im new on here

kat11180

im ne on here so hi,
iv just been told iv got really bad oa in my jaw which means i cant eat or drink very well, am 28 i had a problem with my jaw when i was young but its now turned to oa it is really painfull and really getting me down

kat11180

its really hard to cope with its not like you can rest your jaw, and then with the painkillers etc not helping, im not eating and hardly drinking (not cause i dont want to but cause i cant) and on top of that im on a waiting list thats like 12months long before i can see a doctor that can help me

skezier

Hi Kat,

Did i see on a diff post you are taking tramadol? If so could I ask are you taking anything else and what is your dose? I have a feeling the gp isn't on top of your pain control too well and that could be easily helped by either having an add in or a higher dose.

I really hope you can get your appointment quicker than 12 months and that it will calm down and not hurt so much with a bit of better control.

Oh and welcome to the site as well. Take care, Cris

kat11180

theres nothing else i can take hun as im illergic to the other stuff so the strongest they can give me is tramadol as stronger contains stuff i cant take, and im taking them well trying to but that hurts like hell i cant drink from a cup or a straw and iv tried soups but all i can eat is 1 or 2 spoon fulls before it becomes to painfull to carry on

elnafinn

Hi Kat

Welcome to the forum. I am very sorry to read your posting. I cannot believe that you are going to be left to suffer and could have to wait months before you see a doctor to get help. This to me is completely different, when you cannot eat or drink because of pain. Does the medical profession wish you to fade away, whilst they get their act together?

I fear you will have to get tough and let them know that if you have to wait too long you will not be around as you cannot eat and drink enough because of the pain. Surely your gp or someone can speed things up drastically - this to me is an emergency. We should not have to keep on, but if you have the strength I think this is what you will have to do, so much so that people the other end of the phone, start to remember your name and why you are calling.

I am sending you cyber hugs and hope very much that you get the support that you desperately need.

Please let us know how you go on,

Luv
Elna x (())

skezier

Hi

Could I ask how many a day you are on at the mo. Could you get liquid stuff or maybe the morphine patches depending on if they are safe for you to have? See I think your gp could be doing more to help your pain control, they don't have to be stronger just more effective and it really can be trial and error before they find something that works for you.

See if there any way you can get an appointment quicker and just check to see if you can have a better pain relief system as this isn't fair for you at all. Cris

kat11180

im taking tramadol yes 50mg i take 2, 4 times a day with paracetamol 4 times a day and diclofenac sodium 5omg 1 tab 3times a day but none of them are working at all, my gp said cause of taking the tramadol i had to stop taking the codeine which was 30mg 2, 4times a day but they didnt help either, i have naproxen in my house which i used to take for headaches and they are 500mg each tab 1 twice a day but also got told not to take them with the crappy tramadol

my gp is trying to get the hospital moving with my app but he said it could still take a few months, i cant go another week with a proper painkiller but there aint anything else i can take unless i start mixing painkillers which i dont want to do

skezier

Hi Kat,

I think Elna is right and you are going to have to get them to listen to you or else maybe you could go to A & E? It can be a back door to treatment as they have to pass you to someone to continue the investigation/ treatment. Mind I guess they might pass you back to your doctors but there are so many diff combinations of drugs out there that you may find a combination that works. For what its worth a lot of us here now have to mix pain killers to help us.

Pals may be able to help you and you need a urgent if not emergency appointment and pdq at that. Try digging your feet in and pushing with your gp or else go through A & E cus its wrong your being left like this. x

kat11180

i had to go to A E just to get the xrays done as my gp or dentist couldnt get me into the hospital plus the gp kept saying its a absess and then when i went they said it aint and tried to get me a app at the hospital but couldnt so i took it of my own back and went up the A E which was the ones that said id had really bad oa in my jaw and was passing on my xrays to the max clinic there, and they told me to go to my gp which i did tuesday,weds,and today only to be told today that they cant give me anything stronger then the tramadol and that he,ll chase the hospital up but could still take a few months as its a long waiting list,
i told him i cant eat or drink but he said at the mo theres not much i can do about that other than tell you to keep trying to eat and drink more (which to me seemed a bit harsh) but i cant eat or drink more cause the pains to bad

skezier

Hi Kat,

I am almost temped to say see a different gp! This is really wrong. Try phoning the helpline team tomorrow, their number is at the top of the page or else email them either via the private email or over on the helpline forum. They may well have a an answer as this is so so so wrong. In the mean time all i can do if tell you your not alone we are thinking of you and send you a (((( )))), and hope so much you get a breakthrough on the pain relief front. x

kat11180

i live in suffolk hun it might as well be mars, the gps down here have so so many limitations now they cant give antibiotics for alot of stuff now either (i thought i just had a absess so went to get some)
im gonna email them now and thanks to all of you for your kind words il be on here alot till i do get into hospital and some proper painkillers or even the replacment jaw which the gp said will more likely happen cause its so bad, i just want something thats gonna take the pain away so i can eat and drink i am soooo hungry and thursty and i drink as much as i can handle but it just aint enough

elnafinn

Hi Kat,

Do you emphasise to the medics that you are really hungry and thirsty but the pain is too bad? JHave you tried bursting into tears in front of them? If I was in your shoes, I would not have to try, the tears would be flowing, in utter desperation. Can you go to another surgery and book in there if no doctors where you are now are willing to act for you? If the doctors at your surgery don't watch out, you will become dehydrated. It is a horrid thing to say but at least you would get into hospital as you would have to go on a drip.

I think it may be a good idea to be writing all the facts down in a diary as you may well have a case soon. I do so hope you are not alone in fighting this battle.

Luv
Elna x (())

page35

Oh Kat
i do feel for you, i have early RA and have been getting pain in my jaw for couple of months but nothing like you have, its uncomfortable to eat but i can eat.
you really do need more help then youre getting, keep going back to gp, hospital, whoever till someone helps you.
if you can manage it there is a drink called Ensure you can get it from most chemists it is very good and is filled with vits, my mum couldnt eat for a long period of time and these drinks kept her going. they are quite tasty too.
all the best
page

page35

Have a look at magentas "At last" thread, she is going to have an op on her jaw, she may be able to give you some advice.
page

sammy15

kat11180 wrote:

im taking tramadol yes 50mg i take 2, 4 times a day with paracetamol 4 times a day and diclofenac sodium 5omg 1 tab 3times a day but none of them are working at all, my gp said cause of taking the tramadol i had to stop taking the codeine which was 30mg 2, 4times a day but they didnt help either, i have naproxen in my house which i used to take for headaches and they are 500mg each tab 1 twice a day but also got told not to take them with the crappy tramadol

my gp is trying to get the hospital moving with my app but he said it could still take a few months, i cant go another week with a proper painkiller but there aint anything else i can take unless i start mixing painkillers which i dont want to do

Hi Kat ,I have just been put on tramadol as i have RA and my doctor said i could still take my naproxen and co-codamol at the same time as it does not effect each other.

kat11180

i did iv told 3 gps and the nurse at A E but it was still a case of your fine for now just try and force yourself i even cried but it was another case of "it aint that bad your only 28 it wont be that bad as your young" (which to me is a insult) yet my gp aint seen the xrays the nurse and a doctor at A E has and they came over to me and said "right the good news is you aint broke it or nothing but im sorry to say that you have very serve oa in the jaw and we,re gonna send your xrays to the face clinic as to me its that bad it might have to be replaced and iv never seen such a bad case which hasnt been spotted before" and they dont do that if its only a mild twinge etc,

iv not been taking tramadol that long and got told by the 3 gps that i cant take it with the codeine or naproxen as the tramadol are instead of the other stuff (am very tempted to just take all 3 and see if that helps) i need something to ease the pain or atleast the swelling which then might ease it, the stuff am taking for that dont help either an i told the gps this and he said cause of the other ones containing the stuff i cant take then there is nothing else he can give me other than a fingers crossed,

i might just see if i can get into a friends gp which is some way away from me but i need something done, i am hoping that my gp i saw yesterday gets the hospital moving as he is good like that so thats another fingers crossed, am gonna give him 2weeks to get me a app there and if not then am going somewhere else, i know i shouldnt wait that long but other than going to the hospital and holding everyone at gun point what else could i do??

kat11180

page35 wrote:

Oh Kat
i do feel for you, i have early RA and have been getting pain in my jaw for couple of months but nothing like you have, its uncomfortable to eat but i can eat.
you really do need more help then youre getting, keep going back to gp, hospital, whoever till someone helps you.
if you can manage it there is a drink called Ensure you can get it from most chemists it is very good and is filled with vits, my mum couldnt eat for a long period of time and these drinks kept her going. they are quite tasty too.
all the best
page

iv never heard of it but il have alook today and try an get as much as that in me as i can take. which aint much but with luck it will be enough thanks hun

debatat

Kat I am so shocked at your apalling treatment. You should not be left in this state.

My tip is to find out who your gp has referred you to. Phone that dept and speak to the consultants secretary. Tell her your story and ask for a cancellation or even to speak to the consultant. It does help, you have to be pushy but it gets results.

Otherwise take someone with you to the gp, get them to say hoow you can't eat and drink and you need to be admitted to hosp for proper treatment. That might make him sit up and take note.

I hope you get some help soon.

Take care

Deb

frogmorton

Hi Kat
Welcome from me!
Yes there is someone else (at least one ) on this site who has soemthing similar, and I reckon it has taken about 12 months for her to get sorted to the extent sheis..trips to a&e too :roll: She is also based up in Glasgow.
So sorry you are in such pain, this is awful for you
I hope you do find her experience helps you to see there is light at the end of the tunnel.
So v sorry
Toni xx

valval

hi u have had lots of good advice which i cant add to. but glad to have u on here oa is bad enough with out what u r going through so keep us in formed of what going on and a big hug good luck

woodbon

Hello, Just to welcome you really, as everyone has said what needs to be said. I'm so sorry you can't enjoy food anymore,as its one of the major pleasures in life, to much so for me sometimes!!! Please do as the others suggest and start enjoying eating!
Love Sue

kat11180

im thinking of stopping the tramadol and start taking the codeine and naproxen instead but not sure if its gonna help but im gonna try and then prob do a top up with a tramadol when it gets really bad, i need to start getting some of this pain eased as am getting to a point where am just gonna give up trying to eat as its to painfull to and you can only take so much pain right?
this is really doing my head in now it hurts so much you ever felt like if there was a gun in the house (there aint) that you would just blow your head off cause its so bad??

kat11180

crawling the walls yeah more like the celing, and at the mo i feel really sick and the last thing i want is that as thats gonna make it hurt more, am so tempted to get on a bus and go up A E cause i just cant handle this pain, i can handle alot of pain iv had to in my life but this is like all the pain iv ever had times by 100 and thats what iv goy

dachshund

Hi Kat.
welcome to the site you've come to the right place for help.
why dont you phone the docs and say you are going to take all the tablets to gether as you are so fed up with the pain and you cannot stand any more make it sound convincing which wont be hard
see what happens then (i dont want you to take them all)but the docs wont know that you are not.
i hope it will help.
joan xx

kat11180

iv just woke from having a sleep still feel crapy and still really hurt, i gonna go up A E tomorrow (cant today aint got a baby sitter) and with luck i can get some help,
i couldnt phone the docs and say that id have the men in white coats out to get me,
im still feeling sick i dont know if its still some tramadol or if its hunger

sharmaine

Hi Kat

Welcome!

Sorry to hear about your jaw - I never realised you could get OA there! You poor thing. Do you take any meds for the pain? Will your GP refer you to a specialist.

I'm sure someone will come along with some great advice for you.
Take care
Sharmaine

kat11180 wrote:

im ne on here so hi,
iv just been told iv got really bad oa in my jaw which means i cant eat or drink very well, am 28 i had a problem with my jaw when i was young but its now turned to oa it is really painfull and really getting me down