First assessment for Anti TNF
englishrose
Member Posts: 99
Had my first assessment today for anti TNF and was well past the min. score. Unfortunately due to change in rules you have to be on 20ml of Methotrexate for a month or so and I am only on 17.5. Next lot will be 20ml but that means I will have to wait 2 months before next assessment and absolutely no steroids. Hope I can go that long without major flare - had four since April - so I would cross my fingers if only I could!!
Hope some of you have had a good day.
Jane
Hope some of you have had a good day.
Jane
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Comments
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Hi Jane, I'm in a similar situation. I can't tolerate DMARD's and struggling with the NSAIDs too. I had a nasty reaction to Leflunamide back in July which resulted in a stay in hospital. Rheumy has said next step is TNF drugs but I need to wait until at least Oct before they'll even assess me because meds need to be out of my system 1st (and apparently my reaction wasn't serious enough for a washout of meds :!: ).
I'm lucky than I can still cross my fingers (today at least) so I shall cross them for you too
Sarah x0 -
englishrose wrote:Had my first assessment today for anti TNF and was well past the min. score. Unfortunately due to change in rules you have to be on 20ml of Methotrexate for a month or so and I am only on 17.5. Next lot will be 20ml but that means I will have to wait 2 months before next assessment and absolutely no steroids. Hope I can go that long without major flare - had four since April - so I would cross my fingers if only I could!!
Hope some of you have had a good day.
Jane
Hi english rose i have my first anti tnf assessment tomorrow and not sure what to expect i know i have to have the das score done and blood tests but did you have a chest xray done and was it all ok
I am only on a low amount of metho and have been told that i will definitely be eligible for the treatment. hope it doesnt take too long as am in agony at moment with shoulders and knees.
any advice would be appreciated.
thanks
tracey0 -
No, I had no exray - just the DAs calculation. I know you have to have TB test and chest ray, so I assume they will come later. I just wish they would get on with it. When you a feeling rough, a couple of months seems a very long time.0
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Hi
I know what you mean about waiting, I am counting the days and it feels like forever and that it will never come.
I just hope that the anti-tnf work for all of us and we can get our lives back.
Tracey, good luck for tomorrow
Janie0
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