parents
lisa11
Bots Posts: 20
hi im lisa
just wondering if there any parents out there with children with jia surely we are not the only people in this black hole even though it feels like it :?:
just wondering if there any parents out there with children with jia surely we are not the only people in this black hole even though it feels like it :?:
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Comments
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Hello, Sorry, I don't come into that catagory, but I do know that their are people who use this sight who do have children with that problem. I'm sure someone will answer your post soon. Meanwhile, Welcome to the site, I hope it is useful for you.
Love Sue0 -
thanks for your time sue x[/quote]0
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Hi Lisa, welcome to the Forum. I will keep this bumped for you as there have been people post about this before.
take care
Eck0 -
I am not in same position but wanted to say how sorry i am to hear about your child having this dreadful thing. I hope mine never have this but you never know whats round corner do you hope you get someone on here you can get support from in same position. joanneJoanne0
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Hi my son is not diagnosed with JIA but they are keeping an eye on him due to various things. I know the anxiety I have experienced. I feel for you and hope you can contact others in the same position.
Wishing you well and the best care and treatment.
Deb x0 -
Hi, Just a thought, but why not try putting this on the Young Peoples Forum? Just an idea, as I know their are parents like you about here. Good Luck Sue0
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Hi Lisa
You are definitely not the only parents out there with children with jia although I can well understand that it must feel like that at times.
I did a quick search on here (using the seach button) and I am probably not doing it correctly as it seems to take me ages but I have come up with a few usernames of peeps that have posted a relevant thread in the past. If you would like to read them you can search for their names or search like I have done and type in JIA.
The user names I found when looking quickly were:
konnie
mythree
worrywort
worriedmum
lozgirl101
I do hope this helps a little. I really do feel for you.
Love
Elna xThe happiest people don't have the best of everything. They just make the best of everything.
If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.0 -
hi all just want to say thanks your great thanks again even thogh you have made me cry0
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I'm the opposite, i'm a child (well i'm sixteen now) with JIA. It's really nice to see you care enough to come online and find out about arthritis and talk to people about it My parents never did anything like this, maybe it would've helped them and me.. but i just wanted to say thankyou, because your child is gonig to know you're on thier side and doing everytihng you can to help When that happens it's an amazing feeling because you can feel so alone..
Love
Katherine x0 -
Hi
just wanted to send lisa and Katherine best wishes.
Katherine you sound like a lovely young lady and i hope you are getting support and dont feel alone anymore.
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Dear Katherine
That is a very heartwarming message that you have sent to Lisa and it will mean a great deal to her. Perhaps for your parents there was not so much of an opportunity for them to find out about arthritis as there is now.
You sound a lovely person and I wish you all the very best and I am sure you will go far.
Love
Elna xThe happiest people don't have the best of everything. They just make the best of everything.
If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.0 -
hi katherine
thanks for your support it upset me to learn you dont sound like you havent had it yourself i suppose each parents act differently i hope you ok you sound a very strong woman but i understand its easier to act strong than think about things my head is like a big bowl of spaggetti when you are the one who is faced with it smack you are a great person and i wish you all the luck for the future and the support you need
love lisa
keep smiling :P0 -
I think there are an awful lot of us, who, as children had a lot more aches and pains as we grew up. Possible diagnosed as growing pains. I know I was one of those
I was always anaemic. Had to have blood tests every six months until I was 18. This was because I was with foster parents and it was part of the course. I use to hate these check ups with the doctor. The soreness etc was always 'growing pains'.
joy0
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