Monday rant.

mellman01

Trying to put things into words is hard but I will try so here goes, Those on here who know me will know I have advanced OA of both patella’s and that it was discovered after a double keyhole op last April, I had put up with it for 2 years before the op but pain drove me to have it done.
What I can’t get my head round is last Thursday I was fine but Friday I had another attack and it has taken all weekend to get over it, the pain builds up and gets so over bearing it made me feel physically sick every time I tried to stand up, I am on some fairly strong pain med’s but it went through them like the a tornado thought preverbal caravan park, one day I can walk the dog the next I can’t get off the sofa, worse still is no one seems to understand or cares how much pain I am in when it’s really bad, If I have another person make the comment that I’m dwelling on it to much I will bloody scream. God how sick do you have to be before you get some understanding and maybe just a little sympathy.
I tell you if it weren’t for you guy’s putting up with me venting my spleen at you I would have lost the plot a long time ago.
:?

kaz34ni

deep breaths count to 10 then punch out lol, better still put an ankor round their neck tell them try to pretend it aint hurting and stop dwelling on it lol.... Thats the problem with pain, only those that have it feel it take care

karen

sharmaine

Hi Mellman
sorry to hear you've been suffering so much. I have days when I just can't do anything for pain and discomfort.

I think if you take yourself to bed for a day then it seems to hit home with those close to you. When I get very quiet and just lie there my family know I'm unwell. or in pain. I'm a person who generally never shuts up and even with OA in both my knees I still manage to hobble along doing bits and pieces (stick in one hand and duster in other)! You must not feel guilty and try not to get too stressed as I'm sure stress contributes to tightened muscles and then flare ups. It's because they don't understand and it takes someone who has experienced severe discomfort to understand.

Having OA in your patella must be dreadful as these joints are used a lot (like knees - I guess) and if you do too much you know it. Try and pace yourself more.

In the meantime see if you can see your GP maybe there's something else you need to take. It took ages for my GP to get my meds right.

I do hope you feel better soon.

Take care. Let us know how you are. :arrow:
Sharmaine

mellman01 wrote:

Trying to put things into words is hard but I will try so here goes, Those on here who know me will know I have advanced OA of both patella’s and that it was discovered after a double keyhole op last April, I had put up with it for 2 years before the op but pain drove me to have it done.
What I can’t get my head round is last Thursday I was fine but Friday I had another attack and it has taken all weekend to get over it, the pain builds up and gets so over bearing it made me feel physically sick every time I tried to stand up, I am on some fairly strong pain med’s but it went through them like the a tornado thought preverbal caravan park, one day I can walk the dog the next I can’t get off the sofa, worse still is no one seems to understand or cares how much pain I am in when it’s really bad, If I have another person make the comment that I’m dwelling on it to much I will bloody scream. God how sick do you have to be before you get some understanding and maybe just a little sympathy.
I tell you if it weren’t for you guy’s putting up with me venting my spleen at you I would have lost the plot a long time ago.
:?

woodbon

Hi, Pain can be so bad that its just impossible to forget. It sticks its head up through everything you try to do, reading, talking, watching TV, everything becomes a different colour. When my pain is really bad, I feel sick and so even eating is no fun. When the sun shines and the colours are bright and everyone seems full of fun, you feel left out. I'm sorry, all that sounds depressing, but I only wanted to say how it makes me feel, so you know you'r far from alone. I try to live through the bad days be taking plenty of meds, resting and if I can sleeping, (even that is effected by dreams that include pain). On my good days, I try to enjoy things to the max, and make the most of my time. I haven't given up hope that I'll somehow find that my good days will increase and things will improve, thats how I cope. I wish you all the help you can get, plenty of rest and lots of 'good days', Love Sue

elnafinn

Hi Mellman

Who are these people that are not caring/getting their head round the fact that with oa you can be in excruciating pain one day and not the next? Is it your family or the medics or both?

This op you had on your knees, was it an arthroscopy? If so, and you have been diagnosed with advanced oa, are you not on a list for knee replacements? What is the point of being in terrible agony?
Do you want to go down the "new knees route"?

If you do, I would go back to your gp to be referred to a knee surgeon and if the first one will not operate, keep on until you find one that will. You want your life now. You know how much pain you are in and someone in the medical profession needs to take this on board.

I do hope you can come to some amicable arrangement soon with a consultant. It is not going to get any better, only worse as the months go by.

My heart goes out to you, I have had one knee replacement and it is fab. I am seriously thinking about getting the other knee sorted next year as it is getting bad for me but my pain/discomfort, is nowhere near as painful and debilitating as for you.

Never apologise for taking your anger and frustration out on us, we all know where you are coming from, its the OTHERS, isn't it?

Luv
Elna x

mellman01

Hi Woodbon elnafinn sharmaine kaz34ni, Feeling a bit better now the flare is going and pain med’s are working a bit better, sorry I do go on but when it’s really bad it calls the shots and I just have to hang on, I don’t know but it must just be me I don’t seem to be able to convince people how bad it is, I’ve been given all sorts of strange advice, recently I changed GP’s and the guy has been really good up until the last time I went to him, all I said was if I am home and it gets really bad I sometimes go and have a nap his advice was don’t do that do some house work and keep active, I thought all right my old son, you just let me kick you hard in the smalls and see how well you would do faffing about with a flippin hover, the OC health nurse here is worse!, complete numpty tells me I’m dwelling on things to much, no s*#t I bet if he had this much pain you would tend to be occupied with it most days.
Ye gods it’s like trying to herd cats, nothing I do gets my message through people here constantly make snide remarks, had one just now and all because I left the room they have stuffed me in, they have put me in here on my own to pi#@ me off so I will leave, but I’m not going anywhere, you know I wish they would medically retire me and get it over with.
Your right elnafinn it’s most defiantly the others problem is there’s lots and lots of em here.

elnafinn

You're right, there lots of "the others" all around. Hope they never have any health issues, or get a cold or a tickly cough! :roll: :roll: It is not just you, don't take it too personally. It is a pity there is not another person in the building with oa and you could gang up on the rest of 'em.

Pleased to hear today is getting slighter better for you.

Elna x

topcatt

Hi All, too right others don't understand your pain I just wish that I could swop my pain with them for one day..............I think then maybe they would change their attitude. Trouble is we live in a 'me' society where nobody really cares about anybody else but themselves. I live in a flat and time and time again we have spoken to neighbours asking them to keep the noise down because I suffer from so much pain and consequently don't sleep well and nap during the day - do they - hah!!! So I understand how you feel cos I too get to be in so much pain that I don't know what to do with myself - can't eat, sleep anything, only thing that seems to offer any relief is sitting in a warm bath and then I have trouble getting out of that!! Here's to us all looking forward to a pain free day - one day please x

shelleymogui

mellman01 wrote:

Trying to put things into words is hard but I will try so here goes, Those on here who know me will know I have advanced OA of both patella’s and that it was discovered after a double keyhole op last April, I had put up with it for 2 years before the op but pain drove me to have it done.
What I can’t get my head round is last Thursday I was fine but Friday I had another attack and it has taken all weekend to get over it, the pain builds up and gets so over bearing it made me feel physically sick every time I tried to stand up, I am on some fairly strong pain med’s but it went through them like the a tornado thought preverbal caravan park, one day I can walk the dog the next I can’t get off the sofa, worse still is no one seems to understand or cares how much pain I am in when it’s really bad, If I have another person make the comment that I’m dwelling on it to much I will bloody scream. God how sick do you have to be before you get some understanding and maybe just a little sympathy.
I tell you if it weren’t for you guy’s putting up with me venting my spleen at you I would have lost the plot a long time ago.
:?

Im sorry you're in a lot of pain Mellman, I can't even try and imagine what kind of pain you are in but I hope it gets easier for you and the pain subsides enough for you to get some rest.


Take care and keep us updated.

Shelley x

valval

some people need to sort out there atitudes :roll: :roll: pain is awfull to live with no one can see it as i sit here my feet r throbbing with pain and my hip is aching trying not to take any pain killers as been on them for a week solid and dont like taking them still taking ant-inflam so can move work hard at standing straight and not walking with limp but some days just cant even with pain killers lol. so if people treating u bad tell them what it really like when u can not sit or stand for the pain and some times u need to lay down it helps. every thing in moderation the only way to go those who dont like it tough they dont walk in your shoes and should be glad .

sharmaine

Hey there
Glad you're feeling a bit better. I just love those days when I'm feeling kind of normal. Some good advice there from Elna. Maybe we should wear arm bands in bright red stating arthritis sufferer treat with care and understanding as they suffer a lot!

Don't apologise for having a rant. We all do it.

Take care and enjoy the rest of your day.

mellman01 wrote:

Hi Woodbon elnafinn sharmaine kaz34ni, Feeling a bit better now the flare is going and pain med’s are working a bit better, sorry I do go on but when it’s really bad it calls the shots and I just have to hang on, I don’t know but it must just be me I don’t seem to be able to convince people how bad it is, I’ve been given all sorts of strange advice, recently I changed GP’s and the guy has been really good up until the last time I went to him, all I said was if I am home and it gets really bad I sometimes go and have a nap his advice was don’t do that do some house work and keep active, I thought all right my old son, you just let me kick you hard in the smalls and see how well you would do faffing about with a flippin hover, the OC health nurse here is worse!, complete numpty tells me I’m dwelling on things to much, no s*#t I bet if he had this much pain you would tend to be occupied with it most days.
Ye gods it’s like trying to herd cats, nothing I do gets my message through people here constantly make snide remarks, had one just now and all because I left the room they have stuffed me in, they have put me in here on my own to pi#@ me off so I will leave, but I’m not going anywhere, you know I wish they would medically retire me and get it over with.
Your right elnafinn it’s most defiantly the others problem is there’s lots and lots of em here.

woodbon

sharmaine wrote:

Hey there
Glad you're feeling a bit better. I just love those days when I'm feeling kind of normal. Some good advice there from Elna. Maybe we should wear arm bands in bright red stating arthritis sufferer treat with care and understanding as they suffer a lot!

Don't apologise for having a rant. We all do it.

Take care and enjoy the rest of your day.

mellman01 wrote:

Hi Woodbon elnafinn sharmaine kaz34ni, Feeling a bit better now the flare is going and pain med’s are working a bit better, sorry I do go on but when it’s really bad it calls the shots and I just have to hang on, I don’t know but it must just be me I don’t seem to be able to convince people how bad it is, I’ve been given all sorts of strange advice, recently I changed GP’s and the guy has been really good up until the last time I went to him, all I said was if I am home and it gets really bad I sometimes go and have a nap his advice was don’t do that do some house work and keep active, I thought all right my old son, you just let me kick you hard in the smalls and see how well you would do faffing about with a flippin hover, the OC health nurse here is worse!, complete numpty tells me I’m dwelling on things to much, no s*#t I bet if he had this much pain you would tend to be occupied with it most days.
Ye gods it’s like trying to herd cats, nothing I do gets my message through people here constantly make snide remarks, had one just now and all because I left the room they have stuffed me in, they have put me in here on my own to pi#@ me off so I will leave, but I’m not going anywhere, you know I wish they would medically retire me and get it over with.
Your right elnafinn it’s most defiantly the others problem is there’s lots and lots of em here.

I love the idea of 'herding a load of cats' I've got 5 at the moment and the idea of getting them all in the same room at the same time makes the mind boggle! Its a good expression for the sort of people you mean. Love Sue