hi i'm new and need some advise please
jordansmum
Member Posts: 257
first of all hi everybody could someone tell me if this is normal with arthritis ,my son has just been newly diagnosed with arthritis in his hips. ankles and knee's could someone tell me if the pain he is experiencing at the moment with his knee's is the norm with arthritis or is this something different. He has been getting like a locking feeling where he just cannot move and the pain is so severe that he cries we cannot move him until it unlocks but i feel so helpless so any help would be fantastic thank's in advance.
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hi hello sorry he has this and think it is normal which type of arthritus has he got .how old is he. what meds he on . there r others on here can help u more than me get some wheat bags the warmth does help a bit good luck hope some one comes on to help u soonval0
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Hi,
I have R.A and got severe knee pain due to the inflammation.I couldnt straighten them for years.But they never refused to move,it was always the pain that stopped me moving them.
They are better now and can stretch them out in bed nowadays!
ElizabethNever be bullied into silence.
Never allow yourself to be made a victim.
Accept no ones definition of your life
Define yourself........
Harvey Fierstein0 -
Hello Jordans mum
Arthritis pain is the worse thing i have ever suffered
its hard to explain it to other people but it really is bad. Its hard to get relief even with pain kil;lers. Talk to your GP or Rheumy nurse and see if you can get any pain relief for him. So sorry
Take care
Colin0 -
Hi jordans mum, my little girl Lucy 7 has just been dignosed too, she gets pain all of the time, and finds walking hard!!
I hope your little boy starts to get help now that he is being treated. There are many of us mum's on the young ppls forum!!0 -
thank's everyone the consultant didn't say what type of arthritis it was or i didn't hear her it was like a blur he has physio so will mention the pain to them he goes back to see the consultant on the 18th so i will ask lots of questions. they decided to give jordan an injection in his hip but as yet nothing but parasetamol and ibrufin for the pain which he has been taking for a year. i feel so guilty because there is nothing more i can do i hate seeing him in pain.0
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I am sure you do. He might need to go on a different/more medication if he is in so much pain.The ones he is taking are relatively mild in my opinion.Go back to consultant on 18th and make them aware he is in lots of pain. In the meantime you could phone consultant to let them know as 18th is a long time when in so much pain.I know how he feels as have felt like this in the past but better medication has helped me tremendously.Keep in touch.
ElizabethNever be bullied into silence.
Never allow yourself to be made a victim.
Accept no ones definition of your life
Define yourself........
Harvey Fierstein0 -
Hello Jordansmum and welcome to the forum!
So sorry your wee boy has arther; it must be very hard as a mum to see your child in pain and to feel helpless.
As others have already said, find out from your son's consultant exactly what type of arthritis he has as this may make a difference to the types of treatment you should expect him to receive. It will also help with getting the right sources of support and information.
Write down what questions you need answered and describe the frequency, type and any obvious pattern to the pain your son is getting. Also consider having someone else with you who can support you when you're there. Ask if they have a specialist nurse as a contact person for after the consultation..that can also be very useful both for further advice for your boy and you!
You have nothing to feel guilty about!!! you obviously care very deeply for your son and only want what's best for him.
Take care. we are all here to support you! iris x0 -
Hello, I'm so sorry for you little boy and of course, you. It must be so hard to watch a child in such pain. I have arthritis (oa) in my hips and lower back and find that my leg sort of gives way sometimes or I get a pain shoot down my leg. Arthritis causes all kinds of pains and I think the best thing to do is talk to either his rheummy or your GP as soon as possible. Love Sue0
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Hi jordansmum,
How old is your son? I was about 6 when I started with my arthritis but I wasn't diagnosed until I was 11. I'm 28 now had a knee replacement in May 2009.
I don't remember my knees locking when I was little but I do remember them locking a little bit when I got older, maybe it was because of the cold, I can't remember.
I hope you get the help and advice you need and if you ever need to ask anything I or my mum are happy to chat.
Take care.
Sally.0 -
hi sorry jordan is 11yrs old has been in pain for over a year he was diagnosed in november.I am so cross today i have been on the phone trying to talk to the physio keep getting told they will phone back jordan is in so much pain with his knee and i'm not sure if he should be doing all his exersises or not all i want is there advise it's like asking for blood :x .My gp is useless and i wish i could have the pain for him i feel like i'm going mad grrrrr.0
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Oh No!
The poor thing
Silly question - but have you tried heat/cold???
Sometimes this helps me no nend to move them a bit if they ares tuck??
I am lucky coz i have halfway decent meds.
As soon as you can i know you will get him some and then things should start to improve for him.
Warm bath???
Tens???
i am so sorry wish I could think of anything else.
Toni xx0 -
Is there another GP you can see?
Have you been giving him any painkillers?
My rheumatologist told me when I was Jordan’s age to take a full dose of paracetamol which was 8 a day. He also said that even if I felt better to stil take the next dose as the pain would be even worse later on in the day. My Mum and Dad weren’t too happy about giving me pain relief like that but we kind of had no choice.
Have you thought about ringing the helplines with regards to the physio? I’d be inclined to maybe try a few less repetitions; I’ve done this before when a joint had been particularly bad so I’ve still kept it moving as much as I can.
Is he at high school yet? I was diagnosed in the May before I went to high school.0 -
jordansmum wrote:hi sorry jordan is 11yrs old has been in pain for over a year he was diagnosed in november.I am so cross today i have been on the phone trying to talk to the physio keep getting told they will phone back jordan is in so much pain with his knee and i'm not sure if he should be doing all his exersises or not all i want is there advise it's like asking for blood :x .My gp is useless and i wish i could have the pain for him i feel like i'm going mad grrrrr.
Hijordansmum,
I'm so sorry to read what's been happening since yesterday. It's a disgrace how you and Jordan are being treated! how dare they leave you feeling stranded like this!
If the physio hasn't called back then call NHS 24!! and get advice/someone to see him. You must be worried sick. Wish we could do more to help!
please let us know how you both are. Irisx0 -
thank's everyone have just got jordan settled in bed he's had a nice warm bath which always makes him feel beter.Jordan takes the max amount of parasetamol and max amount of ibrufin,sorry spellings dreadful it,s late and i'm feeling cross.To try and get an appointement at our surgery is niegh on impossible you have to barrage your way through trearge nurse just to be told there is nothing the doctor can do and wait till you see the consultant but the problem with that is they only have a clinic every six weeks i find the whole thing very frustrating sorry to rant but i feel beter for it..In answer to your question yes he is in high school in year seven and loves it which is more than i did :oops: .On a brighter note it's warmer tonite 0degrees i think i might get my bikini on :shock:0
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Hi Jordan's Mum,
You got every right to feel cross and all I can say is hi and send you a ((( ))) and a hope tomorrow will see things start to get better for you both. Cris while reaching for her bikini.... 0 sounds good to me just now too x0 -
Hi Jordan's mum,
what kind of night did you both have? hope things are better for you today and Jordan's pain is lessening. will be thinking about you. keep posting to let us know how he..and you...are. Iris x0 -
Hot water bottles on the painful joint are nice too.Make sure you are well prepared for consultant meeting on 18th.Get questions ready and ask if anymore pain medication required as he is still in pain with present amount.
Elizabeth( who also has a 11 year old son but not with arthritis.So feel really sad for your son).Never be bullied into silence.
Never allow yourself to be made a victim.
Accept no ones definition of your life
Define yourself........
Harvey Fierstein0 -
jordan seem's abit better today he's gone to school and i have had no phone call's so that's a good sign.I am going to write down my questions this time so that i don't forget or rushed out the door.Once again thankyou all for being there for us big hug's to all.0
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Hi Jordan's Mum
Why not try going to the doctors in your bikini???
he he!
My lucy is in year 7 too and just went up - glad Jordan likes it. Lucy is reserving judgement yet.....
Hope he keeps on ok
Love
Toni xx0 -
i think my gp would have a heart attack if i turned up in a bikini after 5 kid's my body's lost well lets just say i'm not exactly kate moss lol and he's about ninety.Jordan's at choir after school today so i have peace and quiet till 4pm ahhhh, then off to weight watchers tonite what an exiting life i lead.0
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He he! :oops:
Hey good luck at weightwatchers - let us know how you get on - my sis has lost 6 stone this (well last now) year!
Love
Toni x0 -
Hi Jordan’s Mum,
I’m glad Jordan is enjoying high school. I wasn’t so keen either but I did do ok at school although I was hardly there. My school was on 3 floors with no lift so it was a bit difficult. The teachers and my mum and dad never put any pressure on me, the fact I got to school they were really pleased and they were more bothered about me finishing a whole week than getting good grades!!
I did do ok though and I’ve now got a masters degree so all the time off hasn’t really affected me too much.
Have you thought about giving Jordan co-codamol for the pain? I went from paracetamol to co-codamol and then to stronger prescription pain relief when I was about 15.
I don’t think you’ve mentioned if you’ve been referred to a rheumatologist because this will be so important for him. He will be able to have all disease modifying drugs which will make a massive difference.
Keep your chin up and good luck with the weight watchers. I should probably be going as my brother gets married this year and I want to look good.
Take Care.
Sally.0 -
hi all omg went to weight watchers as mentioned yesterday first time since christmas ive put on 5lbs :shock: i'm going to egypt the end of the month so must lose it :roll: . been going now for 2yrs got to goal just over a year ago after losing 4 and a half stone 8) would recomend it to anyone .Jordan's flare up is no better today had to keep stoping on the way to school, i am waiting for the rhumey practisioner to phone back to see if there is anything she can do to help him as i have just had contact from the physio at last only 3 day's after phoning her :shock: so will let you know how i get on0
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Hi Jordan's mum,
sorry Jordan's not any better and that you are still not getting support from your physios or rheummys'..Tell Jordan we are thinking about him and sending him gentle hugs ((( ))) iris x0
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