so fed up with my body

queenfan
queenfan Member Posts: 563
edited 8. Jun 2009, 15:52 in Living with Arthritis archive
My body seems to be letting me down again years ago I used to have quite a lot of kidney infections I used to treat myself instead of going to the doctors,
then trouble with my rib & kidney any way to cut a long story short because i don't want to bore you my specialist needed to remove my rib, he also said that he would take a look while operating at my kidney which he said due to all the infections was now half the size that it should be but didn't remove it,
last month I went for a bone scan(nuclear) had my results back saying that I needed to go for a ultra sound scan because my left kidney wasn't demonstrated don't know what that means :?
a week after my scan I went down with bad kidney infection, had antibiotics to clear it up, Tuesday evening started with really bad pain in my back :( ended up at A&E until 2 in the morning :roll:
doctor examined me took water sample I was told I had bad kidney infection again :roll:, He said I might have to have my kidney removed :shock:
but he was going to due more micro tests to check more
was sent home with strong painkillers & antibiotics, they might change when the results come through :?
so went home took both tablets which I have taken before no trouble, ended up with a rash all over my body
saw my doctor he told me to just take antibiotics to see if I have another reaction
I did, the rash came back so he changed my antibiotics
My work rang me last night to talk to me because I was off one Friday last month with same thing I feel really low & fed up
sitting here still in pain hoping it clears up by tomorrow because I don't want to lose my job
Moan over :roll: sue
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Comments

  • suzster
    suzster Member Posts: 1,328
    edited 30. Nov -1, 00:00
    i can't offer much help, but i wanted to reply so you didn't feel alone!!
    i have had problems with infections in the past and now i keep drinking cranbery which seems to help but obviously yours is much worse.
    i'm sure someone will be able to help.
    take care
    sue
  • ninakang
    ninakang Member Posts: 1,367
    edited 30. Nov -1, 00:00
    Hi QueenFan

    I'm sorry that I can't offer any practical help either, but I wanted to sympathise with you. Hopefully you'll start to feel better soon if these antibiotics start working.

    Where do you work? At the moment, I wouldn't worry about work, but concentrate on getting better. In the meanwhile, I would start making notes on your hospital and GP visits and when you've taken medication - build up a file as proof for your employers that you haven't been very well. It might also be worth looking at the DDA and your employment policy from work with regards to sickness and leave etc.

    Just a thought - when I'm methodical like this, it stops me worrying about stuff. I hope it does the same for you.

    Nx
  • queenfan
    queenfan Member Posts: 563
    edited 30. Nov -1, 00:00
    Thanks sue I am drinking lots of cranberry juice it's good stuff isn't it
    I didn't mean to moan about things It just seems to be one thing after another lately :roll:
    Still that is life sometimes isn't it,
    thank you for getting back to me
    I hope you are having Good time pain wise
    Sue
  • suzster
    suzster Member Posts: 1,328
    edited 30. Nov -1, 00:00
    yes! i sweer by cranberry juice! at least 2 glasses a day seems to have really helped me avoid infections, i should drink more water i know but mint tea is my favourite after cranberry as it helps with sicky side effcts and indegestion, another joyful side effect!
    never worry about moaning on here, we all do it! life with arthur is tough and frustrating so i always think it's better to moan on here with people who understand than to keep it in.
  • queenfan
    queenfan Member Posts: 563
    edited 30. Nov -1, 00:00
    Thanks Ninakang just feeling sorry for myself I am willing myself well for tomorrow but I am in so much pain I don't think I could manage with the little ones tomorrow :(
    I work in a nursery I love my job one colleague rang me last night saying they were struggling with out me because we teach our own group of children so they have had to have my group which is the biggest group i feel so guilty because of letting them down stupid i know :roll:
    but thats me all over
    the my doctor just told me to go home & rest yesterday I thought i would be feeling better today but I'm not in myself I feel drained I put it down to the pain & sitting around the hospital until 2 in the morning, the pain is a little easier
    can now walk up straight but thats due to pain relief
    but cant put any pressure on my side plus the usually toilet visits :roll:
    sue x
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
    Hi Sue,

    Sorry to read your post, I know where your coming from re bodies as mine seems to be collecting conditions with out my consent.

    I'm sure the pain and sitting in a hospital is behind some of how bad your feeling and as the others have said make sure you drink a lot and I will keep my fingers crossed that the antibiotics work and you will soon be back to your normal self. I am sending you a (((()))) and take care. Cris x
  • queenfan
    queenfan Member Posts: 563
    edited 30. Nov -1, 00:00
    Aww thanks Cris
    I just don't know how many more conditions I need to get OA,OP, lichen planus, LC insitu, now my kidneys,I'm on quite strong antibiotics now which knock me sick but if they do the trick I will carry on with them,
    when I'm at work I don't drink enough because of time so I suppose I'm making up for it now
    It's the pain mostly I do have some strong pain killers but I am reluctant to use them they are bupranorphine patches which I use when my arthritis is really bad it would be so easy to stick one of them on to get rid of the pain problem is with doing that it would conceal what is happening with my kidney & I'm sure my doctor would have told me to use them or maybe not Oh I don't know what I'm talking about now :lol:
    sorry to babble on now you know why I don't write on here much
    take care & thank you Sue
  • lindalegs
    lindalegs Member Posts: 5,398
    edited 30. Nov -1, 00:00
    Hi Sue,

    So sorry you're poorly again - you must be sick to the back teeth of it. :(

    Why don't you try one of the patches and see if it helps with the pain in your kidney - I hear why you say about not wanting to mask what's happening with your kidneys - but the effect of the patch won't last forever and at least will give you some relief in the meantime?

    Here's a cyber hug for you ((((())))).

    Hope you feel better very soon.

    Luv Legs :)
    Love, Legs x
    'Make a life out of what you have, not what you're missing'
  • queenfan
    queenfan Member Posts: 563
    edited 30. Nov -1, 00:00
    Hi legs I've never written so much on here :lol: thanks for your reply
    I'm thinking of advertising myself, (find out what is good about this womans body) :lol: their answer would be nothing much
    I've got to laugh at myself,
    when I think well I'm coping with one thing something else comes along to prove me wrong,I suppose it keeps me on my toes
    how are you keeping well I hope
    I will try to keep the moaning to myself
    thank you for the hugs :wink: but watch my side the last one hurt lol
    take care Sue
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
    Hey Sue,

    You moan as much as you need to, we all need and outlet for it and I think I might have done my fair share.......... :wink: A gentle ((())) and maybe both of us will stop having bodies greedy on the collecting things front! Mine has recently branched out to something they can't pin down........ Well it makes a change to have a mystery.......I have told it if it doesn't stop I shall shoot it! :? :lol: You take care and I hope the antibiotics will help and tomorrow will be a better day. Cris x
  • lindalegs
    lindalegs Member Posts: 5,398
    edited 30. Nov -1, 00:00
    I'm very well thanks Sue............ and you shouldn't keep the moaning to yourself - that's selfish didn't your Mummy teach you to share when you were little? :lol::lol: Truly, it does help to write how you feel otherwise how can we help each other when we're down :)

    Instead of advertising just give your body to the medical profession I'm sure they'd be very grateful to you for keeping them entertained and in a job :wink:

    No hugs this time just a nosey posy.

    003.GIF

    Keep fighting.

    Luv Legs :D
    Love, Legs x
    'Make a life out of what you have, not what you're missing'
  • queenfan
    queenfan Member Posts: 563
    edited 30. Nov -1, 00:00
    Hey Cris you shoot your body then pass the gun here I could easily do it today but knowing my b***y luck I will misfire & cause something else :lol:
    I hope they sort your problems out it's horrible not knowing & waiting isn't it keep your chin up x
    :lol:
    Legs thats a good idea might put my body forward it would give them something to practise on wouldn't it lol, My mom did teach me to share when I was little but I have eaten a lot of seafood recently which has made me a bit shellfish sorry if i don't laugh at the moment I would go the other way where ever that is
    thank you all for keeping me going
    now what shall I have for dinner Ooo fish I think :lol:
    take care Sue x
  • elnafinn
    elnafinn Member Posts: 7,412
    edited 30. Nov -1, 00:00
    Dear Sue

    Sorry to read your posting. You must be feeling really yuk to type a thread on here as you don't tend to do so, for various reasons.

    I haven't any magical solutions but at least you have shared it with us and you have had a good response, TLC and banter.

    Regarding work, I know and you know that you would be in work if you could be. You are not one of these peeps that take time off work at the drop of a hat. I know that from previous times. They should not be making the situation more difficult for you, as stress is not going to help you any. They know you are not a shirker. Perhaps you are reading more into what they are saying but I expect not.

    Chin up luvvy, you have been thru mill before and are still here to tell the tale. By the way, how is that lovely daughter of yours?

    I wish you well and hope that tomorrow you feel much better in every way, or at least see an improvement,

    Lots of love
    Elna xx (())
    The happiest people don't have the best of everything. They just make the best of everything.

    If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.
  • valval
    valval Member Posts: 14,911
    edited 30. Nov -1, 00:00
    cant help just wanted to send u lotts of hugs hope things better soon :)
    val
  • queenfan
    queenfan Member Posts: 563
    edited 30. Nov -1, 00:00
    God Elna my eyes are leaking for some reason wait I'll just get myself under control :roll:
    There thats better using dressing gown sleeve thank you for that i might be reading the phone call differently I think you do when you feel guilty,
    I was hoping to feel up to going in tomorrow but know I wont be up to it & it wouldn't be fair on the little ones I hate to be miserable in front of them & at the moment I've got a right miserable face on :cry:
    Laura is doing fine still back & forth to hospital with her jaws she's got her interview for uni next week so fingers crossed :lol:
    I think I have just let things get on top of me at the moment I don't know why it will pass :wink:
    it's helped talking about it or babble on in my case :lol:
    still the kids of had a rest from me I suppose :lol:
    thanks Elna for writing
    take care Sue x
  • queenfan
    queenfan Member Posts: 563
    edited 30. Nov -1, 00:00
    Thank you valval
    This will pass we all have times like this don't we I don't normally write about it but it's really helped me today some times you have to speak out instead of thinking I suppose :lol:
    well thats my excuse any way thank you for your message
    take care Sue
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
    Hi Sue,

    I might be wrong but I think its the accumulation of things wrong that get us down. You cope with one thing then in comes another, and another etc and you have only recently had the bone density scan results. That must have hot you and now the kidney thing. I honestly think it would be better if you left work till monday and just took it easy over the weekend with lots of drinks!

    I can never have time off, I have to work to some degree everyday and it does slow down the getting better thing but my employers are not known for their kindness........ The only DDA they know about is the dangerous dog act...... :lol: Cats well they have no rules, except their own! Now look who's waffling..... I shall also keep my fingers crossed for your daughter and I really do hope tomorrow will be a better day for you. Take care Cris x
  • queenfan
    queenfan Member Posts: 563
    edited 30. Nov -1, 00:00
    I like that one Cris dangerous, dog, act :lol:
    mine know DDA has daily,duties,agenda Lol
    thanks for every thing today putting up with my moaning & all that
    take care Suex
  • elnafinn
    elnafinn Member Posts: 7,412
    edited 30. Nov -1, 00:00
    Dear Sue

    Let those tears flow and get them out of your system - sometimes it helps, sometimes not, but no point in bottling them up is it? Those lovely little kiddies will have missed you today as you them and tomorrow too - it just proves the fact that you would not be home if you were able to be there. I am sure all at your workplace know that. People soon suss out the workers and the shirkers and you are a great little worker and are dedicated to the little ones. You love those kiddies and would not let them down - no way.

    I can just see their little faces light up if you are able to be with them on monday. They will be all over you. You will have to tell them you were"Miss Miserable" last week as you could not be with them.

    Laura is a little love and she'll get to the uni she wants. I wish her well with the interview. Will she be living away? You'll miss her big time. We have to let go sometime though don't we?

    Well, enough of my drivel - :roll: I can smell burning - bet it is the dinner :roll:

    Lots of love and huggies
    Elna xx(())
    The happiest people don't have the best of everything. They just make the best of everything.

    If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.
  • vonski
    vonski Member Posts: 1,292
    edited 30. Nov -1, 00:00
    Hi Sue

    Sorry you're having such a rough time right now, you're catching me up fast on the greedy trail :lol: You might have overtaken me so I think you should slow down now :)

    I hope that when you wake up (think you'll be in bed) you are feeling better and that the antibiotics have kicked in and started doing their job, I'll keep my fingers crossed.

    Like others have said try not to worry about work right now just concentrate on you and getting better. They will just have to cope for a few days without you :)

    Sending you lots of love and gentle hugs.

    Vonski x
  • handsy
    handsy Member Posts: 209
    edited 30. Nov -1, 00:00
    i cant even start to know how bad you feel but take my word for it this group cares. i have my own problems and when their your problems no one else really matters but believe me we care here and someone is always here to lend an ear. try ringing the helpline as they say a problem shared is a problem halved. good luck and get well soon. john
  • queenfan
    queenfan Member Posts: 563
    edited 30. Nov -1, 00:00
    Hi vonski
    I don't know perhaps we were at the front of the queue when they were dishing things out :lol:
    I got up about an hour ago thought right I cant just sit here so took my anti biotic because you have to take them on an empty stomach hung some washing out felt all hot & sweaty thought I was going to pass out or be sick
    so now lying down trying to let it pass over, what a plonker hey :roll:
    the pain is settling down still there but nothing like it was I would love a cup of tea I haven't had one since taking these tablets because it says avoid tea & coffee :(
    how are you keeping these days? well I hope (or should I say having a good patch)
    thank you for your message lets hope these illnesses leave us a lone I know I'm stupid thinking of work but I hate getting behind with things, people think that working in a nursery you just play with the children all day, until we need cover from main school then it's a different story the amount of paper work involved is ridiculous
    But I'm going on again must have to much time on my hands :lol:
    take care Sue x

    John thank you for your message I know there is a lot of caring people on here & they are always ready to listen it's really comforting to know your not on your own has you can see I don't write on here very much because I know that there are people who
    suffer a lot more than I do, so i tend to bottle things up I am better at listening to other people really, :)
    I hope your day is a pain free day
    take care best wishes Sue
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
    Hi Sue,

    I was hoping you would feel much better today, but the antibiotics are obviously strong and they will soon do their job and then you'll feel much better.

    I loved your DDA.............. My employers saw it so now they have 2 definitions....... both to their advantage eh?! :lol:

    I must go back to what I am meant to be doing as one particularly demanding cat appears to be doing a time and motion study on me today...... Every time I look round she is sat watching me...... They can't sack me though cus they haven't got a replacement! :lol:

    Take care and ((())) x
  • frogmorton
    frogmorton Member Posts: 30,026
    edited 30. Nov -1, 00:00
    HI Sue
    I was just wondering and hoping that you feel a bit better today.
    Do let us all know what happens with that kidney.
    I hope you have a good weekend
    take care
    Toni x
  • queenfan
    queenfan Member Posts: 563
    edited 30. Nov -1, 00:00
    Cris you kill me thanks for giving me a laugh :lol:
    yes these anti biotics are quite strong & knock me sick but i think they are doing their job so I wont complain watch those cats they tend to be watching when you don't think they are
    take care & thank you again :wink: Sue x

    Hi Toni I am feeling a lot better thank you pain wise I don't know what is going to happen about my kidney I haven't heard any thing back about the tests they were doing ,I don't want to suffer off & on like this for to long but I am worried that they might take it out
    my hubby says the rate I'm going we won't want a sat nav there will be enough maps on my body Lol I pretended he'd upset me by is comment he was so sorry for upsetting me :lol: aren't I awful he's so good to me but I do plague him at times
    have a lovely weekend take care Sue x