Living with FMS-RHUMEY-OSTERITIS

daynas

Hi everyone,

I was diagnosed with Fibromyaliga about 12 years ago, its a form of rumatisim that effects the mussles and tissues in the body, i gave up reading about fms and you can get too much info and get depressed.
I was diagnosed with Rumatiod arthertits 4 years ago, i tried many pain killers, tried physio, hydro pool, you name it i have tried it loll, none worked for me.
I went onto methotrexate 3 years ago i was given sulfazasine along with the mth, my rhumey has always been active even though i take 22.5 mg of methtrexate a week as well as the sulfazasine every day , i used to have steriod injections every couple of months but my gp informed me that it can cause OSTERITIS, so being me i had to end up having that as well, i have now been told i need i new hip, me being the [TEXT DELETED] i am i am not going to have the operation, as the specalist told me that because i have FMS the operation will not help much, plus the new hip will only last for 5 years.

Things got so bad last year that i could not not even take the top off the toothpaste, i hated that my hubby had to wash and dress me and help me all the time, i still get bad weeks like that but you learn to deal with it as no one really understands except another rhumey sufferer.
I have had help from the Occupational therapist they gave me a recliner chair that actually stands right up and lifts you out of the chair............... they also gave me a leg lifter for the bed and bars at the side of the bed.
Now i am being assesed for the ANT-TFN drug, i was all for this drug until the head rhumey nurse told me that the side effects are really bad, she said they can even cause cancer.

Well its either the devil you don`t know or the devil of pain. life can be pritty [TEXT DELETED], iv been house bound for years, but hey i always think their are children who suffer far worse, so my motto is always look for the positive in life...............................it might be an age thing as i am 53 but feel 93 :arrow:
At least i have a good hubby who moans a lot loll but still looks after me, he has heart disease what a great pair hey........OH and the dog has Rhumey as well.

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elnafinn

Hi Daynas

I am so sorry to read your story. You really do have it tough and your hubby too. I cannot comment on the anti tfn drug except to say, everyone is different and some peeps have had very good results once on it. [TEXT DELETED]

I hope you keep in touch with us on here.

Look after yourself,

Luv
Elna x

[Hi Elna,
We cannot include some of the details in your post as it constitutes a link which is against house rules.
All the best
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jordan7j

Hi, so sad to read your post. It must be so hard to have to rely on your hubby to help you all the time. He sounds like a wonderful person. I have RA and OA am on mxt, not working so far, although I probably dont help myself as still working. My hubby also has ischaemic heart disease, diabetes (insulin dependant) and RA. We make a right pair!!! I do get out though, even though its painful, obviously nowhere near as yours is. I do understand why you dont want the hip done, but the TNF is meant to be excellent, I'm surprised the nurse told you about cancer risks, I believe its extremely rare (sure someone will know more) A friend of mine was recently diagnlosed with fibromyalgia too, she tends not to want to read up on it, would rather just see how it goes. I hope things do improve for you, its so sad that you have to bear all this. Jay