Rituximab 1st infussion tomorrow!

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kernow
kernow NonActiveMember5yrs Posts: 13
edited 16. Feb 2010, 04:22 in Living with Arthritis archive
Hi Everybody

Well after having rejected the option of Humira owing to the small risk that it might cause a reactivication of my malignant melanoma. I decided with my rumy to try Rituximab for the treatment of my very active RA . I am currently taking mtx 25mgs self injected and sulfasalazine 4 tabs a day.

I am off to plymouth (Derriford) tomorrow (Monday 17th) for my first infusion. I admit to being nervous, but hopefully it will help to surpress the symptoms .

Have any of you had this and if so did it help and did you experience any side effects?

Looking forward to hearing your thoughts on this.

Best wishes Ray 8)

Comments

  • skezier
    skezier NonActiveMember5yrs Posts: 11,333
    edited 30. Nov -0001, 00:00
    Hi Ray,

    Not had it but just wanted to say good luck and I hope it works well for you,

    Take care

    Cris x
  • frogmorton
    frogmorton Member Posts: 30,442
    edited 30. Nov -0001, 00:00
    Hi Ray
    Nothing useful to contribute from me other than to wish you the very best of luck.
    Take care
    Toni x
  • lindalegs
    lindalegs Member Posts: 5,401
    edited 30. Nov -0001, 00:00
    Hi Ray,

    Hope the infusion goes well tomorrow and it now looks like you're on a mission to tell us al how it goes as I haven't had it done either. :roll:

    Hopefully someone will come along soon to help out.

    a040.gif

    Luv Legs :D
    Love, Legs x
    'Make a life out of what you have, not what you're missing'
  • kathbee
    kathbee NonActiveMember5yrs Posts: 934
    edited 30. Nov -0001, 00:00
    Hi Ray

    I have a friend on it and she says
    all good about it so good luck
    hope it works well for you.

    Kath
  • wallysatt
    wallysatt NonActiveMember5yrs Posts: 87
    edited 2. Nov 2009, 07:48
    Hi Ray.

    I saw your post ages ago and meant to post back to you. (I tend to read on here more than I post)

    I started on Ritux in June 2008. It didn't seem to do much for me at first other than make me really hungry, which was the steroids and was actually a good thing because I was hardly eating anything at the time. It also made me really tired; my Mum said I almost slept for about 3 weeks! I'm told by my biologics sister that this is because the drug is working to kill off all the bad cells in my blood and although I wasn't doing much physically; my body was working overtime inside.

    Since then I have had 2 more treatments, one in December 2008 and then again in July this year. I think it's finally starting to work for me. I had a TKR in May and since then I've been feeling ok. I'm not as well as I was on Infliximab but I'm getting there.

    How are you feeling after your treatment? Are you tired all the time too?
  • joyful164
    joyful164 NonActiveMember5yrs Posts: 2,401
    edited 30. Nov -0001, 00:00
    Hello Ray
    Good luck with the treatment
    I shall be very interested to hear how you get on with this. My son in law told me about this drug and suggested I ask my rheumy consult about it. Depends on how my bloods are over the next 6 months and if they are still raised then it might be the solution for me

    good luck

    joy
  • elnafinn
    elnafinn Member Posts: 7,412
    edited 30. Nov -0001, 00:00
    Bumped up for Colin

    Love
    Elna x
    The happiest people don't have the best of everything. They just make the best of everything.

    If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.

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