Hello & Thanks to everyone!

eckstardeluxe

Hi All

Sorry not been on for a little bit and gave some of you concerns - thanks for your messages of support.

Was seen by my old counsellor this week, was very shocked, she just phoned out the blue and said she'd had a letter from my Dr and talked to me a little on phone. She asked me to come in and it just all came out in one big long tirade. Anger, frustration and generally extreme feelings of neglect by medical staff. I also explained I felt angry that I'd always believed my sore backs which I'd had for over 20 years were from my Osteomyelitis.

I explained people were always remarking how lucky I was after having that and the epidural abscess to still be able to walk or not be paralysed, so I thought I'd got off lightly with a sore back. She said I had been let down, she would not defend anyone, it is a disgrace. She wants me to keep on with my claim as feels someone needs to be held accountable and I have to think about how young I am and my very young children. She says she will be there every step of the way for me to support me.

It felt so wonderful to get this out and not feel silly. I just wanted to thank everyone who helped and supported me during the time I was down. I was at a very low ebb and was desperate for support and the only people I could think of was you lot! Even though I have a wonderful hubby and family, they just didn't get it. I cannot remember who suggested something as simple as pull ups for my son, I know he is a bit young for them but they have turned out to be a godsend, so much easier to change him - thank you so much, such a simple solution to a big problem. Thank you again everyone I really don't know what I would do without all of your kindness.


Alex
xxx

tkachev

Isnt it lovely when people listen to you and agree with you.Its when you feel up against a brick wall you feel defeated and hopeless.Now there seems to be a way forward.
It was Maud who suggested slightly bigger pull-ups.Next you will have to teach him to pull them up himself!Its amazing what kids will do for a smile and cheer from their mum.(not sure how old he is though!)
Take care
Tkachev

ritwren

How great it is that you've gotten good support from your counsellor. Well done to the GP for making contact and getting you back in the system again. I agree with you that this forum is such a help. I come on regularly and just reading what's happening with other folks helps keep me sane.
very best of luck
rita

page35

Hi Alex
so glad you are getting support having someone to talk to makes it that much easyier.
i wish you all the best
take care
page x

elnafinn

Hi Alex

I am so relieved to hear from you and to know that things are moving in the right direction for you. I also was going to say it was dear Maud who came up with the suggestion of pull ups but TK got there before me. I do hope she reads this thread. Maud has a tough time looking after her grandson and will be pleased that she has helped you.

Here's to better days then, your gp was on the ball - really good to hear.

Take care Alex and look after yourself and you know where we are, should you need us.

Lots of love
Elna x()

chris7

Hi Alex

So glad to see you back. It is really good news that the Counsellor got in touch and has made you feel completely listened too and understood, especially as it was someone who already knows you.
I do hope you have started to feel a bit brighter and are slowly finding a way forward again. We have missed you. Take care
love
Chris

skezier

Hi Alex,

Really good to see you and I am glad your having counselling again and so hope it helps you. A ((( ))) and a promise you will work through it all. Luv Cris xx

dachshund

Hi Alex.
I'm pleased you have got some one to help you.
at last you should get some where.
joan xx

joyful164

Hello Alex
I have read your message and now understand just how bad things have been with you. At long last you have found someone who will fight your cause. Now that you have unburdened yourself in this way, I pray that you get satisfaction soon. It's not easy fighting the 'establishment' and you need someone else who has the strength where you haven't. I'm pleased for you.
let us know how you get on. The main important thing though, it could have been so much worse.

But isn't it the norm for our nearest and dearest not to fully understand what we are going through one way or another. I could write a list of the negative responses I have received from my OH, son and daughter and they are the people you need to support you all the way.

Luv
from Joy

lindalegs

As the advert says Alex, 'It's Good to Talk' I so glad to see you back and so much more positive.

Long may it continue.

Luv Legs

Wonkylegs

great to hear from you Alex, and well done for being honest with yourself and others.

good luck with the fight ahead fo you, and so glad that the support on here really makes a difference.

trisher

Hi Alex


So good to hear that you are okay and back to your old/young sorry self.


Good luck and hope you win your case


luv trisher xx

topgirl

Hi Alex.....
Im glad you have began ' to let it all out'.........and are begining to feel a bit better.....
xx

woodbon

Hi Alex,
All I can say is, thank goodess your doctor understood what you needed and did something. To you, WELL DONE, this should give you the support you need!!! Lots of love & a hug, Sue

debatat

Hi Alex, I am pleased that you are getting the help and support that you need and deserve.

Deb x

eckstardeluxe

Hi everyone

Many thanks for all your messages. As many of you have pointed out it was dear Maud who suggested the pull ups for my son. I am finding it so much easier to change him, to know you have let your baby mess the floor because you could not physically find the strength to change him is not a nice feeling and it really did make me realise I needed help. He is now walking (at last) and this is making a huge difference as not having to carry this two stone baby.

Sorry it took so long to respond, my son was unwell this week and had trouble breathing. This happened in January and he was taken by an Ambulance as a 999 call. We have been at hospital this week as a similar thing happened. It just seems the poor soul when he catches a bug, it affects his lungs and he was given steroids etc. He is improving now and they don't think he's asthmatic which is a relief.


Mentally there is a difference, even from one meeting with my old counsellor. I feel a bit stronger and not tearful or emotional, even when my son was ill, I managed to stay calm and don't think I would have if I hadn't seen Elizabeth. See her again Tuesday so lots to talk about! Thank you all again for your kind wishes. I hope to get on more regularly again.

Alex
xxx

chris7

Thanks for the update Alex

Hope your son well on the mend now, it never rains but it pours eh! Glad you are finding some strength from somewhere. Hope each day is a little brighter than the last. take care of yourself. Lots of us have been thinking of you.
Chris xx

joyful164

Hi Alex
How are you today?
and your son. Sounds like a worrying time but hope he is a lot stronger.

Are you feeling a bit stronger mentally and physically? It's awful when you have to struggle but do nothave the strength to do it.

I've only had a virus (similar to the one which started my Polymyalgeria Rheumatica 2 years ago) and that has made it hard for me to cope over the last couple of weeks. cause an almighty flare up.

Anyway, you are having to cope with an awful lot more than me so hope this next week is good for you.

luv
joy

angel1

Well done Alex, keep up the good work.

Hope the little `un keeps on improving.

You are a (eck) STAR (deluxe)!!.......Ange.

elnafinn

How's our Alex doing?

Hope things are improving all round for you now,

Love
Elna x(())

sharmaine

Hi Alex

Glad you're feeling brighter and poured your heart out to someone with medical know how. Hopefully things will get better for you.

Take care.
Sharmaine

woodbon

Hello, I am so sorry that your son has been unwell, but glad that you managed to cope with it, as it must have been frightening. Still, you say hes on the mend now. Also solving the nappy problem sounds a really good idea for Mums who have problems bending and lifting.

Now you've started seeing your councellor again, your problems will come back into prespective and you will manage them without tearing yourself to bits! Everyone, or at least most people I know have times that are difficult to cope with and having a bit of extra help is the best possible thing for you. I hope things continue to improve for you and your son is soon running round, driving you up the wall!!! Give him a hug from me! Love Sue