PSA
alison67
Member Posts: 70
HI all,
been a while since my last post and i am now taking 15mg methotrexate, which is working well. However, i have recently read up on my condition(psoriatic arthritis) which is very much the same as RA, and on many sites it states that we have shortened life expectancies as arthritis sufferers!
My intention isn't to scare monger so please don't take this message the wrong way, but does anyone know anything about this? Am i just being ignorant to what this disease can do? I'm 42 and have had PSA since the age of 28 and i so want to live a normal life as possible. Apologies in advance if i've worried anyone with this post. I suffer from anxiety as well and maybe i shouldn't keep researching! Take care all. Alison.x
been a while since my last post and i am now taking 15mg methotrexate, which is working well. However, i have recently read up on my condition(psoriatic arthritis) which is very much the same as RA, and on many sites it states that we have shortened life expectancies as arthritis sufferers!
My intention isn't to scare monger so please don't take this message the wrong way, but does anyone know anything about this? Am i just being ignorant to what this disease can do? I'm 42 and have had PSA since the age of 28 and i so want to live a normal life as possible. Apologies in advance if i've worried anyone with this post. I suffer from anxiety as well and maybe i shouldn't keep researching! Take care all. Alison.x
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Comments
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No Alison
I hadn't heard that - was it on this site because I don't always rate info from other sites.
You know I would post a thread on the helpline forum and get the answer from the horses mouth.
That should put your mind at rest.
You take care
Toni x0 -
Thank you Toni.
I actually googled it and came across loads of articles about mortality rates of sufferers and so on.x0 -
Just took your advice Toni and posted message to the Helpline Team, thanks. I'll let you know what they say. x0
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alison67 wrote:Just took your advice Toni and posted message to the Helpline Team, thanks. I'll let you know what they say. x
Toni x0 -
Hi Alison,
Oh flower you can't look up stuff all over the net. You mustn't get worried by articles and things cus so much is unsubstantiated and can't be backed up with actual real facts. I know cus I looked up something for the sheep and it was really bad...... My vets then explained the pros and cons of information on the net. I also have pa and less I am told it by people I know are right I tend to not listen. Don't you go worrying your self and I am sure you will be fine. Saying that the helpline teams answer I shall keep and eye out for. Cris x0 -
hi
i know its worrying, but you will live as long as you will live anything could happen to anyone any time. no one knows how long you would live with or without arthur.
try not to think how arthur may or may not shorten your life just try to live the best life you can.
i know it is hard, i am a huge worrier too :oops:
take care
page x0 -
Thank you all so much.
Love and best wishes to you all.x0 -
Hi Alison
There are a lot of sites out there that give cranky information. Only take notice of ARC, Arthritis Care, PAAlliance, and anything NHS connected. Totally ignore the rest and try to worry yourself as stress can make a flare up worse or even bring it on.
As far I know morbidy is not affected, it's just the quality of life.
Take care
Tracy x0 -
page35 wrote:hi
i know its worrying, but you will live as long as you will live anything could happen to anyone any time. no one knows how long you would live with or without arthur.
try not to think how arthur may or may not shorten your life just try to live the best life you can.
i know it is hard, i am a huge worrier too :oops:
take care
page x
Echo! Totally agree, with page.
I know people who are well into their eighties with arthritis and they are doing ok. I also used to visit a 99 year old man too with arthritis in his knees and a few other complaints, but at 99 one would expect that. Sadly, he did not quite make 100 years old but he was ready to go. Bless him.
The bottom line is, to my mind, exactly what Page said.
Hope you are having a happy day.
Luv
Elna xThe happiest people don't have the best of everything. They just make the best of everything.
If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.0 -
Hi, Try not to worry, if you think about people die from all sorts things you'd never expect, like bee stings and flu' (not just this years scare of swine flu). These figures are worked out using statistcs and they can be used and manipulated to prove lots of strange ideas. My friends Mum has RA really badly and she has for as long as I have known her, thats about 30 years. She has had lots of flares and problems with medication causing her to have ulcers, all that stuff. Now shes 90 someing, gave up driving about 5 years ago, as she has eye problems, caused by age, but she gets about all she wants to on a scooter. Does her own shopping cooks her own meals. She lives with my friend in a granny annexe, as she got very lonely when she lost her husband and her family all lived along way a from her. Now shes happy again, still gets bad days with pain and to see her hands makes mine ache for her, but they have always been like that since I've known her. She goes on holiday and to Church.
I know you could way, ah, but shes lucky, and she is, not many people manage to live as well and as long, RA or not. So, please, please try not to worry about that life shortening thing. We none of us know what the future holds. My neice has a neuro disease which gives her, at 40, ten more years. She said to me recently, it dosn't worry me, lots of people younger than me die from horrible, painful things, I don't have pain, I'm lucky. It made me cry. Shes a happy, scatty, daft girl, longing for next month when she gets her electric wheel chair! Now that does worry me! :shock:
Take care, love Sue0 -
God Bless you all for your messages of understanding and support. It's so good to know you all care and i shall come on here more often for support instead of trying to cope alone.
I shall also stop searching and taking to heart everything any old site states. :oops:
Lotsa Love, Alison.x0 -
Hi Alison
Please stay with us my lovely and you will be ok or at least not feel you are on your own. We all do our best on here to offer help and support. Call in as often as you like, we would like to hear from you and how you are going on.
Why not get yourself an avatar like most of us have? Go into your profile and scroll down and you will see where where you choose one from. Remember to SAVE at the end.
Luv
Elna xThe happiest people don't have the best of everything. They just make the best of everything.
If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.0 -
Thank you Elna,
i just goyt myself an avatar I will definately stay on here for all the help and advice, thanks to you all, take care. Alison.x0
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