I never pop in here, having only one child now aged 24!! I just wanted to wish all the younger sufferers and their parents the very best.. And I hope today will be a good day. I started with OA at around thirteen, and I know there are many with it much younger than that.. Teribble disease indeed, but we have to live with…
hi guy's has been an age since i last posted :oops: but really feel i need some support ,my poor jordan has just been told that he will need a hip replacement within the next year or so as the damage to his joint is so severe :( . Does anyone else have a child that has had to have a joint replacement jordan is only 14 it…
Hi all. Just wanted to check in to see how you all are? Grace has had her 1st methotrexate injection today and was much braver than her mum!! Hope everyone as well as can be. Take care
Hey everyone, I have not been on here for a while/ I originally posted am I in denial rebating my gorgeous girl being diagnosed with juvenile arthritis. I'm not in denial but I syllable don't get how my Nicole is so active when the consultant wants to pump her full of medicine that I feel the side effects make her ill not…
My four year old daughter has been on methotrexate oral syrup for 5 months, but it hasn't been very successful. The consultant wants us to try the methotrexate by injection instead as it is suppose to have better results. Does anyone have any advice or experiences regarding methotrexate. As I am wondering will this work as…
My Daughter was diagnosed with JIA 6 years ago, she is now 9. She is currently on a case study for canakinumab and has had partial response. We have recently applied for DLA and been told we aren't entitled, we hadn't applied sooner because we were able to cope with my daughters flares and good and bad days. But as she has…
Hey there, my beautiful 3 year old daughter has just been diagnosed, what started as a swollen toe that I equated to injury and then followed by a swollen knee again I thought was due to a bang, a year later a steroid in her knee and still little fat fourth toe. Consultant wants to start methotrexate but y, I am totally…
:) hi all .just wanted to ask ,I keep having dizzy spells been to my gp she said its due to my spine getting worse with arthritis .the last few week i have been in constant pain no let up at all .beginning to think its all this damp weather were having ,anyone else suffering due to constant damp weather ,gentle hugs to…
Anyone who has a child with arthritus or have it themselves, I have had severely restricted movement in my back for around 4 years and arthritus in my jaw. I have recently undergone a 6week trial of acuputure and the pain has been reduced by around 95% it's amazing and my movement has increased. I've had arthritus since I…
Hello i am back from the last day of the arthritis event me and the bleak house friends group organized. We invited Moira who has a daughter with jia to give us a talk. A moving account was given about her daughter and the struggle to get help for her daughter and the successes and achievements through her life. Moira…
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