wish could get head around this

valval

hi wish i could get my head around this arther, he makes me so exhausted. my life is becoming so limited went out for few hours today and ended in tears and shaking with the pain . i hope visit to rhummy gives me some answers as this can not go on . got to sheffield at 10.45 and had to leave at 3.40 as could stand no more and sat down for an hour for dinner. try to keep going and keep a smile on my face ,also show no one how bad things r getting .but going back wards and find it all so frustrating.sorry rant over have good evening all take care and call in cafe when need slice of cake

livinglegend

valval wrote:

hi wish i could get my head around this arther, he makes me so exhausted. my life is becoming so limited went out for few hours today and ended in tears and shaking with the pain . i hope visit to rhummy gives me some answers as this can not go on . got to sheffield at 10.45 and had to leave at 3.40 as could stand no more and sat down for an hour for dinner. try to keep going and keep a smile on my face ,also show no one how bad things r getting .but going back wards and find it all so frustrating.sorry rant over have good evening all take care and call in cafe when need slice of cake

As RA, (which is likely what you have? (Guessing)), is an auto-immune disease then your body is telling you that you are under attack and you need to rest. That is why you feel so tired and irritable and whether you like it or not you have to pace yourself. Attacks are also unpredictable and tend to hit at the most inconvenient times.

Not showing people 'how bad things r' won't help you or them. I have found that if everyone around me knows what I suffer from and how it affects me, then they understand that life for me is different. They know that I need to cancel things at short notice and I get ill and very fatigued. If friends don't try to understand, then do I really need them around?

Rant all you please on here. We understand and need you around. Who mentioned cake, my diets gone out of the window, again. Now, should I raid the fridge or the freezer. Whatever, gone to find out what's going.

Joseph 8)

eckstardeluxe

Joseph is right. Your body is telling you to slow down and rest. I know it's hard but sometimes you just have to listen to what your body is telling you and take some time out. You try your best to do something or be independent and then suffer the next day.

Letting your feelings out helps, it is good to know you are not alone. I do not have RA but I do have absolute exhaustion and pain all day even medicated and try so much to get out there and do things for myself. I then find myself struggling afterwards as I've overdone it. But sometimes I feel if I rest it's like I'm giving in.

Hope you feel better soon

xxx

valval

thanks joseph oa so far that what doc said but going to rhummy as keep getting flare ups and feel so exhausted. thanks every little helps sometimes u feel so alone with this do tell them more now as it winning. but will win in the end

valval

hi ec thanks for that it sucks but we have no choice do we

eckstardeluxe

valval wrote:

hi ec thanks for that it sucks but we have no choice do we

I know, we are so tired yet we think who will get the shopping etc? If I sit here am I giving in? People keep telling me to rest and I know I should take my own advice but I try to sit then imagine heaps of ironing or getting the kid's clothes ready for the next day and I know I can't leave that to my hubby. Last time he picked out a green top and purple trousers for my 3 year old girl. I said "what is it fancy dress day at nursery and she's going as The Joker?"

valval

you made me smile with that out fit. and we can not just give up or arther has won and he is not going to win we will not let him we will get ballence right and meds sorted. go for it girl we will win

Wonkylegs

HI Valval,
I know just what you mean about the frustration of not being able to do what you want to do.

At times I have been so frustrated that I couldn#t do things, or have made myself do things and regret it.

On a day when you are out with others and feel very fatigued, could you perhaps find yourself a place to sit and watch the world go by whilst your company goes and does soething else, then join them again when you have gathered your energy and had a breather?

I do this sometimes when I am determined to go out for the day but the fatigue gets too much. My hubby hated to leave me at first, but he would rather I sat down and did my own thing for a while than force myself to a stage where I cannot do anything at all. He suffers less too, this way, as I don't shout/moan/nag him as much!!! :oops:

do keep askingn questions of your doctors though - they should be able to give you some help.

hugs to you ((((((())))))))))))

minky67

hi,i too have oa plus a few friends thrown in for good measure.
tiredness goes with pain & the medication also makes me tired.
i can get up do breakfast,a quick sweep up & be ready to sleep again.i do try to beat this by just trying to sit or lay down for a bit.

i also now break up what needs doing around the house into days,i.e 1 day bathroom,1 day changing beds etc.thats as much as i can manage these days.
ive always been independent so asking for help has been so hard,im afraid now i have to ask for help.
i havent any answers for you,i panic at the thought of getting around doing the weekly shopping but i do it slowly with my oh & come back shattered.
adapting & changing the way we do things was my hardest challenge but slowly im getting there this site has really helped as i now know im not alone with all this..
take care & keep posting were here for you good or bad days.
luv debs

angel1

valval wrote:

hi wish i could get my head around this arther, he makes me so exhausted. my life is becoming so limited went out for few hours today and ended in tears and shaking with the pain . i hope visit to rhummy gives me some answers as this can not go on . got to sheffield at 10.45 and had to leave at 3.40 as could stand no more and sat down for an hour for dinner. try to keep going and keep a smile on my face ,also show no one how bad things r getting .but going back wards and find it all so frustrating.sorry rant over have good evening all take care and call in cafe when need slice of cake

Really know how you feel Val. Had workmen in all week - back on Monday! - so been overdoing it trying to keep on top of things. Not much choice really as I`m on my own, but I`m crying with pain and exhaustion tonight.

My son phoned earlier, and in reply to "Is everything alright Mum" gave the usual answer...."Absolutely fine love"........Ange.

chris7

valval wrote:

hi wish i could get my head around this arther, he makes me so exhausted. my life is becoming so limited went out for few hours today and ended in tears and shaking with the pain . i hope visit to rhummy gives me some answers as this can not go on . got to sheffield at 10.45 and had to leave at 3.40 as could stand no more and sat down for an hour for dinner. try to keep going and keep a smile on my face ,also show no one how bad things r getting .but going back wards and find it all so frustrating.sorry rant over have good evening all take care and call in cafe when need slice of cake

Please do rant away when you need too.
Sorry you feel so low, sending you a big hug and letting you know lots of people are thinking of you and wishing you a better day tomorrow.
Chris
8)

annebr

I know how you feel it is frustrating and you do try hard to keep going but sometimes you have to give in to your body.

This forum is great as although my OH is fantastic it's great to be able to talk to other people who know exactly how you are feeling and what you are talking about. So rant away.

Hope you feel better tomorrow.

Anne

babette

Hi Val

I have OA too and I know exactly how you feel. In April this year it required me to really work at moving at all, I felt completely knackered all the time, my energy was sapped by the smallest of activities and staying upright for any length of time was just exhausting. The thouhgt of housework, gardening or walking was simply beyond me and I was moving like a geriatric woman, shuffling along as I could barely lift my feet. I am looking forward to feeling like this again ( ha ha) as the cycle seems to have restarted with the cooler weather. I could sleep forever, but am completely unable to do anything but doze. I really feel for you as this arthur makes you feel old before your time snd that's scary when you wonder what it'll be like when you're really old. Sniff sniff!

Moaning helps so please feel free to chat to me at any time.

Take care and I hope you have a good day today

Luv B x

skezier

Hi Val,

Sorry your feeling so worn out and am glad they are sending you to see a Rumo. It would help to have the drug combination that suits you best I think.

I also have to echo the pace your self bit and like Wonky if I feel too whacked I will sit and catch people up later if I can.

I hope today will be a better day and take care Cris x

frogmorton

Hi Val
I really don't like to see you down
Poor you
Well I agree with what the others have said - you need to put YOU first sometimes and jolly well get some rest!
Write all of this down for the rheumy so you can explain.
I hope you get some answers from him.
You look after you - and Val the cafe is wonderful - I love it!!
That PROVES how mcu you contribute and how much you try.
Take care
toni x

valval

hi oh looked after me lovely even fetched me a 99 ice cream as not had one for ages i tend to forget and try to carry things even light things sent him out with oldest son last night so i could chill and feel so much better today (ok truth ache but who does not lol).head back on straight and smile back on face

mistywillow

Hi Val
I spent years trying to do everything I used to do regards going out with friends, holidays etc. I used to go wherever I was invited. Suffer untold pain and grin and bear it telling people I was fine. (I have RA and a completely fused spine) Now I still don't moan and grumble to friends etc as I know that would upset them, but to each of my close friends and family I have in a very matter of fact way explained clearly how it is. I often do have to cancel last minute, but now they know that may happen and are ok with it. They know if I have to leave early, it isn't because I am bored with their company My OH knows that he can always go somewhere without me if he wants to. It works for me. No one makes a big fuss over me (something I would hate) but they are all empathic and understanding and make allowances.
People can't read our minds, and I really think that unless you suffer constant severe pain you cant begin to imagine what it could be like.
Can we imagine what it is like to wake up in the morning and have NO Pain????????
Pace yourself.
Love Gillx