and I've just signed up here and reading all the discussions with all your stories makes me feel better. I believe I have osteoarthritis in both my knees and one hip, I'm only 45 years old and the doctors don't really take me too seriously and it's been 2 years since it's started. I'm fit, very…
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Vaccines
I am new to arthritis and still trying to work of which drug will help my condition, so sometimes I feel rough. I have been offered the RSV vaccine by the NHS but not sure if I should take it in case it makes things worse. I wonder if anyone has experienced difficulties with it.
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Hello
just saying hello as just joined, been struggling with my back and nerve issues since Dec 23 and now have knee pain, feeling very alone. Hoping to find some support here and nice to meet you all, I am Julie ☺️, in my late 50’s. Currently on dihydrocodeine, paracetamol and Pregabalin for pain relief. With Voltarol gel for…
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Adalimumab tingling and swelling in feet
Hi all I started on Adalimumab in June I am also taking methotrexate and Sulphasalazine it’s doing wonders for my arthritis my joints look fab, but it’s causing problems with my feet and ankles which have become swollen I have tingling and loss of sensation I spoke to nurse who said this wasn’t a usually side effect…
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Yuflyma
hi there, I was diagnosed with psoriatic arthritis a few years ago after suffering Terry pain and many other symptoms, I basically thought I was going to die. I met my consultant and was put on methotrexate tablets, then injections but had terrible stomach cramps so I have now been put on Yuflyma injections every 2 weeks.…
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Feet
Hi there, I have several problems with my feet. I get bright red peeling patches and the soles of my feet feel like they’re burning and wet but dry and cold to touch. My cramps have gone away (hopefully forever) but I’ve only been taking Yuflyma for nearly 2 months so a long way to go yet by the members I’ve spoken to
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Foot pain
I've recently started getting really bad foot pain and I'm struggling to get about the bottom of my foot is so painful. And the pain is starting to travel around my foot and I feel pain in my lower back. I've tried using a pain relief gel on my foot but it doesn't seem to help at all.
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Osteoarthritis in knee
Hi, I'm new here, would like to know what people have taken for pain relief, I'm on Tramadol but doesn't seem to be helping much.
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R.I.P Mike Berry
Some may remember his as a singer and some will remember his in Are you being served. Mike Berry has died at the age of 82.
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No access to medications
Dear help team. I have Arthritis Romatoids and I have no access to experts or romatologists because I live in Afghanistan. All ortopidi doctors couldn't diagnose my disease and made my pain more. My arthritis is getting worse and I am scared if it hurt my joints permanently. The pain is also really bad. I really need your…
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Rheumatoid Arthritis and cycling
HI , I got diagnosed with RA last August after spending more than a year having scans xrays to find out what was causing swelling in my knees and arthritis symptoms. I am on 15mg Methotrexate a week which helps . I still suffer with mobility . I use to cycle regularly up to 30 miles . Am I unrealistic thinking I will ever…
