Accepted for anti-tnf treatment

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janie68
janie68 Member Posts: 1,186
edited 28. Jul 2009, 03:15 in Living with Arthritis archive
I went to see rheumy nurse, had the 2nd assessment and yes! I have been accepted for anti-tnf!!! :lol:

I am going for enbrel, as it is a weekly injection, hopefully I shouldn't feel it wearing off. Also, once funding is in place, if this doesnt suit, then I can move onto another one.

I can now see light at the end of a very dark tunnel, although I will have to return to work eventually, (heigh ho!) but better than this constant pain,swelling, limping, struggling etc that I have now.

I have had a depot steroid as well today so thats good too.

All in all, a good day, yaayy!

Janie :D

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  • angel1
    angel1 Bots Posts: 1,464
    edited 30. Nov -1, 00:00
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    Glad that everything went well for you Janie. You are obviously very pleased.


    It made me smile, thinking of the things we get so excited about these days.......Ange.
  • woodbon
    woodbon Member Posts: 4,969
    edited 30. Nov -1, 00:00
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    Hello, Thats good news, I hope you soon get some benifit
    and feel better. Love Sue
  • page35
    page35 Member Posts: 1,081
    edited 30. Nov -1, 00:00
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    I hope it works well for you :D
    and you get lots more yeeeeeeeey days
    page
  • mrsdalloway
    mrsdalloway Member Posts: 161
    edited 30. Nov -1, 00:00
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    ooh good news Janie! I started mine in Feb (humira) and it was fantastic from the first day, which made me wonder if it was in my mind! Anyhoo you will definitely notice a difference it is a bit of a roller coaster as sometimes my inflammation goes back up but I am no where near as bad as a I was.
  • janie68
    janie68 Member Posts: 1,186
    edited 30. Nov -1, 00:00
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    Thanks for your replies!

    I have heard many good things about anti tnf, and look forward to the day when I feel it working and doing the things I love again. Although in the back of my mind I know it may not work or as well as I hope but we shall see... :wink:

    Janie
  • trisher
    trisher Member Posts: 9,263
    edited 30. Nov -1, 00:00
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    Hi Janie:D

    I have had my first injection of Depro this week. Do you know how long this lasts for?

    Also I'm waiting to see if I can get funded, for treatment. I cannot remember what the doctor said I think it may have begun with an A.
    Did you have to wait very long to see if you were accepted for funding?

    I was only diagnosed in May and all the different treatments are above my head at the moment.

    trisher
  • janie68
    janie68 Member Posts: 1,186
    edited 30. Nov -1, 00:00
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    Hi Trisher,

    The depot only lasts for about 2 weeks for me, but may be longer to about 4 in some cases. It gives me temporary relief while I am waiting for my treatment to start. Funding wise, depends on your PCT, takes about 6-8 weeks in my one.

    Hope that you get better on the treatment, I have my fingers crossed for me and you!! Let me know how you get on.

    Janie :lol:
  • trisher
    trisher Member Posts: 9,263
    edited 30. Nov -1, 00:00
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    Hi Janie

    Thanks for your reply. Have you been recently diagnosed?

    I'm also on Sulfalasazine. I started that about 2 weeks ago, I have just increased the dose.

    I hope you get better soon and good luck with your new treatment

    I will cross my fingers for both of us although I have aurther in them. Let me know how you get on too.

    [/quote="trisher"]
  • janie68
    janie68 Member Posts: 1,186
    edited 30. Nov -1, 00:00
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    Thanks Trisher,

    No, had RA for 14 years, on sulpha and methotrexate which alas are not working so its now anti-tnf.

    Yes fingers are riddled with arthur too, so we will cross them in the best way we can!!

    Take care,

    Janie x
  • kevinr58
    kevinr58 Member Posts: 1
    edited 30. Nov -1, 00:00
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    janie68 wrote:
    Thanks Trisher,

    No, had RA for 14 years, on sulpha and methotrexate which alas are not working so its now anti-tnf.

    Yes fingers are riddled with arthur too, so we will cross them in the best way we can!!

    Take care,

    Janie x
    :?:

    My wife has just had agreement for TNF's but is worried because they say they don't know the long term effects which also includes a higher risk of cancer. At the moment this means she will not go for it. Any ideas where I can get some real info on the risks, or not?
  • trisher
    trisher Member Posts: 9,263
    edited 30. Nov -1, 00:00
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    Hi Janie

    Glad that you have got funded.

    Did you have to wait very long to know. The rheumy doctors were talking about trying to get me funded at the time I did not know what they were talking about.

    Is there more than one drug?

    Good luck I hope it makes you feel better soon.

    trisher x




    [/quote]
  • janie68
    janie68 Member Posts: 1,186
    edited 30. Nov -1, 00:00
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    Hi both

    I am still waiting for funding but I have passed the 2 assessments that you need to have to be accepted for anti-tnf treatment.

    The rheumy nurse said that there are 3 more anti tnf drugs coming out so in an ironic kind of a way, it is a good time to have arthritis!

    As to the risks, well I have been suffering so much for such a long time with pain etc, then I am willing to try it to get some kind of a life back. And that for me is pretty important as I am only 37. I am willing to risk it at the moment. Side effects you could use a search engine maybe but I know there is a susceptibility to infection and a lupus type syndrome.

    Have a good day!

    Janie
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