Accepted for anti-tnf treatment
janie68
Member Posts: 1,186
I went to see rheumy nurse, had the 2nd assessment and yes! I have been accepted for anti-tnf!!!
I am going for enbrel, as it is a weekly injection, hopefully I shouldn't feel it wearing off. Also, once funding is in place, if this doesnt suit, then I can move onto another one.
I can now see light at the end of a very dark tunnel, although I will have to return to work eventually, (heigh ho!) but better than this constant pain,swelling, limping, struggling etc that I have now.
I have had a depot steroid as well today so thats good too.
All in all, a good day, yaayy!
Janie
I am going for enbrel, as it is a weekly injection, hopefully I shouldn't feel it wearing off. Also, once funding is in place, if this doesnt suit, then I can move onto another one.
I can now see light at the end of a very dark tunnel, although I will have to return to work eventually, (heigh ho!) but better than this constant pain,swelling, limping, struggling etc that I have now.
I have had a depot steroid as well today so thats good too.
All in all, a good day, yaayy!
Janie
0
Comments
-
Glad that everything went well for you Janie. You are obviously very pleased.
It made me smile, thinking of the things we get so excited about these days.......Ange.0 -
Hello, Thats good news, I hope you soon get some benifit
and feel better. Love Sue0 -
I hope it works well for you
and you get lots more yeeeeeeeey days
page0 -
ooh good news Janie! I started mine in Feb (humira) and it was fantastic from the first day, which made me wonder if it was in my mind! Anyhoo you will definitely notice a difference it is a bit of a roller coaster as sometimes my inflammation goes back up but I am no where near as bad as a I was.0
-
Thanks for your replies!
I have heard many good things about anti tnf, and look forward to the day when I feel it working and doing the things I love again. Although in the back of my mind I know it may not work or as well as I hope but we shall see...
Janie0 -
Hi Janie:D
I have had my first injection of Depro this week. Do you know how long this lasts for?
Also I'm waiting to see if I can get funded, for treatment. I cannot remember what the doctor said I think it may have begun with an A.
Did you have to wait very long to see if you were accepted for funding?
I was only diagnosed in May and all the different treatments are above my head at the moment.
trisher0 -
Hi Trisher,
The depot only lasts for about 2 weeks for me, but may be longer to about 4 in some cases. It gives me temporary relief while I am waiting for my treatment to start. Funding wise, depends on your PCT, takes about 6-8 weeks in my one.
Hope that you get better on the treatment, I have my fingers crossed for me and you!! Let me know how you get on.
Janie0 -
Hi Janie
Thanks for your reply. Have you been recently diagnosed?
I'm also on Sulfalasazine. I started that about 2 weeks ago, I have just increased the dose.
I hope you get better soon and good luck with your new treatment
I will cross my fingers for both of us although I have aurther in them. Let me know how you get on too.
[/quote="trisher"]0 -
Thanks Trisher,
No, had RA for 14 years, on sulpha and methotrexate which alas are not working so its now anti-tnf.
Yes fingers are riddled with arthur too, so we will cross them in the best way we can!!
Take care,
Janie x0 -
janie68 wrote:Thanks Trisher,
No, had RA for 14 years, on sulpha and methotrexate which alas are not working so its now anti-tnf.
Yes fingers are riddled with arthur too, so we will cross them in the best way we can!!
Take care,
Janie x
My wife has just had agreement for TNF's but is worried because they say they don't know the long term effects which also includes a higher risk of cancer. At the moment this means she will not go for it. Any ideas where I can get some real info on the risks, or not?0 -
Hi Janie
Glad that you have got funded.
Did you have to wait very long to know. The rheumy doctors were talking about trying to get me funded at the time I did not know what they were talking about.
Is there more than one drug?
Good luck I hope it makes you feel better soon.
trisher x
[/quote]0 -
Hi both
I am still waiting for funding but I have passed the 2 assessments that you need to have to be accepted for anti-tnf treatment.
The rheumy nurse said that there are 3 more anti tnf drugs coming out so in an ironic kind of a way, it is a good time to have arthritis!
As to the risks, well I have been suffering so much for such a long time with pain etc, then I am willing to try it to get some kind of a life back. And that for me is pretty important as I am only 37. I am willing to risk it at the moment. Side effects you could use a search engine maybe but I know there is a susceptibility to infection and a lupus type syndrome.
Have a good day!
Janie0
Categories
- All Categories
- 21 Welcome
- 18 How to use your online community
- 3 Help, Guidelines and Get in Touch
- 11.7K Our Community
- 9.3K Living with arthritis
- 139 Hints and Tips
- 219 Work and financial support
- 750 Chat to our Helpline Team
- 6 Want to Get Involved?
- 393 Young people's community
- 11 Parents of Children with Arthritis
- 38 My Triumphs
- 122 Let's Move
- 29 Sports and Hobbies
- 19 Food and Diet
- 357 Chit chat
- 242 Coronavirus (COVID-19)
- 30 Community Feedback and ideas