What next???

bailey27

Hi
I have started taking Celebrax today and read on the information leaflet you can not take this drug long term.
I was wondering what the next step would be after this drug should it work or not work as my GP tells me that it is one of the strongest NSAIDs that I can have adn if it does work I can't stay on it long term any case.

bailey27

Any ideas??

frogmorton

Hi Bailey
There are normally other things to try...what apinkillers are you on and have you tried steroids yet?
Toni x

bailey27

Hi
No the only drugs they have tried me on is diclofenac, then changed to Naproxen then back to Diclofenac SR and now this week Celebrex. Alongside these I can take Tramadol when required. I don't have another appointment for 3 months. I havent had any bad effects from these tablets so far, it would be just my luck for them to find one that suits me but then take me off them because I have been on them too long.

frogmorton

Hi Bailey
I'm sure some people have been on celebrex for a good while - hopefully they'll be along later to tell you their experience.
Is it working for you at the moment? Or is it too early to say?
If yo haven't ried things like steroids them they are an option for the future too.
I do know how frightening it is thinking they might take you off your meds, but they shouldn't leave you suddenly high and dry.
Toni x

bailey27

Hi thanks for that.
Just that at the moment I am going through a bit of a rough stage where I am panicking over the slightest little thing and getting down over the most ridiuclous things.
I think it is a combination of having restless sleep and the fatigue that comes with the flare ups which make you feel down. Then you can't focus on anything else.
Sorry to winge!

skezier

Hi Bailey,

Have they told you they are going to take your tablets off you? Mind I know what its like to worry as somehow I have kept my diclo's for 20 years........ They are added to and maybe they will do that with you? When do you see your Rumo?

There must be something in the air cus I'm also sat here worrying about the future and all the fears come flying back to roost but it ain't good for you as you know! I am shaking mine off slowly with a DVD, no I won't say what it is! :oops: Try not to worry too much cus it might not happen I think you can stay on that for some time and they can add in things to help as well. I als hope your flare soon stops. Take care, Cris

elnafinn

Try to take one day at a time if you can. It is no use wasting endless energy on things that may never happen. Easier said than done I know.

Hope you feel brighter soon. No one can keep strong ALL of the time.

Sending over a few cyber hugs ((H))).

Luv
Elna x

skezier

Hi Elna,

Would you mind if I nicked one of your hugs as well please? Here's one back for you (((()))) and another for Bailey ((())), lets hope tomorrow will be a better day for us all eh? Cris x

fossillady

Hi, I've been on Celebrex for 18 months now. I started off on the highest dose of 2 x 200mg daily and reduced it to 2 x 100mg daily. I now tailor it up and down according to how my joints are. I have to go up to the highest dose when my back flares as well but always come down to the lowest again. I think these have been the best NSAIDs I have had in my 19 years of RA.

I have just seen my rheumy and am not due to go back for another year (blimey NHS cut backs again, it's usually six months!) so will have been on them 2 1/2 years by then. I think as long as you have none of the heart related side effects and are monitored by your rheumy you may be able to stay on as long as they are working. I would have a word with your rheumy when you see him again.

I wouldn't worry at this point, (I know it's easier said than done !) I was put on steroids temporarily when first diagnosed back in 1990......I'm still on them, albeit a very low dose :?

Hope this helps

Take care,
Marie x

elnafinn

skezier wrote:

Hi Elna,

Would you mind if I nicked one of your hugs as well please? Here's one back for you (((()))) and another for Bailey ((())), lets hope tomorrow will be a better day for us all eh? Cris x

Aw, cherub, of course you can and pass them on, especially to slipperboy if you can catch him. I got the vibes from you on a coupla postings that you were feeling a bit "jittery" today. You are marvellous, you do so much, hope the feeling soon passes. I expect it will, knowing you. You don't seem to dwell on things for too long, do you?

Huggies flying over, (((((((((((())))))))))))))

Love
Elna x

elnafinn

PS Cris

I don't mean nappies flying over, I mean hugs. :oops: :oops: :oops:
Elna x

skezier

Thanks Elna, I try do try not to dwell on things but this time its a bit harder than normal.......Things are getting harder to deal with via a couple of senior employers..... My 'children's' DVD helps though! Slipper boy has a new mate, Gimpy leg...... More arthritis, more vets bills eh? Whats that word...... NO! I must learn to say it ....... love Cris xx ((())) .......... Please no nappies

madwestie

Hi Bailey,
I take a diferent Cox2 inhibitor (etodolac) but it has the same warnings a celebrex, I have been taking it for at least 4 years now. I think that it is just the possible risks of side effects that they have to warn you about.
I have been fine on it no side effects at all and i have asthma which is one of the things that they say you should not take anti inflamatories with.
As far as i am con cerned if the treatment works and it does not effect my asthma then i will keep taking it. I have Ra so also take a lot of other meds but the anit inflams have been no problem so try not to worry too much at the moment.

Tracey

bailey27

Thanks so much everyone. I ws having one of those off days I think.
I feel a lot better today and am thinking a lot straighter.
I haven't been having any of the nasty side effects so hopefully within a week or so I'll feel the benefits.
I have woke up today and feeling very positive about the future and not going to let it get me down. I guess we all have those days when you can't pick yourself up.
Thanks so much for your advice and support it really helps.
xx

frogmorton

Brilliant Bailey!
Now next week I expect a post to tell us all how well you're feeling! Wouldn't that be great?!
Keep up the positive attitude
Take care
Toni x

elnafinn

Hi Bailey

So relieved to hear that you feel a whole lot better and you think you were having one of those "off" days. As I said we cannot be strong all the time - we all have blips - but pleased to hear yours did not last long. Brighter days ahead aye?

Hope your weekend goes well.

Luv
Elna x