We have a dedicated section for parents of children under 18 with arthritis on our web site with tons of useful information, links and useful resources to download. As well as this, do ask questions and post support in any category across the forum. Here is the web site link: also some other useful links and
My daughter has been diagnosed with JIA and has been taking methotrexate injections since Sep 2023. She got her first periods in early Nov followed by second one in late Dec 2023. Since then she hasn't had her periods( > 6 months now). I have read that mtx can cause periods to stop. Her rheumatologist thinks its not…
Hi, my daughter was diagnosed with polyarticular JIA at 3 years old, she was on methotrexate for 3 years and has been in remission for 10 years. Unfortunately it returned last September and she has been in pain since. Currently on methotrexate and adalimumab but still in pain. Are there any online communities for 16 year…
Hi, my name is Abbie and I was diagnosed with arthritis at 8 years old, I am now 21 and completing my degree in genetics. As I was inspired to do this degree due to wanting to help others like myself I thought it would be fitting to use my final project on this topic. As a child I remember seeing a lot of leaflets to try…
Hello everyone, Our 15 year old son has JIA- he's been on Methotrexate injections since Jan 2020. It's helped a fair bit,but the sickness affects him badly,even with anti- emetics. He has the injection on a Sat eve and doesn't want to go out at all over the weekend and is off school every Monday due to the sickness. The…
My daughter, age 13, has been diagnosed with osteoarthritis in two joints in her feet, caused by tarsal coalitions, which are inoperable. I'm finding hard to find any parents/carers of young people with osteoarthritis... is there anyone out there?! She can only walk very little with crutches, and is using a wheelchair…
Hi, My 3-year-old daughter was diagnosed with JIA last May. I'm reaching out to connect with parents in a similar situation for sharing experiences, support, and advice.
My child started is 12 and in great pain when she stands, walks or uses a pen. It's very debilitating. we've been through all sorts of diagnoses, the latest being hypermobility. She started struggling with pain at age 8, and it got debilitating about 2 years ago. I've been advised to try to find a private hand therapist to…
My daughter was diagnosed with chronic seronegative rheumatoid arthritis almost 2 years ago at 18 years old and it is breaking my heart to see her suffer pain daily, weight loss & mobility issues having played football at grassroots level since the age of 7 and being so active in her teenage years. This disease is robbing…
My son has had the most awful experience with NHS Rheumatology; after a year they are only just starting to initiate medication, leaving him with frequent flare ups. I have now go to the stage where I am considering getting him to see a rheumatologist privately but given his experience over the last year I want him to see…
Hi everyone. my son has JIA and he has now been on actemra - tocilizumab for 2 months. he has monthly iv infusions. its been 3 weeks since his last infusion and over the last 3 days i have noticed little bruises appearing on his knee (this is where the arthritis is and he has not walked for 11 months). he had a blood test…
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