Polymyalgia Rhuematica suffer

Dillycats · 6. Mar 2023, 10:57

Hi I am new to this group and wonder if there are any fellow suffers out there? I have been on steroids under the advice of my consultant for over 2 years but don’t seem to be getting anywhere, as soon as I reduce the dose my symptoms return, the information I read never can give a time limit, it seems to vary from 18 months to 6 years. Any advice would be welcome.

noddingtonpete · 6. Mar 2023, 11:03

Hello @Dillycats and welcome to the Community. We are a friendly and supportive group and I hope that will be your experience as well.

I understand that you have polymyalgia rhuematica and looking for advice and experience of others. You are in the right place. Have a look through the following from our website

https://www.versusarthritis.org/about-arthritis/conditions/polymyalgia-rheumatica-pmr/

and

https://www.versusarthritis.org/about-arthritis/treatments/drugs/steroids/

Please keep posting and I am sure that others will connect with you to share their support and experiences as well.

With best wishes

Peter (moderator)

MaryElizabeth · 7. Mar 2023, 07:16

Steroids are only for short term use They can be difficult to get off and must be done gradually People have their own views on the best dietsfor this .condition.

Ellen · 7. Mar 2023, 07:41

Welcome to the Online Community @MaryElizabeth

It's lovey to see a new member's first post being one trying to support another member.

You are quite right about steroids in general being only for short-term use. Their side effects mean that usually Drs avoid longer term use. However with PMR Polymyalgia Rheumatica the treatment is predominantly steroids as detailed in the article about PMR above.

You haven't said which type of Arthritis you have yourself which is absolutely fine. I am going to attach a link which hopefully will have something of interest to you:

https://www.versusarthritis.org/about-arthritis/managing-symptoms/

You are also right that people have their own opinions about diet this is what Versus Arthritis has to say on the subject:

https://www.versusarthritis.org/about-arthritis/managing-symptoms/diet/

My best wishes

Ellen.

Robin21 · 19. Apr 2025, 17:25

@Ellen The link to Eating Well references arthritis, though not PMR. Is it thought that certain nutrition regimens affect all such conditions that same. I didnt realize that PMR fell under the label arthritis, but rather auto-immune. (I’m researching that now.) Thank you!

PJoanne · 20. Apr 2025, 07:46

Hello @Robin21

Welcome to the forum. We hope that you will find the support and information you need here. We are a friendly bunch!

I'm wondering if PMR might be considered to sit under both the arthritis and auto-immune labels? (The body is attacking its own tissues (auto-immune) and this is affecting the joints/muscles/bones/connective tissues (rheumatic)) - just a thought from a lay person🙂

https://versusarthritis.org/news/2023/june/living-with-polymyalgia-rheumatica-steph-s-story/#:~:text=Polymyalgia%20rheumatica%20(PMR)%20is%20an,particular%20the%20shoulders%20and%20hips.

All the best Joanne

Polymyalgia Rhuematica suffer

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