another of my adult posts! sorry!

suzster

sorry i've not been about much, i've had a tough few weeks.
i came of the mtx due to it taking my libido away!
any way, here i am, a few months after stopping it, yes my libido is returning, well, sex has entered my thoughts for the 1st time in a couple of years! but i'm in to much pain to even attempt it, law of s*d or what?!
i'm seeing the rheumy nurse in a few weeks, so hopefully we can look into trying something else, but until now i hadn't realised how much the mtx as actually helped.
also more of my joints are hurting now, my shoulders are really bad, i'm back to not sleeping purely because i can't get my arms comfy. it's so frustrating.
i also have just had the form to fill in to renew my incapacity benefit, it's an awful form. questions like - can you lift you arms up as if to pick something of a shelf, erm, at the moment no! but how can they assess you disability with questions like that? i hate filling them in as i seem to ask myself 'am i that bad?'
sue

valval

get some one else to fill form in c a b or some one as u do not like to feel u r that bad and they will tell it as it is on bad day. pain and sex know what u meen they do not go together take care (((hug))) u sound like u need it

woodbon

Oh, I'm sorry about the meds putting you off sex then the pain making it impossible. Between a rock and a hard place, I think they call it. (no joke intended) :oops: :oops: Could a lower dose of the meds ease the pain, but leave the labido alone? I don't know anything about these drugs, but its just a thought and probably silly. As for the forms, I know what you mean, the cancer charities are making representatons to the Government as people who are very ill can still do the things thay ask, and so fail, but are far too ill to work! I wrote to my MP (Cons), he wrote a long letter back saying that although people should be helped if they want to go back to work, they should not be forced, if they and their doctors feel they are ill. He said he believed no one who is ill should be made to feel they must go to work, but if they would like to try, then the money should be there to provide them with a chance. Sounded quite sensible, but we'll see, maybe! Love Sue

joyful164

Hello Sue
If you have those forms to fill in I sympathise with you. My OH had some to do after his heart attack 7 years ago. He has a job walking up stairs, up hills and lifting.
Because he could lift his arms, touch his toes,. He didn't get it.
You need 15 points or something to get incapacity.
I'm cross because I cannot get DLA. They just change the goal posts, plus they have cut back on so many benefits.
Regarding your arms. May I suggest getting a referral to an Occupational Therapist and getting some sleeping supports for your wrists and hands. They should make them to fit each hand.
You would be amazed the difference they make. Would make a bit of hanky panky difficult or maybe interesting maybe, but would certainly help you get comfortable and helps with the pain.

Bye

Joy

frogmorton

hi sue
glad the sex drive is back but sorry that everything else is uffering as a consequence bum!
sorry bowt the lack of puntuation but my kitten is sucking my dressing gown and i loves her too much to move her :roll:
i reckon the forms should be filled in now - while you are at your worst eh...
get some help though before you do em and think it through each quetsuon.
hope the rheumy nurse jhas some ideas for you.
you take care
love
toni xx

tkachev

I hope your husband sees the effort you are making.I am sure he would rather you were in less pain.
I am in same situation but would never give up medication for it.I had my hip done hoping that would help with less pain but the mind remains the same.I just do what I can for his sake but would rather live without it!

Best wishes
Elizabeth

carol101

Hi Sue

Sorry to hear your troubles. I'm lucky enough not to have that problem with my meds, just sometimes the odd pain.

At the risk of being a bit personal, does it have to be sex? Sometimes a good cuddle, kiss and touching can be more intimate.

Carol X

pottypam

hate to say it but glad this sex thing not only me, lol
I am not in a relationship have not been for over 3 years, and why well because of the pain in my hip first one then the other , oh and my back, dont get me wrong, have had the offers, but my screaming from pain ,not joy in thier ear well seems to spoil the mood a bit . and think the meds and having cancer and treatment for that well took me off the boil a bit i must say , radiotherapy shrunk a few bits and really for a while had no interest so waited till both hips been replaced and back on Metheltrexate to help with the inflamation.
Well started thinking about it and met a loverly man , we got cosy and kissy moved my leg and wham my hip went clunk again pain ,scream mm you get the picture , This hip was my first op one over a year ago, ,so what do i do now, give up for good as not likley to find someone who prepared to think first, .drug my self to a stupor (defeats the object ) or just wait and see , mmm seems my only option i suppose . but it felt so good to know i could feel that way again after so long ,only for it all to go sour.
oh the loverly man has vanished , lol

page35

Hi Suzstar
i hope the rhuemy nurse can help you, have you tryed sulfa before?
good to know you have got "that feeling" back though so you know its the mxt and not you.
take care
page

colinone

Hi Sue sorry to hear your not to good, Medication is so important but really does play hell with us. Its a catch 22 your damned if you do and damned if you dont. I just hope your feeling better soon.
Colin

woodbine

Just a suggestion - you may already have thought of it - but we have one of those books with lots of suggestions for different positions for intimate moments.
We can usually find a position that avoids too much strain on whichever part of me is hurting most at the time (I have OA all over the place) - and even if we can't, trying the various suggestions gives us a good laugh! I'm lucky to have a really understanding husband which also helps

suzster

hi all, thanks for your replies.
well, sadly my joints are really painful at the moment, from my shoulders down, so it shows the mtx was helping more than i realised but also shows more joints are effected now as my shoulders are really painful and they weren't before.
so i'm struggling to sleep as i can't get comfy, so although yes sex has entered my thoughts, which it never did on mtx, but i'm to tired and hurty to try it! oh well, i see the rheumy nurse on 20th of this month so maybe i can discuss trying another med with her?
fingers crossed!
sue
p.s
it nice to know i'm not the only one who struggles with the adult things!!