Val's Cafe

Hello Barbara Kathleen Christine Toni Toady and anyone i missed.
i hope you all had a good weekend.
twice a week we go to town with dial a ride and do the shopping
and i use them to go swimming. they come to the front door to pick us up and drop us off.
i had a hospital ap (physio) this morning 8-30 was picked up at 8-00
got to the desk the lady said your physio has phoned and she's stuck on the motorway and she will ring to make another ap.
so i had a coffee and i had a taxi back.
i hope you all had a better morning.
joan xx

Barbara, they are both evil. :x But sero positive does tend to be more aggressive and there are other related conditions that negs don't get (like vasculitis) but positives do. :roll: But on the other hand, there are some drugs (like Rituximab) that can't be used with negs but work well with positives. So it's swings and roundabouts really.

Had quite a shock in the night. There I was, fast asleep and all snuggled down, when OH suddenly (in his sleep) reached over (we have separate adjustable beds) and swiped my duvet. :shock: I shouted "what are you doing?" and swiped it back, but got no reply except a long drawn out snore. :roll: I clung onto my duvet for the rest of the night and tackled him in the morning, but he had no idea of what he'd done. I shall be quite cross if that happens again.

Morning all
Kath thanks for explaining that..like I said very complex..what a shock your OH taking your duvet..at the min we have separate rooms..if we had room we would have got two single ..but you cant swing a cat round, so when I had this hip done hubby moved rooms and we both get some sleep
Christine..you made me laugh with the extra virgin olive oil only the best.. my eldest GD suffers from depression ..its a long story..her mum does..I feel so useless keep telling her how much I love her and she dose talk to me, but when she is at her mums its all text and its not the same any how the school has offer to find her an apprenticeship ..so fingers crossed..not sure what she wants to do she is such a good artist I would hate her not to be able to use it..sorry I am rambling here..
the arthritis clinic is a brilliant idea ..at least you will be monitored regular...like others do with different complaints..hope you can get an appointment with your rhuemy...
The rain is just easing here hope it ends up like yesterday afternoon lovely and sunny
Wounder if Toady has got the shelves up..I need a standing ovaition got lots of ironing done yesterday

Hello Elizabeth, Joan, Toady, Barbara, Christine, anyone who joins in. Hope you are all coping with the wet, damp, rainy weather and oh that wind! I mean the one outside, not my own internal problems.

Elizabeth, I don't go swimming. Never learned. At age 8 I had private tuition and the coach put a rubber ring round my waist, plus a canvas belt attached to ropes which he kept hold of and then gave me a float - I sank. He pulled me out and sent me home in disgrace. :oops:

Barbara, I managed to keep my duvet last night. Our room is small too and the beds and other furniture do fill it. OH has to take a careful sidestep around the room when he needs the bathroom in the night. With the occasional muffled "OUCH" as he stubs his toe yet again. OK, maybe not so muffled. :roll:

Christine, I can remember as a child having a lot of earache and mum using warm olive oil in my lugholes. I'm beginning to think it is either wax or catarrh, as today it isn't as bad. Odd thing is, when I got down on the floor to dust the skirting boards (yes, I'm odd like that) it cleared completely. Then when I got up it came back. :?

I'm going to embarrass myself even more now by telling you what I had to eat yesterday - it's quite disgusting.

Breakfast: toast, marmite, coffee Dinner: half a meat pie, stuffing balls, chips, spaghetti Tea: Ham salad wrap, spring roll, piece of pork pie, peanuts, blueberries, two mini wagon wheels Supper: Smoked ham and cheese with tomato sandwich, chocolate mousse

It's a wonder I don't look like the side of a house.

Hello all, sun is shining hope it keeps up. Have indeed been putting up shelves, well got so far, they are unit thingys, so freestanding, no doing anything to the walls etc. Will try & muster a pic when done to prove it. Will be so nice to put some things off the floor. Giving myself a blister from the screwdriver (feeble weed!!), have got a drill with screwdriver bits but wouldn't quite trust myself with it on white laminated board.

Tired after mtx so won't do a lot more. Cup of tea is called for.

Your meals sound ok to me Kath.. Not like it says '3 packets of biscuits' unless that's between meals.. portion size is the key I suppose not that I know what proper mealtimes should be like nowadays (getting up & staying up late), everything is all 'out'. Sounds like you are feeling a little better after the infusions? even if they did kick like a mule after. Yikes.

Hope you don't pick up Son's cough TK. Big spider, ugh, hope it's left the premises. Did you get anywhere with the windows install.. expect you have checked the pc's boot order but worth asking.. if not hope neighbour can get it up & running. I hear windows 10 is in the offing, oh lordy. :roll: Glad you have got Charlie coming for the weekend.

Barbara any further thoughts on new machine for you, can't be fun wrestling with your space bar. I am duly standing for your ovation, or if you prefer have an ovaltine, if you are in need of a lie-down & sleep after all the ironing. :shock: I don't mind it too much but don't do a lot, mostly things I don't like creased (like bedding); seem to wear a lot of the same clothes round & round again so I never end up with basketfuls of stuff. You can pass a small pile my way. Hope your GD makes the right choice for her, I couldn't wait to leave school either but whether that was the right choice, who can tell 'til later.

Yes it was sweet of the ladies to come & give me their advice applerose.. but do wish people wouldn't comment on my neck, it does make you feel like quasimodo even if they mean well. I always think people won't notice, clearly not so. Glad you got on ok at your clinic, I don't think we have such a thing, though quite a few of the ordinary nurses seem to have an autoimmune themselves. Your Dad's carers sound a little lackadaisical, I was very lucky with mum's and had ones that would go the extra mile. Others not so good though. :roll: They do tend to come & go, so maybe you'll get some different ones.

Joan, how annoying your physio was cancelled. I would be cross not so much about the wasted trip as the having to come back again another time, hope you can get a convenient time for the next one.

Thinking of frog at the start of maintenance week. Poor daisycat and the rain, I expect she would like a nice little covered walkway into the garden - so would I. One day's heavy rain and my plants are looking battered, everything looks tatty, and the back door starts sticking.

Hope bubbles, mig and anyone reading are as well as can be, see you all anon, toady xx.

Evening all
What a storm we have had... :shock:
Elizabeth I was watching the gymnastics this afternoon ...the men vaulting was amazing..nice that your daughter is coming to see you.. these young ones do like there presents early..I had to laugh that L has had some of her Christmas as well...
Mig what a shame after you have enjoyed your break..hope the cold isn't has bad as the man flu your hubby had...feet up now and some me time..
Toady I hate ironing..like you I tend to try and wear the same stuff for a few days...sheets never get ironed..only the very creased tops get done... my late mum would turn in her grave.. :oops: I will have to give some thought to this comp..not a clue were to start I need the speed and the memory...and reliability..not much to ask sorry you have felt tired after the meds..is this every time you have it..I hear so many saying how tied it makes them :roll: has for the neck I know what you mean ,people say to me you should stand up straight no wounder your back is bad...that is when I think I am standing up straight
Kath poor OH getting round the beds but at least you are together.. now you have made me hungry...sounds like you enjoyed it... hope the infusions are still helping...
Joan hope that mouth is better...and you and Sue have a good evening
I have the gas fire on first time since May I think...the baby has just gone home...and no other GC here so very quiet...
Hope you all have a good evening see you tomorrow...xxxx

Morning (just), to one and all. Quite where the last few days went, I am not sure...........
I will have a read back, hope everyone is as good as can be.

Finally we have cool weather, hoo rah, no longer on meltdown, after months of mellow moments. In fact, we have the fire on in the living room, oh, the irony. It is much easier to get warm, than to cool down and the cats are absorbing 90% of the heat anyway.

Niece and her partner took us all out for lunch on Sunday, as a surprise, which was very nice. They both had hangovers from partying the night before, sorry, no sympathy, matron is hard nosed on self inflicted boozing. My Niece could not eat, but we all tucked in.

Otherwise keeping busy, visiting Mum, pottering at home, out for lunch today, (we are never in and there are not enough hours in the day since I was pensioned off and put out to pasture).

Better potter a while, bones are shouting,as they do. Take lots of care everyone, xxxx Bubbles.

Hello all,

Rain most of the day. Hope everyone is feeling not too bad.

Barbara, I'd love to be able to do Thai Chi. I remember watching 'Calendar Girls' where they did their exercises on a hillside. I'd fall over all the time.

Yes, Linda Bellingham. She reminds me of my late friend Sandra who lost her battle with breast cancer around April this year. She made the same decision so she could have one last, good, Christmas with her family. Don't think I'd be that brave.

Bubbles, hope your pottering didn't make your bones worse. I'm totally in agreement with you on the subject of self inflicted suffering of any kind.

Christine, normally I wouldn't have bothered about my diet that much, but since cancer I've been a bit more aware of healthy eating and tend to prefer a more vegetarian/fish diet. But it is nice to sink your teeth into some juicy meat now and then.

mig, glad you had a good weekend with your grandchildren.

Toady, that's where the sun is now days. You're hogging it all to yourself. enjoy it while it lasts I say.

This morning I was sat chewing gum (Sjogren's dry mouth) for some reason I stuck my finger in my left ear (I'm odd like that) and heard and felt the most awful grinding noise in there. Tried it with the other side - nothing. Now I'm wondering if there's some inflammation in the bones in that ear that is blocking 'proper' sound from getting through. Just a thought. :? It would explain the noise problems I've been having, and it is starting to affect my balance a bit. Thank goodness for my trusty walking stick. :roll:

I don't know where the time goes either Bubbles. Glad you are keeping so busy and enjoying the cooler weather.

Barbara, no need to feel embarrassed. I've posted things then thought maybe I shouldn't but we are all here to help one another keep our chins up. Yes, I think the Thai Chi will do me good although my arms and knees were sore today but I guess even a gentle exercise needs to be gotten used to. Oh interior designing. What are you designing?

Kath, I don't think I could be that brave either. I'd have to fight all the way. Wonder if you're right about the grinding noise. Are you seeing anyone about it? Especially if it's affecting your balance.

Glad your desktops are up and running again Elizabeth. I think it's a good idea to combine birthdays and Xmas presents. I think the young ones seem to understand better now that it is combined and they can't have it twice. You always seem so busy. Hope you are managing to get some rest too.

Had an argument with some window cleaners on the way to work. it was bin and recycling day. As I came up to one house, the bin and about 5 grass bags were neatly lined up against the garden wall. There was a white van parked on double yellow lines and all the way across the pavement right up against the bins. I noticed the driver was in the van so I held my hands out to let him know I wanted to get past. He just waved at me to go on to the road to get past. I shouted, "No, I'm not going on the road. "(Although it is a 30mph road, a lot of traffic travels at 70mph). There were 4 men and one of them came over and moved the bins so I could get past and said, "It wasn't us who put the bins here." I told him the bins weren't the problem, it was the van which was parked illegally. The driver laughed and shouted that they were allowed to park like that because they were working. :shock: :roll:

Morning all
Christine thankyou...yes even small amounts of exercise can use different muscles...so it is good..have a nice soak after..this parking on pavement is a real prob we have reported to the police who said its a council issue so you go round in circles..its awful when you have to walk in the rd and put your life at risk :x I have the same on our rd...and wehave one lady with a walker and one with an electric chair..and they canbe stranded so I have sent a long letter to the council not sure if they will reply.. :roll:
bubbles good for you the ironing can wait mine did for nearly a year... hope your mum was ok yesterday...and she has settled in...
dark here then sunny not a clue what it will do...I am contemplating decorating the one wall over the fire and in the recess just to brighten things up...not me but OH ... he doesn't know yet..
Elizabeth ..does she know she is getting the laptop she will be over the moon.. hope you all enjoy it sorry is it today ,my mind has just gone blank :roll:
Hope everyones doingok...will be back later xxxx

Hello all, just a quick visit today, Thursday is usually pretty busy at ours. :roll: Will have a cuppa and some biscuits. I'm in a chocolate mood because I've just decided what chocolates to order for Christmas. Our 'pop man' gives us leaflets every year and we pay £1 weekly through the year to pay for it.

Bubbles, do you have Sjogren's Syndrome? That's what I get and it's not nice. I'm sipping water all through the night, and often chew sugar free gum to keep my mouth a bit moist. I use Beconase nasal spray and Hypromellose preservative eye drops. Supposed to use Glandosane oral spray, but it doesn't work very well. I will probably mention ear/jaw problem when I go to my next appointment with the rheumy nurse on 27th.

Well that was the longest 'short' visit I've ever seen.

Afternoon all
A lovely day here so we went to the garden center they have its all ready for Christmas some fantastic displays..they are extending it and its massive already there will be butches and bakers...in the not candle stick makers.. so had a good half day..
Kath and bubbles I have been fancying chocolate ..they always say have what your body tells you
will leave the kettle on its one of those that doesn't boil dry.. for anyone that pops in.... hope you are all doing ok...xxxxxx