Stills Disease, OA & now Bursitis?!

calcass

I've had Juvenile Stills Disease for as long as I can remember - was diagnosed with OA 7 yrs ago and for the past 2 yrs or so have suffered from hip pain.
My Rheumy reckons no OA there but could be bursitis so have been having steroid injections which are slightly more effective in one hip than the other.
Has anyone else experience of this, which I understand can be related to "Arthur" but have just been told I "have to live with it"!!!!
I'm only 34 and beginning to get a bit miffed with attitude that this is my lot so get on with it!!! :x

skezier

Hi,

I really don't think they should say that till they have tried a few things! I don't think they do much more for bursitis than the injections but if it is that please remember it does go away in time.

I can't really offer much except a cyber ((( ))) and a hope it will improve quickly for you. Cris

joanlawson

Hi Calcas

I have had episodes of bursitis several times, and I sympathise with you because it is very painful. Steroid injections sometimes work, and sometimes they don't for me. Last time, the injection had no effect, so I was referred to the physiotherapist. She gave me ultrasound treatment, and also acupuncture. It took about six weeks before the bursitis settled down, and I've been OK since. I take diclofenac and paracetamol for the pain.

Joan

calcass

joanlawson wrote:

Hi Calcas

I have had episodes of bursitis several times, and I sympathise with you because it is very painful. Steroid injections sometimes work, and sometimes they don't for me. Last time, the injection had no effect, so I was referred to the physiotherapist. She gave me ultrasound treatment, and also acupuncture. It took about six weeks before the bursitis settled down, and I've been OK since. I take diclofenac and paracetamol for the pain.

Joan

Thanks for replies - I have had hydrotherapy and am scheduled for ultrasound scan with injection, but my fear is that they will say there is no evidence of bursitis. On my last visit to rheumy I was criticised and it was suggested that I may be making the prob worse as I use a crutch on a regular basis due to consistent pain in my knee and hip - apparently I'm too young to be using walking aids permanently (as if it's a choice or a fashion statement!!).
Sorry for ranting and I appreciate the replies lol

joyful164

joanlawson wrote:

Hi Calcas

I have had episodes of bursitis several times, and I sympathise with you because it is very painful. Steroid injections sometimes work, and sometimes they don't for me. Last time, the injection had no effect, so I was referred to the physiotherapist. She gave me ultrasound treatment, and also acupuncture. It took about six weeks before the bursitis settled down, and I've been OK since. I take diclofenac and paracetamol for the pain.

Joan

Hi Joan

have taken in your posting re bursitis. Have had ultrasound and accupuncture. This was about 6 months ago and the hip has niggled me a fair bit since then and now has flared up again. Had steriod injection today. Again, it's down to the co-codomol for me now. Came off pain patches Sat.

joyful

joanlawson

Hi Calcass

If they are saying you shouldn't be using walking aids, what do they suggest you should be doing instead? In my case, the bursitis was triggered by limping awkwardly because I should have been using a walking aid. Now I use a walking stick in the hopes of avoiding another bout of bursitis.

Joan

joyful164

Hi Calcass and Joan

Apologies, I should have addressed my last posting to both of you.
re this Bursitis thing. I have also been using a walking stick to try and walk with some support to take the weight off my hip. If I do not use a stick, then later the hip niggles me and can be quite painful a lot later.
Today, had injection in the hip but now, nearly 12 30 am. cannot sleep because it is hurting so much.

I think it is stupid to say you don't need some support. A friend of mine was using a pair of crutches and I tried them. Gosh it was brilliant. Took the pressure off my arms which were hurting too.

Joyful

calcass

joyful164 wrote:

Hi Calcass and Joan

Apologies, I should have addressed my last posting to both of you.
re this Bursitis thing. I have also been using a walking stick to try and walk with some support to take the weight off my hip. If I do not use a stick, then later the hip niggles me and can be quite painful a lot later.
Today, had injection in the hip but now, nearly 12 30 am. cannot sleep because it is hurting so much.

I think it is stupid to say you don't need some support. A friend of mine was using a pair of crutches and I tried them. Gosh it was brilliant. Took the pressure off my arms which were hurting too.

Joyful

Thanks Joan and Joyful

I do think that bursitis may be slightly aggravated by use of crutch at times, but I need it, as (without wishing to scaremonger!) I had an unsuccessful first TKR which my now wonderful surgeon having done several surgeries to try to alleviate subsequent pain, maintains that a good deal of pain could be due to scar and tissue damage. without using a crutch I would be twenty stone and a recluse lol

I do wish at times that our doctors could live a day in our shoes (quite literally!) and try to understand that their blase comments are not helpful but very very frustrating!!!

Thanks for letting me rant - my sister thinks it's great that I can come on this and have a moan (means she's not getting the earache lol) :roll:

Calcass

calcass

scottishlass wrote:

I had(but cancelled)an appointment yesterday to have a hip injection due to Bursitis...my rheumatologist has told me that bursitis doesnt show up on Xray...so basicaly they would do the injection...if it relieved the pain then chances are it was bursitis,but if the injection didnt work,then it probably wasnt bursitis in the first place :roll: ...anyway,im fortunate in that my pain resolved a bit from examination to appointment,so i decided not to go ahead with the injection(especialy since there was a chance it wouldnt help anyway)
hope you get things sorted out soon.x

Thanks for reply. Isn't it typical that the pain and discomfort eases when you're due to see doctor.
I must admit, to give doctors an idea of the pain and discomfort, in the past I have purposely aggravated my condition before an appt so as to get point across and get some treatment because you know that within a few days Arthur or Burtha will resurface with a vengeance!!

I will keep you poasted whether the ultrasound and jab has any effect (fingers crossed)

Thanks all xx