Bit of an intro as I recently signed up here and have been reading with interest to see if there's anyone like me! 😀
I was diagnosed with RA mid-2018 (seronegative) after a couple of years ignoring the signs. At first I was experiencing wrist pain which I put down to RSI, due to me working with computers for about 100 years. A bit later I started to get stiffness in some fingers which then led to swelling of the entire affected fingers.
My fingers have always been rail thin, but ...
My right hand little finger inflated to about 1.5x its normal size
My left hand middle finger did the same
Then over time my wrists got worse as swelling started to appear in both, with some mild pain. The fingers only really hurt when I use them, or try to bend them beyond what they want to due to the swelling.
My left knee became swollen and looks like it's pregnant. Touch wood so far the right is okay.
Within the last two months my RH first finger has inflated to 1.5x its normal size which is a bit of a nuisance, as I use it much more than my little finger. This morning I'm getting the tell-tale pain in the PIP joint of my left hand first finger, so no doubt that too will inflate soon (hasn't yet).
I've also developed a bulge on the back of each foot where the achilles tendon meets the heel bone, which is often red and painful to the touch (kind of like Bursitis). This is also accompanied by swelling into the foot and the very bottom of the leg (although this is minor and I wouldn't notice if I wasn't obsessing over the foot problem). The swelling goes down overnight. My GP thinks this is a side-effect of my RA and says it is quite common.
I've been on Hydroxychloroquine for a couple of years (200mg/day) but I don't think it's done anything, unless it's stopped things getting even worse...
I'm now waiting for hand Ultrasound scans before they put me back on MTX which will hopefully get rid of all this swelling. I went on it in 2019 but sadly quit after 5 weeks (I was fine on it BUT I couldn't stay off the booze - DOH!). Still waiting for the US appointment (getting the "due to COVID" excuses), although to be honest a hospital is the last place I want to visit right now, especially after being in self imposed lock-down since early March 2020 even before the government did it. I will also need baseline bloods.
Anyway that's the waffle, and now you know where my username came from 😂
Best wishes folks