Advice please

autumnlady

I cannot believe how quickly this RA is affecting me. Ok I had an existing condition multiple epiphyseal dysplasia from birth it is a disorder of cartilage and bone development primarily affecting the ends of the long bones in the arms and legs. I am 53 and until 6 weeks ago when I was first diagnosed by my doc with RA I kept really well.

But the rapidity of RA is unbelievable.

I was working in a military kitchen, a physically hard job but that has had to go. I am awaiting an appointment with the musculoskeletakl disorder clinic and have been told that I wont even get considered for at least 13 weeks because of the backlog. Is this normal?

I have gone from being fairly ok to almost crippled in 6 weeks, hands, feet, neck and hips are all affected, is this rapid deterioration normal for RA?

Thank you

eckstardeluxe

autumnlady wrote:

I cannot believe how quickly this RA is affecting me. Ok I had an existing condition multiple epiphyseal dysplasia from birth it is a disorder of cartilage and bone development primarily affecting the ends of the long bones in the arms and legs. I am 53 and until 6 weeks ago when I was first diagnosed by my doc with RA I kept really well.

But the rapidity of RA is unbelievable.

I was working in a military kitchen, a physically hard job but that has had to go. I am awaiting an appointment with the musculoskeletakl disorder clinic and have been told that I wont even get considered for at least 13 weeks because of the backlog. Is this normal?

I have gone from being fairly ok to almost crippled in 6 weeks, hands, feet, neck and hips are all affected, is this rapid deterioration normal for RA?

Thank you

Hi, I don't have RA but sympathised with your message. I found out in January I have end stage OA. I went through all the stages working tough demanding jobs and very sporty and didn't have a clue except for a sore back. I like you was very shocked to be told how rapidly this had progressed and I feel like a fool for not trusting myself when I had an inkling something might not be right.

If you are in pain, try pushing to be seen sooner. A poster yesterday had been given an appointment at the pain clinic a very long time away and after the forum members advised them to push it, they got a quicker appointment. Those who sit back get nothing, get in there and fight for what you deserve. Don't be like me and leave it until it's too late.

Let us know how it goes if that's convenient, I wish you the best of luck

Eck x

frogmorton

Hi Autumnlady
I take it you are on no meds to help at the mo?
Yes it can and does happen suddenly, BUT it should not always be this bad once your meds are sorted out for you.
I am so sorry you are suffering at the moment and the only suffestion I have is to offer to take a cancellation if it speeds it up also to try to get any meds you can from your GP in the meantime.
Take care
Toni x