hydroxychloroquine,

barbara01 · 2. Nov 2009, 05:34

Hi Wondered if anyone can give me some advise. I am currently on MTX 7.5mg per week and although this is working for me cannot bear the constant tiredness and the feeling that my stomach is always 'not quite right' also feel kind of dizzy and just out of sorts. Have seen my GP and she has suggested that maybe I try and switch to hydroxychloroquine, my rhumy initially gave me the choice of either MTX or hydroxychloroquine, and every one pushed me towards the MTX. Is anyone on hydroxychloroquine, and if so how are you doing? what doses? and most importantly what side effects!!! Thanks everyone..hope your all having a good day

Take care Barbara xxx

tkachev · 2. Nov 2009, 05:44

In my opinion Methotrexate really helped with my pain and hydroxychloroquinine did nothing!
Hope that helps
Elizabeth

debatat · 2. Nov 2009, 09:14

Hi, I take plaquenil, it has helped with the fatigue, but unfortunately has not helped my joints. I have to take a manintenance dose of steroids and am hoping to start MTX soon.

Plaquenil is usually used for mild RA.

Hope this helps

Deb

page35 · 2. Nov 2009, 09:37

Hi
yes hydroxy is one of the milder drugs and is for mild RA or in combo with another drug. i took it for a few months but my RA flaired while on it and it didnt really help much, so i went on to mtx. how about sulfa? has youre rheumy surgested that?

jenzie06 · 2. Nov 2009, 09:54

I took hydrox for ages with very little side effects. It used to effect my contact lenses (soft ones) but that was it. It didn't have a huge effect on the RA just took the edge off. It also takes up to three months to get into and out of your system.

Hope you find it works for you. I couldn't stand MXT, made me feel worse than the RA!

barbara01 · 2. Nov 2009, 13:23

Thanks everyone for your replies...so much to think about it seems to me that no one seems to be controlled on one drug alone, whatever it is, most of you seem to be on combinations, surely that just means you have double the side effects.....was hoping I would be able to find just one drug with minimal side effects but not sure thats going to be possible.

Love Barbaraxx

madness1985 · 2. Nov 2009, 15:01

Hello,

Im on this particular drug it isnt helping me, but i am getting so ill, ive had nothing but bugs since starting on it .. ive had flu, ear infection and flare ups! Although i was only given it as it was the only safe drug to give without continual blood tests as i have a fear of needles.

Sorry thats so negaitive but my experience

xx

dollydaydream · 2. Nov 2009, 16:02

barbara01 wrote:

Hi Wondered if anyone can give me some advise. I am currently on MTX 7.5mg per week and although this is working for me cannot bear the constant tiredness and the feeling that my stomach is always 'not quite right' also feel kind of dizzy and just out of sorts. Have seen my GP and she has suggested that maybe I try and switch to hydroxychloroquine, my rhumy initially gave me the choice of either MTX or hydroxychloroquine, and every one pushed me towards the MTX. Is anyone on hydroxychloroquine, and if so how are you doing? what doses? and most importantly what side effects!!! Thanks everyone..hope your all having a good day

Take care Barbara xxx

Hi everyone

It does seem as if everyone is on a mixture of meds. I have OA, RA and Fibromyalgia ( & lots of other things not to do with arthur) I take 25mg Amitriptilyne, 2000mg Sulfasalazine daily, 20mg Methotrexate , 5mg Folic acid weekly and 400mg Hydroxychloroquine per day for 5 days a week. phew it looks bad when you see it on paper. I have been going to see Rheumy for two years to get a dosage that suites me, I felt great last Monday for the first time---so overdid the house work --now can hardly walk my ankles hurt so much .
I was told the tiredness is part of the illness but I wonder if it is the meds now. Also my eyes are itchy, could be the Hydro. Not due to see consultant until December.
Arrgh. :roll:
luv to all
Dolly :shock:

dollydaydream · 2. Nov 2009, 16:06

PS
Also on co-codamol which lots of days I have maximum dose.

xxxx

breane · 2. Nov 2009, 16:16

Hi,I have been on Hydroxy since June and so far so good.

I havn't had any bad side effects but have noticed when I wash my hair I seem to lose a bit more hair than usual when combing it out. I think it takes about 3-4 months for the drug to get established in your system and it one of the more safer drugs.Since being on it I have only had one bad flare up and that was through my own fault of trying to lift heavy paving slabs.I can't say I'm pain free but it has been a lot better.I see the consultant again just before Christmas and she will decide whether I will be staying on the drug. Breane.

debbierose · 2. Nov 2009, 16:27

I'm on this drug and mtx20mg plus frolic acid. thyroxine 250mg
and tramadol and celbrifib
I think that's how they are spelt.

other than feeling out of sorts on a Tuesday when i take them I'm okish. eyes are gritty every day, joints in different areas are swollen. but if its leg areas I use my crutches and always wear my special boots. if it hands I wear my splits and finger splits.
if its my neck and head I usually take to my bed as I can't cope with headaches or migraine. if its my jaw I stop speaking. (hubby's delight) and if its any where private well I leave that.

I think my body becomes used to the amount of drugs I take and declares war.

sorry don't want to sound negative I guess its the better option of not taking any drugs.
lol

hydroxychloroquine,

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