...just how many brave, inspirational people i have come accross since being diagnosed with inflammatory arthritis 2 months ago.
Hi all, my mum found this forum; i can honestly say it's so reassuring to finally hear from other young
sufferers. Been reading a few posts under this 'young person's forum' and just wanted to introduce myself today
The start of this year started with me having really uncharacteristically sharp pains in my joints, particularly right hip/thigh. I felt depressed and ill quite a bit and couldn't for the life of me work out why, i've always been so active and healthy! And could safely say it's normally a rarety if i'm ever really poorly. For ages we assumed i must've just pulled my thigh muscles riding all summer and running about with the dogs, but strained muscle pain goes away and my pain just got worse and worse untl it was an effort for me to get out of bed (after just having turned 18 the month before in october it was a nasty shock ).
So it's been a bit of a rollercoaster end to the year and especially the last couple of months things have happened mind-numbingly quick. I was diagnosed in hospital (after being admitted following the results of many emergency tests, MRI scans etc) and had keyhole surgery in the form of steroid injected into my hip to try and bring down the inflammation, but this was before they found it had also spread to my knee. Since then i've gone through morphene poisoning, been ill for absolutely ages off numerous painkillers that haven't agreed with me, had nerve blocks into my hip because the pain is still as bad as ever, tried hydrotherapy, physiotherapy...the list is endless. Feels like so much for saying I was only diagnosed in November, at the mo i'm just at the point of waiting for the MTX to work..7th week now and I really hate it, not seen any benefits yet.
What can i say, it's been a great shock to all of us but i couldn't be getting through it all without the support of such brilliant family and friends, and it's great to find forums such as this
It really is only at times like these where you have no choice but to take each day as it comes. And i didn't know the meaning of any of these sayings before all this, so for the fact i take nothing for granted anymore i am grateful. And although i don't feel like me at all these days, just like the shell of what used to be me but pumped full of a nauseating amount of drugs, it's made me stronger in ways i didn't even know it could.
Cheesey, yes; exaggeration, no
I always remember admiring my nonna's bravery when she said that treatment often felt far worse than the illness itself and i think she's definitely my inspiration.
It's also nice to talk to the people who've been through what i'm going through and that it gets easier and that i'm in the hardest few months now. Concerning though that i've felt nothing but increased pain since first having the steroid injection though..most people i've come across with RA swear by them :?
Not been back to school since, if it's not major flare ups it's the hard choice of having to decide between quality of life with no painkillers but with pain; or painful quality of life sans painkillers :?
My school have offered very little support – i'm meant to be in my final year of a levels but am definitely gonna have to retake the year now. Hopefully will be able to take at least my English this year because I can do a lot of the reading at home but my parents have organised a meeting with my head of year this thursday...they really do need a reality check on their ignorance. Not fair how i've just been left to fall by the wayside through my suffering
I have no idea what will happen now in terms of exams n stuff..i wanted to go to uni this year.
My dogs have kept me strong
I own 2 beautiful Tollers (Nova Scotia Duck Tolling Retrievers), mother and son
, and a cheeky little Tibetan Spaniel and post on the NSDTR Club of GB's forum, coming across a few other sufferers and being able to share in just what an amazing effect dogs have in rehabilitation. The hardest thing has been giving up being able to do things with my dogs. My goal is to be able to walk them round the park again; a long shot from where I was this time last year – competing at Crufts with my Tilly. I qualified her back in May for this year as well in Heelwork to Music..don't think so though somehow, can't dance on my own let alone with a mad little red dog weaving in and out my legs
So yes, for the first time in aaaages it seems i took my dogs out into the garden Winter?! I swear when i last looked the leaves were only just turning gold. I asked my friend, who'd come to visit me, just to set a couple of neglected agility jumps up in the middle of the lawn for the dogs to enjoy. I think Tilly's face actually split in half with the grin
It was the best feeling ever for me to see them enjoying themselves - it breaks my heart, they're so patient and gentle with me now but i know they're dying to go mad and and train again. My friend didn't even need to say anything, he put the jumps up and both tollers just sailed over screaming their heads off. My mum was holding me for support (i'll be damned if i'm gonna use that bloody wheelchair!) and she just suggested i try something.
So there i was, propped up inbetween these jumps on my crutches, squeaky rugby ball in hand, tears streaming down my face, as i literally just pointed and Tilly & Basil flew over for as long as i had the energy to tell them to. They completely knew that was all i'm able to do right now and they just appreciated every minute of it :') It lifted me so so much and i know for a fact gave me more hope than anything i've been told over the last few weeks. I'd love to make my Till a pat dog so i can have her with me next time i have to go into hospital. If she can make other people smile half as much as she made me then i'll have achieved something more than I thought I could.
Sorry I think i've ranted a bit :oops: Just wanted to introduce myself and where i'm at at the moment in this scary, quite life-changing illness.
Love to hear from anyone and everyone with your experiences, especially if your dogs have done anything for you