Polymyalgia Rhuematica suffer

Dillycats
Dillycats Member Posts: 2
edited 28. Nov 2023, 14:10 in Living with arthritis

Hi I am new to this group and wonder if there are any fellow suffers out there? I have been on steroids under the advice of my consultant for over 2 years but don’t seem to be getting anywhere, as soon as I reduce the dose my symptoms return, the information I read never can give a time limit, it seems to vary from 18 months to 6 years. Any advice would be welcome.

Tagged:

Comments

  • noddingtonpete
    noddingtonpete Moderator Posts: 1,357

    Hello @Dillycats and welcome to the Community. We are a friendly and supportive group and I hope that will be your experience as well.

    I understand that you have polymyalgia rhuematica and looking for advice and experience of others. You are in the right place. Have a look through the following from our website

    https://www.versusarthritis.org/about-arthritis/conditions/polymyalgia-rheumatica-pmr/

    and

    https://www.versusarthritis.org/about-arthritis/treatments/drugs/steroids/

    Please keep posting and I am sure that others will connect with you to share their support and experiences as well.

    With best wishes

    Peter (moderator)

    Need more help? - call our Helpline on0800 5200 520Monday to Friday 9am to 6pm

  • MaryElizabeth
    MaryElizabeth Member Posts: 2

    Steroids are only for short term use They can be difficult to get off and must be done gradually People have their own views on the best dietsfor this .condition.

  • Ellen
    Ellen Moderator Posts: 1,933

    Welcome to the Online Community @MaryElizabeth

    It's lovey to see a new member's first post being one trying to support another member.

    You are quite right about steroids in general being only for short-term use. Their side effects mean that usually Drs avoid longer term use. However with PMR Polymyalgia Rheumatica the treatment is predominantly steroids as detailed in the article about PMR above.

    You haven't said which type of Arthritis you have yourself which is absolutely fine. I am going to attach a link which hopefully will have something of interest to you:

    https://www.versusarthritis.org/about-arthritis/managing-symptoms/


    You are also right that people have their own opinions about diet this is what Versus Arthritis has to say on the subject:

    https://www.versusarthritis.org/about-arthritis/managing-symptoms/diet/

    My best wishes

    Ellen.

  • Robin21
    Robin21 Member Posts: 1

    @Ellen The link to Eating Well references arthritis, though not PMR. Is it thought that certain nutrition regimens affect all such conditions that same. I didnt realize that PMR fell under the label arthritis, but rather auto-immune. (I’m researching that now.) Thank you!

Categories