Hello Everyone - All been good

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eckstardeluxe
eckstardeluxe Member Posts: 1,192
edited 12. Jan 2011, 05:35 in Living with Arthritis archive
Hi Everyone

Sorry not been on for a while, just wanted to say hello to all, hope you are all well.

Since the Pain Clinic in June when they put me on Gabapentin at 3600mg, wait for it, I've had NO SCIATICA!!!!!!

All those posts where I was at my wits end and suddenly this. Been a bit preoccupied with the BB forum :oops: . But back to see everyone again. Didn't know if to post this in here or what.


Eck

xx
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  • josiec
    josiec Member Posts: 386
    edited 30. Nov -1, 00:00
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    Hi! So glad to hear you're doing better pain-wise - long may that continue!!! Not saying anything about BB - we don't judge!! :lol::lol: Good to hear from you, regards, Josie :wink:
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
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    Hi Eck,

    Oh am I glad to see you post again, we have been a bit worried about you. I am so glad the pain clinic have helped you, long may it continue. x

    Hi Josie,

    Its nice to see you again as well. Cris x
  • josiec
    josiec Member Posts: 386
    edited 30. Nov -1, 00:00
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    Hi Cris, thanks (excuse me taking this thread slightly off course for a mo!) Have had a little time away whilst got my head round things (had to pretend things weren't actually happening for a few weeks) but feel better now-until my next appointment, maybe! :shock:
  • eckstardeluxe
    eckstardeluxe Member Posts: 1,192
    edited 30. Nov -1, 00:00
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    skezier wrote:
    Hi Eck,

    Oh am I glad to see you post again, we have been a bit worried about you. I am so glad the pain clinic have helped you, long may it continue. x

    Hi Josie,

    Its nice to see you again as well. Cris x

    Hi Josie and Cris, I did have a few messages of worry so sorry about that :oops: We did go on our holiday to Rhodes but had a bit of bother before going when we realised the hotel was like fawlty Towers and we were a bit preoccupied with that. Managed to change it though, but get this -

    I am on 30 tablets a day now, but in Rhodes I didn't have to take one single tablet the week we were there! It must be the heat. Seriously considered emigrating to warmer climes.
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
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    Hi Josie,

    Know what you mean, I am in deep denial and keep forgetting to take the tablets! :wink::lol: My wrists tend to remind me after a bit though but I must remember to just take them eh?! A big ((( ))) for you and I am really glad to see you again. Cris x Oh and you as well Eck and such good news your so much less in pain, x
  • josiec
    josiec Member Posts: 386
    edited 30. Nov -1, 00:00
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    That'll be that lovely warm sunshine! (sunshine-hmmm, yes, think I vaguely remember that!!!! 8) ) Hope you enjoyed the hol though, once you got Fawlty Towers sorted!! :lol:
  • eckstardeluxe
    eckstardeluxe Member Posts: 1,192
    edited 30. Nov -1, 00:00
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    And sorry more news since I've been gone.

    Well re the medical negligence, cannot get no win no fee here in Scotland for love nor money. Everyone says the claim has merits but want a grand upfront to have an independent assessment.

    I wrote to Nicola Sturgeon as she is fighting for a 'No Fault' policy to prevent all the red tape. I got a letter from her last week to ask permission to give my details to the panel as a test case. They hope if it is approved to get it by October 2010. Even if it can't help me, so many others out there it will help, especially the children.

    My Mum is telling everyone, she is all chuffed the health Minister sent me a letter! ha ha
  • josiec
    josiec Member Posts: 386
    edited 30. Nov -1, 00:00
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    Grr-apologies if this now pops up twice-lost connection as I sent it! (think sat on wire!! :lol: ) Sorry, I'm not sure what the claim is that you're persuing, but good luck with it! I know very little about legal aid and things, but assume the system is different in Scotland. If it does get taken forward as a test case, though, it may go further: fingers crossed!!!
  • vonski
    vonski Member Posts: 1,292
    edited 30. Nov -1, 00:00
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    Hi Ecks

    Welcome back you have been missed. If you see my other post just ignore it you know I'm a bit thick :lol: It's great news that the meds are working so well.

    Love
    Vonski x
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
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    Hi Eck,

    If there is any chance you can run with your claim then do it cus they got it very wrong with you and it might help stop them from doing it again. You have to use the Scottish system I guess? I know this flower I didn't run with something once and it would def have been better if I had done so! By a lot actually :wink: :roll:

    Hey long ago I was told the best thing for my bones was to emigrate....... I did I came back to Cornwall! :lol: I not too sure if its the heat or the lack of humidity abroad that helps but I am certain living in one of the wettest places out side Ireland isn't necessarily the best place! :wink::lol: Your Scottish you'll understand why I came home :wink::lol: x
  • eckstardeluxe
    eckstardeluxe Member Posts: 1,192
    edited 30. Nov -1, 00:00
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    vonski wrote:
    Hi Ecks

    Welcome back you have been missed. If you see my other post just ignore it you know I'm a bit thick :lol: It's great news that the meds are working so well.

    Love
    Vonski x

    Thank you, have already responded to the other one with my apologies lol. Yes I can't believe it. Have spoke to loads of people who said Gabapentin never worked but none of them were on the max dose. I noticed right away a very slight difference on the 600mg a day but it was still off the scale so they put me on 1800mg. I noticed a big difference but still had the sciatica in the morning. At the Pain clinic they put me up to 3600mg. I thought he'd take me off the Tramadol or Diazepam but he said no take them all. Some initial side effects but after about 3 weeks total relief. Still everyday I sit and think how can you be so bad and then suddenly pain free (well the spinal stenosis bit, still have the arthur pain)
  • eckstardeluxe
    eckstardeluxe Member Posts: 1,192
    edited 30. Nov -1, 00:00
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    skezier wrote:
    Hi Eck,

    If there is any chance you can run with your claim then do it cus they got it very wrong with you and it might help stop them from doing it again. You have to use the Scottish system I guess? I know this flower I didn't run with something once and it would def have been better if I had done so! By a lot actually :wink: :roll:

    Hey long ago I was told the best thing for my bones was to emigrate....... I did I came back to Cornwall! :lol: I not too sure if its the heat or the lack of humidity abroad that helps but I am certain living in one of the wettest places out side Ireland isn't necessarily the best place! :wink::lol: Your Scottish you'll understand why I came home :wink::lol: x

    Yep it's the Scottish system, no problem if I was in England or Wales. But she told me something that the solicitors had kind of misread. She said the statute of limitations from when the thing happened of 3 years, doesn't go from when it happened, only from when you became aware of it. She said if you could not have been aware because of something like Freedom of Info Act then they take that into account. So the solicitors said they couldn't do nothing about my kidney thing because it was 20 years ago, but she said that's wrong, I only found out the kidney op caused the MRSA in January after accessing my records, so she says that's where I take it from. That made me chuffed.
  • woodbon
    woodbon Member Posts: 4,969
    edited 30. Nov -1, 00:00
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    Hi, Great news! :D I'm going to the Pain Clinic here and the doc has changed me to long lasting tramadol, which my GP phoned and said she had left a prescription for me today, and referred me to a specialist spinal physio. :shock: I'm waiting for the appointment.

    Its so good to hear that you are free from that awful pain. I'm glad its working for you. :wink:
    Love Sue
  • magenta
    magenta Member Posts: 1,604
    edited 30. Nov -1, 00:00
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    Hi Eck,
    Glad things are going so well for you :wink:
    Magenta xx
  • eckstardeluxe
    eckstardeluxe Member Posts: 1,192
    edited 30. Nov -1, 00:00
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    Hi Sue, Hi Magenta, good to 'see' you both. Yes the Pain Clinic has changed my life. Still can't lift my son who's weighing in at a whopping 1stone and 9lbs at 16 months! I wish the stubborn little b*gger would realise his Mum has the arthur and start walking! :lol:
  • magenta
    magenta Member Posts: 1,604
    edited 30. Nov -1, 00:00
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    Hiya again,
    When he starts walking/running, you then have to run after him :shock:
    Magenta x
  • vonski
    vonski Member Posts: 1,292
    edited 30. Nov -1, 00:00
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    Hi Ecks

    Bet you feel like a new woman now :) I'm seeing rheumy in Sept and hoping for gabapentin or pregabalin, think that's the other. Hope they work for me too. Cris swears by them.

    Love
    Vonski x
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
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    Hi Vonski,

    I certainly do! Pregabalin has given me less pain than I have had for years and I think they are well worth a try for you....... I don't dislike the floating either...... and I remember to take them! :wink::lol: xx
  • topgirl
    topgirl Member Posts: 290
    edited 30. Nov -1, 00:00
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    Good to hear from you and great to hear your in a lot less pain
    x
  • eckstardeluxe
    eckstardeluxe Member Posts: 1,192
    edited 30. Nov -1, 00:00
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    topgirl wrote:
    Good to hear from you and great to hear your in a lot less pain
    x

    Hi to you too topgirl, how did everything go at work? Are things better now? I really hope so x
  • kathbee
    kathbee Member Posts: 934
    edited 30. Nov -1, 00:00
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    Hi Eck

    Glad to hear about you being free of the sciatica pain.

    I am going to ask for a bucketload of the Gabapentin and
    see if it gets rid of mine too. That would be wonderful.
    Is it an inflammatory or pain drug?


    Kath xx
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
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    Hi Kath,

    Ask about pregabalin it is far better and is the next generation and has a far better effective thing for people. ( Sorry Eck I sound like I am a rep! :lol: )

    Luv

    Cris x
  • wobbly1
    wobbly1 Member Posts: 18
    edited 30. Nov -1, 00:00
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    kathbee wrote:
    Hi Eck

    Glad to hear about you being free of the sciatica pain.

    I am going to ask for a bucketload of the Gabapentin and
    see if it gets rid of mine too. That would be wonderful.
    Is it an inflammatory or pain drug?


    Kath xx

    hello kath

    Its actually a drug used for epilepsy ...it blocks the nerve signals to the brain.
    The pain clinic have been using it succesfully for some time now and more recently its been more widely used to treat nerve pain...my rhuemy swears by it.
    :D
  • wobbly1
    wobbly1 Member Posts: 18
    edited 30. Nov -1, 00:00
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    skezier wrote:
    Hi Kath,

    Ask about pregabalin it is far better and is the next generation and has a far better effective thing for people. ( Sorry Eck I sound like I am a rep! :lol: )

    Luv

    Cris x
    thanks for this info cris...i will keep it in mind :wink:
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
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    Hi Wobbly,

    They are very good and have a better coverage and seem to work on people that found the gabapentin not so good. Same kind of drug and they have the same kind of side effects but I couldn't belive how good they were............ So far and its been over a year. :wink: I really do sound like a rep eh?! :oops: :lol: x