Miracle Medication

eckstardeluxe
eckstardeluxe Member Posts: 1,192
edited 2. Jun 2009, 14:10 in Living with Arthritis archive
Hi there

My neighbour runs a support group for Fibromyalgia and occasionally arthritis sufferers. She gave me these patches they ordered from Canada. They are called 024 Fibromyalgia.

It is a wipe, you wipe it over the affected area and it can be used up to 3 times. She saw me struggling last week and gave me 4 sachets. I am not joking this stuff is amazing. They said it helps people with RA too, the feedback they've had is unbelievable.

Trouble is, it's Canadian! They are allowed to order it because of the group. I was at her door this morning like an addict asking for more! Also tried persuading my folks to swerve America this year and try Canada instead. But they were not having it :(

Comments

  • woodbon
    woodbon Member Posts: 4,969
    edited 30. Nov -1, 00:00
    Hi I'd be very careful about trying something that is'nt available on the UK market, as it won't have been tested in this country and licenced for use. Problems could occur if it reacts badly with any medication that is prescribed for you. I'm afraid I'm an old cynic. :(

    If you do try it, I'd discuss it with a member of your medical team first. Make sure that they know what your taking.

    Sorry to sound so negative, but it does worry me, as some of these medications can have unknown effects, or cost you a lot of money and prove useless. If you feel they have helped you, and you'r happy with them, of course the choice is yours.

    I really wish you luck with anything that helps you, and improves your quality of life. Love and best wishes Sue :wink:
  • eckstardeluxe
    eckstardeluxe Member Posts: 1,192
    edited 30. Nov -1, 00:00
    woodbon wrote:
    Hi I'd be very careful about trying something that is'nt available on the UK market, as it won't have been tested in this country and licenced for use. Problems could occur if it reacts badly with any medication that is prescribed for you. I'm afraid I'm an old cynic. :(

    If you do try it, I'd discuss it with a member of your medical team first. Make sure that they know what your taking.

    Sorry to sound so negative, but it does worry me, as some of these medications can have unknown effects, or cost you a lot of money and prove useless. If you feel they have helped you, and you'r happy with them, of course the choice is yours.

    I really wish you luck with anything that helps you, and improves your quality of life. Love and best wishes Sue :wink:

    Hi Sue, thanks for your message. Yes I was the same, so when I re-ordered my Gabapentin last week I asked the Dr about them. He asked me to read the drug facts label to him. He said it's a well documented analgesic and such a pity they are not available over here. He said it should not interfere with what I'm taking as topical but he did state the obvious, not to apply them on broken skin etc. But thank you for your support. I know you are just being a concerned poster and dare I say it Sue, you sound like my Mum :lol:
  • livinglegend
    livinglegend Member Posts: 1,425
    edited 30. Nov -1, 00:00
    024 Fibromyalgia consists of six herbal oils. These are rosemary, peppermint, camphor, eucalyptus, aloe vera, and lemon/orange.

    To quote the manufacturer, SwissMedica, We increase our market share through focused distribution strategies in multiple sales channels. Swiss Medica's mission is to be a world leader in the commercialization of life enhancing bioscience products that improve quality of lives. Please visit our website at www.swissmedica.com.

    While it may be of benefit, it has not been tested for arthritis or any other complaints, (except for fibromyalgia), as far as I can research. For instance, to quote the manufacturer's website, 'O24 Fibromyalgia™ is the first product specifically for fibromyalgia pain.'

    It is an 'over-the-counter' online health product widely available in the US and Canada since Autumn, 2005.

    Joseph 8)
    Josephm0310.gif
  • colinone
    colinone Member Posts: 1,039
    edited 30. Nov -1, 00:00
    Some good information there Joseph, do any of the contents of 024
    Act as a pain killer.

    Sue its right to be concerned over meds that have not been licensed
    In this country

    Ecks, I do hope this 024 really works for you, there was a lady on hear selling some sort of tablet from Australia a couple of weeks ago, it was very expensive. I’m not saying 024 is not the real deal the net has plenty of info on it and the company seems to be world renowned.

    However when you look at the amount of people who prey on people who suffer pain and long term illness, there are lots out there. I have suffered with Psoriasis since 1971 and in my younger days I would have sold my soul to get rid of it. I spent £s on all sorts of remedies from honey to herbs and most of them from foreign countries. Each new one would be the one that just might work but nothing ever did. It took Ra to sort it out many of the drugs used in the treatment of RA either slow down or put the Psoriasis into remission. Today I want the psoriasis back and they can keep the RA. I would imagine the people who run the group know t they are doing, I don’t wish to poke my nose in where not wanted but is there much cost involved. You’ll have to keep us updated on your progress with 024. Take Care
    Colin
  • frogmorton
    frogmorton Member Posts: 30,087
    edited 30. Nov -1, 00:00
    Hi Eck
    If your Gp says it's ok then go for it girl!
    Glad it helps.
    Take care
    Toni x
  • eckstardeluxe
    eckstardeluxe Member Posts: 1,192
    edited 30. Nov -1, 00:00
    Hi thanks for that info Joseph, it's more in depth than the sachet. It's got a weird smell, hard to describe, after you put it on the pain just goes after a few minutes. It seems to work on the muscles and bone. I don't know how it works technically. But sorry if this is TMI, at a certain time of the month my OA is unbearable at my coccyx, I rubbed it on there and felt instant relief. I just sat stunned for ages, I couldn't believe it actually worked.

    Colin I'll have to ask the cost, they obviously gave me them free, but having been to the US a few times, I'm assuming they cost tuppence as most meds do over there, unlike rip off Britain!
  • woodbon
    woodbon Member Posts: 4,969
    edited 30. Nov -1, 00:00
    Hello, I'm so glad you checked it out with your GP. Sorry for being negative, it comes from being married to a biochemist, he always reads the labels of everything and if I get something without showing him first, he still checks it out! :roll: Not really complaining, I know it makes sense. :)

    The thing we argue about though, is makeup, he starts on about the strange ingridients and once told me that it would do more good to put yogurt on my face :roll: Needless to say, I took no notice, besides the pips look like spots. :oops: :lol: Love Sue
  • helpline_team
    helpline_team Posts: 3,802
    edited 30. Nov -1, 00:00
    Hi everyone
    Lots of different opinions and lots of advice and this is just a quick posting from the Helplines Team as you know we are always cautious about 'miracle' cures.
    We too have had a look at the manufacturers website and would put this in the 'unproven remedies' category as it's difficult to assess the painkilling properties of a combination of different oils and the only active ingredient seems to be camphor.
    Anyone trying it please check with your doctors first in case it interacts with any medication you are taking.
    Best wishes
    Val
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
    Hi Eck,

    Val's post has made me need to say to you be careful as the active ingredient of camphor is what is used for animal embracation oils....... I except totally that at a human level it should be safe but the animal ones are designed to increase circulation by irritation and they can blister the skin.....Indeed BR was designed to do just that! That's how it work, they blister and that causes an influx of blood and is supposed to make the swelling/pain etc go away quicker. I have MR oils all over my hands daily but my hands are like a pair of old boots submerged in salt water and left out in the sun to dry and even they have a mild blister on them so I would just say mind how much you use unless it says what strength it is at. x
  • eckstardeluxe
    eckstardeluxe Member Posts: 1,192
    edited 30. Nov -1, 00:00
    skezier wrote:
    Hi Eck,

    Val's post has made me need to say to you be careful as the active ingredient of camphor is what is used for animal embracation oils....... I except totally that at a human level it should be safe but the animal ones are designed to increase circulation by irritation and they can blister the skin.....Indeed BR was designed to do just that! That's how it work, they blister and that causes an influx of blood and is supposed to make the swelling/pain etc go away quicker. I have MR oils all over my hands daily but my hands are like a pair of old boots submerged in salt water and left out in the sun to dry and even they have a mild blister on them so I would just say mind how much you use unless it says what strength it is at. x

    Thanks for your input folks. I will take care, I'm all out now :( they were so helpful. Will do a bit of googling before they get more. I know the neighbours have been running this group for eons and it is very well respected with very high numbers. I'm wondering now, are they allowed to trial it as such? Since it involves importing it, have they been given the ok to do so and from whom? Now I'm thinking maybe the mebers signed something. They said they had to request it through a certain channel directly throught the group. Thanks alot everyone, I have some questions for them which they always seem genuinely interested in answering. They said when I got it, the feedback from members was 100% positive, now just worried maybe they are on shaky ground with this or if it's ok.
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
    Hi Eck,

    I expect its safe as a wipe on but if you rubbed it in and then covered it you would be running a chance of a real reaction. I am one of those cynical people who have got so much stuff from the rip off sellers and so until mention of camphor stayed on the fence....... The active ingredient in a lot of stuff is camphor and at human levels quite safe but I do know from my original training in animals how it works is via irritating the skin and if you take the big animals, especially horses, you can and indeed often do blister unless you dilute it down if you then cover it........ I am sure you could find a uk tested and approved thing that would give you the same response? Its quite an regularly used thing, if it smells like an odd type of menthol then its camphor based. Sue may know far more about it I only know about horses, cows and sheep except what it does to my hands........ x
  • lindalegs
    lindalegs Member Posts: 5,398
    edited 30. Nov -1, 00:00
    Hi Alex,

    I'm sorry if I sound like your Mum too but I will add my caution to the others. I have found no miracle cures over my years of having RA but I have found a lot of people out there looking to sell one to vulnerable people. If it's so marvellous why hasn't it been in the world press, why are we all taking potentially harmful drugs if there's a harmless herbal concoction out there? I know your neighbour didn't charge you for these 'wipes'(yet) but please be careful you might stand to lose a lot of money in the long run.

    Sorry to say that but my Ma-in-Law had me swallowing a tablespoon of black strapp molasses every morning for about two years because she's read the ingredients are a cure for arthritis …. :( It didn't work either. :roll:

    Luv Legs :)
    Love, Legs x
    'Make a life out of what you have, not what you're missing'
  • livinglegend
    livinglegend Member Posts: 1,425
    edited 30. Nov -1, 00:00
    colinone wrote:
    Some good information there Joseph, do any of the contents of 024 act as a pain killer. Colin

    As the helpline_team have commented above. The manufacturer's site indicates that the only active ingredient is camphor.

    Joseph 8)
    Josephm0310.gif
  • eckstardeluxe
    eckstardeluxe Member Posts: 1,192
    edited 30. Nov -1, 00:00
    lindalegs wrote:
    Hi Alex,

    I'm sorry if I sound like your Mum too but I will add my caution to the others. I have found no miracle cures over my years of having RA but I have found a lot of people out there looking to sell one to vulnerable people. If it's so marvellous why hasn't it been in the world press, why are we all taking potentially harmful drugs if there's a harmless herbal concoction out there? I know your neighbour didn't charge you for these 'wipes'(yet) but please be careful you might stand to lose a lot of money in the long run.

    Sorry to say that but my Ma-in-Law had me swallowing a tablespoon of black strapp molasses every morning for about two years because she's read the ingredients are a cure for arthritis …. :( It didn't work either. :roll:

    Luv Legs :)

    Don't worry Linda, I know what stuff costs in America so I'd only pay that and not over. I'm not one of these people who is easily fooled. Actually my neighbour tried to get me to take it for ages before I did and that was free I'm just so cynical usually. Yesterday he was trying to get me to have the OT assess my house. They are very kind hearted pensioners and I think because one of them has arthur and now knows I have it they are trying to help me. We have always been good friends with them and looked after them last year when they were having trouble with a neighbour who was eventually evicted and had their car stoned. My hubby thinks they are trying to repay me for that. But the wipe actually worked, it took the pain away for a few hours but obviously in no way would it cure arthur, just a good pain reliever.
  • woodbon
    woodbon Member Posts: 4,969
    edited 30. Nov -1, 00:00
    Hi, I don't mean to be rude, or anything like that but, its a known medical fact that if you think something is going to work it may well do so, even if its just a little, the placebo effect is something we don't understand, but scientists have to take into account during human drug testing. I am NO EXPERT but I wonder if the brain can sometimes produce chemicals on its own to improve the way we feel. Its a subject that some scientists are begining to take serously. Not in the way of it being psycological, but a real physical effect. Maybe one day there will be an answer. I really hope you don't think I'm writting the effect the medication had on you off, far from it. The reasons we should be careful are just to protect ourselves from the con-men, who expliot us. Take care, Love and best wishes Sue
  • eckstardeluxe
    eckstardeluxe Member Posts: 1,192
    edited 30. Nov -1, 00:00
    woodbon wrote:
    Hi, I don't mean to be rude, or anything like that but, its a known medical fact that if you think something is going to work it may well do so, even if its just a little, the placebo effect is something we don't understand, but scientists have to take into account during human drug testing. I am NO EXPERT but I wonder if the brain can sometimes produce chemicals on its own to improve the way we feel. Its a subject that some scientists are begining to take serously. Not in the way of it being psycological, but a real physical effect. Maybe one day there will be an answer. I really hope you don't think I'm writting the effect the medication had on you off, far from it. The reasons we should be careful are just to protect ourselves from the con-men, who expliot us. Take care, Love and best wishes Sue

    Don't worry Sue, I don't think that's rude at all. In fact I welcome as much feedback as I can get on things I post, the more varied the better. If I had never encountered you before I'd still assume you were a kindly poster who was looking out for someone hoping they were not being taken in by someone. I know some things can be psychosomatic, I am forever telling the hubby this since he believes everything he's told. I actually said with regards to this post, "oh no, I think they are worried I'm going to invest in this medication and be ripped off" he was like :shock: because that is so not me.

    Off topic but he left home at 27 and had been "mothered" IMO but he denies this. Can you believe he actually thought electricity and gas was free? :lol: I have straightened him out now, only took 9 years!