18+ adult stuff again, re mtx!

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suzster
suzster Member Posts: 1,328
edited 20. Nov 2009, 05:23 in Living with Arthritis archive
hi all, sorry for not being around as much, had a rough week.
saw my rheumy yesterday and after a very painful fluid drain from my knee and an even more painful steroid injection into the same knee, thankfully said knee should feel better soon!
but i mentioned to her my concern over my complete lack of libido. she checked her books and said it is almost certainly the mtx and so she wants me to stop taking it and see if that helps!
well, great if my libido (lol) comes back but without the mtx will i be able to do the deed?
she said i could try leflu something, not sure how it's spelt, but i guess you know what i mean? but she will discuss that in about 6 months when i see her next, cheers then!
i'm hoping i will get a bit of my desire back but i also hope the pain and swelling doesn't make it impossible! *blush*
sue

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  • tkachev
    tkachev Member Posts: 8,332
    edited 30. Nov -1, 00:00
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    Hi Suzster
    Well my libido has done a runner too but I wouldnt come off MTX to get it back.No way.In fact mine has just been increased from 15mg to 20mg so maybe it will get worse(if it possibly could).I am just going to worry about myself and then try and make up for it with the OH when I can..
    Best wishes
    Elizabeth
    Never be bullied into silence.
    Never allow yourself to be made a victim.
    Accept no ones definition of your life

    Define yourself........

    Harvey Fierstein
  • suzster
    suzster Member Posts: 1,328
    edited 30. Nov -1, 00:00
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    i think i'm more worried because since sarah was born and my RA came along you can count the number of times i've been in the mood on 1 hand, and since we've only been married 4 yrs i do feel so guilty. i know i shouldn't but when we got together i was the opposite, poor bloke must wonder where the real sue has gone.
    i know coming off the mtx will be tough but i just want to feel more like 'me' again, even if it's only temporary!
    sue
  • Wonkylegs
    Wonkylegs Member Posts: 3,504
    edited 30. Nov -1, 00:00
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    HI Sue,

    well that explains a lot for me too then! :oops: I have been taking MTX for ages and never seem to be 'in the mood' either.

    I have recently started taking leflunomide (as well as the MTX) - I can tell it is working for the arthritis but haven't noticed any other side effects :wink: yet :wink: but will let you know!

    people without arthur just don't realise what we go through do they?!
  • annie_mial
    annie_mial Member Posts: 5,614
    edited 30. Nov -1, 00:00
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    Same thing happens with Prednisolone - I should know!

    We could combine and write the Karma Sutra for Arthritics.........?

    Annie
  • woodbon
    woodbon Member Posts: 4,969
    edited 30. Nov -1, 00:00
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    Its my anti-depressant that causes that for me. I hav'nt mentioned it to the doctor, but, I know if I don't take it for a few days... :wink: It is also listed as a side-effect. Love Sue
  • c4thyg
    c4thyg Member Posts: 542
    edited 30. Nov -1, 00:00
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    I simply dread the pain that I'll wake up in the next day if not in the night. It uses all my spoons up and the next 2 days worth in one go! :D So I simply don't bother any more. Thankfully my hubby is more the type who likes a cuddle and doesn't complain very often. He's seem how hard it is to manage the next day so he's the one who feels guilty.

    I certainly agree that we need a Karma Sutra for arthritics. I wish I had the nerve to ask my nurse for advice on positions that don't hurt afterwards. :lol:
  • gickygawky
    gickygawky Member Posts: 478
    edited 30. Nov -1, 00:00
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    Hi Sue,

    You are not alone with your concerns :)
    Sadly I think it's something alot of us have been suprised with. I blame it on the meds to some extent but I also think having the arthritic pain and worry doesn't help set the mood either. So often I find I am far too preoccupied with worrying about where it hurts and why, popping pills, injecting and 'the future' etc that I am not at all interested in the now.
    I am lucky, my hubby of 7 years is very understanding, as I am sure yours is. We have spoken about it many times and he says that although it's an important part of our relationship it is not the be all and end all and that he is in it for the long haul regardless of what I throw at him.
    However, as resiliant as he seems I do worry about him. It's not fair on him to have a happy, healthy, energetic new bride on his arm one day and a ninety year old the next.

    I saw in the news this week something about female viagra so who knows what we will be posting about in a few years time! Good luck girls! :lol:

    Arna x
  • tkachev
    tkachev Member Posts: 8,332
    edited 30. Nov -1, 00:00
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    gickygawky wrote:
    Hi Sue,

    You are not alone with your concerns :)
    Sadly I think it's something alot of us have been suprised with. I blame it on the meds to some extent but I also think having the arthritic pain and worry doesn't help set the mood either. So often I find I am far too preoccupied with worrying about where it hurts and why, popping pills, injecting and 'the future' etc that I am not at all interested in the now.
    I am lucky, my hubby of 7 years is very understanding, as I am sure yours is. We have spoken about it many times and he says that although it's an important part of our relationship it is not the be all and end all and that he is in it for the long haul regardless of what I throw at him.
    However, as resiliant as he seems I do worry about him. It's not fair on him to have a happy, healthy, energetic new bride on his arm one day and a ninety year old the next.

    I saw in the news this week something about female viagra so who knows what we will be posting about in a few years time! Good luck girls! :lol:

    Arna x

    Yes my OH has mentioned the viagra!I dont want to take anymore medication though as have enough as it is.Like you I feel upset for my OH but have other things on my mind-like housework,kids,tiredness-so that is another problem aside from the aching bones and lack of mobility.I had hoped my THR would make things better,they have helped a little bit but dont get get rid of those concerns I have just listed.
    Elizabeth
    Never be bullied into silence.
    Never allow yourself to be made a victim.
    Accept no ones definition of your life

    Define yourself........

    Harvey Fierstein
  • woodbon
    woodbon Member Posts: 4,969
    edited 30. Nov -1, 00:00
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    The other day we were discussing this lowering of sex life and my husband, very uncharitably, said that blaming my anti-depressants was fine, but how about the fact that we are 25 years older than when we started out and in a secure relationship, with full lives and at our age, it may just be natural!!! :oops: Thats fighting talk, not romance! :? :lol:

    I have to agree that it is true! :|:wink: Love Sue