New to site but sadly not to RA

venita
venita Member Posts: 56
edited 7. Jun 2009, 15:51 in Living with Arthritis archive
Hello to everyone

I am new to this site but have had RA for 6 years+. I have been reading through some posts before actually posting and a lot of what I have read is like a mirror image of me ! people do not understand this illness and that is not their fault unless you go through this illness you can not understand, sometimes it is very lonely,it is very painful,it is also frustrating.
You look the same on the outside but you are not the same on the inside. One day you can do something the next day you can not. You can not plan ahead as you do not know how you will be the next minute,hour or day.

I have tried MTX but had to stop as this made my liver function to rise, so I did not take anything but pain relief for a while but now my Rhuemmy has decided to start me on sulfasalazine I am currently on the 2nd week, feeling nausea headaches and tired out (but this is usual).

I am glad I have found this site and look forward to getting to know you all.

Thanks
Venita :)

Comments

  • suzster
    suzster Member Posts: 1,328
    edited 30. Nov -0001, 00:00
    hi and welcome!
    everyone is so helpful, supportive and friendly here!
    glad you found the site!
    sue
  • ninakang
    ninakang Member Posts: 1,367
    edited 30. Nov -0001, 00:00
    Hi Venita,

    I'm with Sue on this one, everyone on this site is wonderful and very supportive. It's also visited by lots of people from different walks of life, different ages and also experiences. There is always someone on hand to answer any kind of question.

    Arthritis can be a lonely illness, I agree, and it's hard making people who have it understand how you feel. This site is great for that.

    Hope to see lots more posts from you soon. Come onto the Chit Chat Forum also, it's always a laugh there.

    Nx
  • angel1
    angel1 Bots Posts: 1,464
    edited 30. Nov -0001, 00:00
    Venita, hello. Just want to say a big welcome to the site. I have OA, so can`t help regarding meds etc., but believe me, you will get so much support, kindness, and genuine caring from everyone on here. Keep posting....Ange.
  • joyous
    joyous Member Posts: 179
    edited 30. Nov -0001, 00:00
    hi there , ive not been on this long either i think its a great site , its true no one no's what your going thru unless they are suffering as wll as a bloke i no found out last year when he came down with ra as well . they use to call me me behind my back im sure they think you make it up why would you its a nightmare some days you get depressed and don't want to do anything or go out , you get isolated sometimes at one time 9 half years ago i was a right mess lost 2 stone in weight was in agony 24 / 7 could hardly walk 2 foot in front of me crawled up the stairs . my right leg wasted away quite alot i use to cry myself to sleep was in so much pain at the dr's every wk , had to go part time at work and change depts as well , they were very good with me i had only been there a few months they could have got rid of me but they didn , think cos i never lied when i started , its morrisons supermarket by the way they have been brill with me . i had a new shoulder in 07 was off 8 months and no rush to go back but ive been back over a year now i still suffer but i get on with it . i try not to complain as much now as its not visible no one no's unless ive got my splints on etc then they ask so i tell them once you get your meds sorted its like what was i like before a distant memory , then it pops back up again to remind you grrr all the best and good luck joy xxxx sorry a bit of a rant then :)
  • venita
    venita Member Posts: 56
    edited 30. Nov -0001, 00:00
    venita wrote:
    Hello to everyone

    I am new to this site but have had RA for 6 years+. I have been reading through some posts before actually posting and a lot of what I have read is like a mirror image of me ! people do not understand this illness and that is not their fault unless you go through this illness you can not understand, sometimes it is very lonely,it is very painful,it is also frustrating.
    You look the same on the outside but you are not the same on the inside. One day you can do something the next day you can not. You can not plan ahead as you do not know how you will be the next minute,hour or day.

    I have tried MTX but had to stop as this made my liver function to rise, so I did not take anything but pain relief for a while but now my Rhuemmy has decided to start me on sulfasalazine I am currently on the 2nd week, feeling nausea headaches and tired out (but this is usual).

    I am glad I have found this site and look forward to getting to know you all.

    Thanks
    Venita :)
    Thank you to everyone a lovely welcome I think I will really enjoy posting on here. Joy I know what you mean about being supported at work, mine has been brillant and they understand everything as I work in a GP surgery.

    Thanks again
    Venita :)
  • valval
    valval Member Posts: 14,911
    edited 30. Nov -0001, 00:00
    welcome u have been with out this support 4 a long time glad u have found it now :D every one lovely with lotts of good advice :) so welcome
    val
  • jaspercat
    jaspercat Member Posts: 1,238
    edited 30. Nov -0001, 00:00
    Hi Venita, just wanted to say a big hello to you, I have RA too and currently have MXT injections, I did try Sulphasazine but although it worked for me, it caused problems with my bloods, I ended up with no immune system and was in hospital for 6 days, so won't be able to have it again, hope it works ok for you love Jaspercatxx
  • venita
    venita Member Posts: 56
    edited 30. Nov -0001, 00:00
    jaspercat wrote:
    Hi Venita, just wanted to say a big hello to you, I have RA too and currently have MXT injections, I did try Sulphasazine but although it worked for me, it caused problems with my bloods, I ended up with no immune system and was in hospital for 6 days, so won't be able to have it again, hope it works ok for you love Jaspercatxx
    :) Thanks again for all your lovely welcomes Venita x
  • breane
    breane Member Posts: 392
    edited 30. Nov -0001, 00:00
    Hi venita,Welcome from me too. :lol: I have OA and RA and some days are worse than others but even on good days the pain is still in the background.Yes,other people who don't have arthritis do find it difficult to understand just how much pain we can be in.Because we look 'normal' they don't think there is anything wrong with us.I have found a lot of help from other members on this site and I am sure you will to. Breane.x :P
  • mistywillow
    mistywillow Member Posts: 711
    edited 30. Nov -0001, 00:00
    breane wrote:
    Hi venita,Welcome from me too. :lol: I have OA and RA and some days are worse than others but even on good days the pain is still in the background.Yes,other people who don't have arthritis do find it difficult to understand just how much pain we can be in.Because we look 'normal' they don't think there is anything wrong with us.I have found a lot of help from other members on this site and I am sure you will to. Breane.x :P

    Hi Venita
    Just wanted to add my welcome along with the others, I have RA and it does take some doing to keep upbeat when you are in pain all the time. This site has been so helpful for me and I am sure it will be for you too. Everyone here seems so well informed, you can nearly always get an answer to your questions.
    Looking forward to your posts
    Gillx

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