Hi, I’m Dave
I’m a few days off being 61 and I’ve been suffering with pain since I was 40.
The experts, all of them, say it’s in my head; then contradict themselves, expertly.
When I was 19, I was serving in the RAF and told by their specialist I had severe arthritis in my neck. The pain continues and you get on with it but as other complications developed matters only got worse. Recently[TEXT DELETED] x-rayed my neck and said there was nothing wrong.
In 1992 I was diagnosed with Ankylosing Spondylitis. Given all the usual meds and suffered all the side effects including stomach bleeding and IBS. Since then, my eldest daughter has been diagnosed with severe Fibromyalgia and my sister and my mother. [TEXT DELETED] say I don’t have that either.
The specialist can’t give me anything else due to adverse reactions so I’m limited to a cocktail of painkillers.
Added to that, in 1992 I began complaining of severe chest pains after a 140 mph head on collision. I was told, after full examination there was nothing wrong, it must be muscoskeletal pain from my back problem, they said. Wasn’t I told I don’t get pain, it’s all in my head?
The pains became excruciating, in and out of A&E, still nothing wrong they said. In December last year, 22nd to be precise, the cardiology consultant finally gave up and said there was test that would prove he was right. I had an angiogram and he came to us with great sadness, I owe you an apology; you should have been dead by now but by some miracle you’ve hung on. Yes the pain was real and it was telling me that two of my arteries were 90% and one was 75% blocked. Fortunately I hadn’t had a heart attack. Having realised his mistake he got me into the London Heart hospital three weeks later for an urgent triple by-pass. Again [TEXT DELETED].
After 12 years of complaining about chronic back pain and legs collapsing I managed to persuade my GP to get me a second opinion at the[TEXT DELETED]. Immediately they noticed a problem and put me in for an MRI on the lower back. It revealed severe osteoarthritis at the L5/S1 with root canal narrowing and OA in the left hip and pelvis. Could this be the cause of all my pain and legs collapsing?
NO, the neurologist said, without so much as a single test. He has ruled the problem still lies with my brain and in addition to reading on the subject further he now suggests I take an anti epileptic drug that’s being trialled. Ever get the feeling you’re part of a wider experiment?
To make matters worse, I received DLA for over twelve years on higher rate mobility and middle rate care until June this year. It was not renewed because according to the DWP I have been cured and my medical records do not support my claim.
Despite the triple by-pass which has left me with further severe heart complications such as a damaged thyroid and severely complicated atrial fibrillation I don’t recall being cured of anything.
I’m on a cocktail of drugs that can damage my liver and destroy my thyroid, turns my body ice cold and makes me pass out if I try to exert and now they want me to take an epilepsy drug to cloud my mind even further.
I would have thought my condition was proven and beyond doubt so am I missing the point somewhere or is this the normal way to treat people? Has anyone else been subjected to continual maltreatment and then had their DLA stopped?
Incidentally, thanks’ for giving me the space and place to complain. I’m hoping someone can tell me where I’m going wrong.
I've had to removed references to a specific hospital. I appreciate that you've had a bad experience, but Arthritis Care could be liable for such opinions expressed on the forum.
All the best,