WHAT AGE DID YOU ALL START SUFFERING WITH ARTHRITIS
Comments
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delboy wrote:1996 when I was 48, started with index fingers and diagnosed as RA, down hill ever since.
Hi there delboy.
It's funny you saying about it starting in a finger. I can remember times in my 20's and 30' when one or two fingers would suddenly become swollen and very hard to move. I suppose, now that I recognise the signs I know what it was and there was a time when I seemed to get what appeared chill blains on my hands and feet. I use to have them for ages and very painful they were. Then suddenly they just disappeared. Now 65 I think I can say that there were a lot of signs of what I was in for.0 -
fester wrote:About 11 years of age give or take a month or so, all i remember is not being able to get out of bed then ending up in hospital for best part of a year. At the time my parents were told it was rheumatic fever but my new consultant informs me it was more likely a severe start to the world of juvenile rheumatoid arthritis later becoming adult R.A with a liberal sprinkling of A.S to go with it
And have you managed to cope with it alright. Once dx did you have a rough time on drugs etc.? It must have been a blow. 11 years is so young and when you are just about getting your freedom too. How do you manage now?
We cope don't we?
Joy0 -
Like fester, it must have been a blow to your and your parents.wibberley wrote:Was diagnosed with JIA aged 7. Went into remmision after a couple of years and stayed dormant until aged 22. Burnt out again after a couple of years until last June (aged 43) when a burst Bakers Cyst started all symptoms again.
Think I may have other forms of arthritis now as well as JIA but no-one in the medical profession seems too bothered about that
!
Have no idea whether this current relapse will burn itself out this time or if I'm stuck on medication from now on.
I have asked fester some questions, hope you don't think I am being nosy, but I it give me a better understanding of what some of us go through, far worse to get it at such a young age.
all the best Joy0 -
2008 aged 23 .. a few months after loosing my mum. its 2year anniversary this year!0
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I was 23 (25 now) Hadnt been feeling 'well' for a few weeks. Went to visit my GP who took one look at my 'wonky' hands (which I hadnt really paid much attention to) and said he was 99% sure I have arthritis of some kind, possibly RA. Got some blood tests done and my lovely GP phoned me 48 hours later to say that my levels were very very high (didnt have a clue what he was talking about! lol) and he was referring me to a Rheumatologist but there would be an 8 week wait for an appointment. Three days later I got a phone call from hospital to ask me to come in the following day and well it all started from their! All very quick...........now the meds side of thing.......pity that hasnt been so quick! Lol!0
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Hi, I was only diagnosed just over a year ago at the age of 62 although I had been having pain in the thumbs and wrists for a couple of years previous but thought it was RSI due to all the embroidery I was doing.Two months after being diagnosed with OA I was then told I also had RA.Since then it's been all downhill!
Pains everywhere but mostly in the hands,wrists,shoulders and knees.Like everyone else,it's changed my life forever,so frustrating not to be able to do all the things I used to do as I've always been a very active person. Breane. 0 -
hi i was diagnosed with RA at the age of 27 (two years ago)
I had pain and swelling in hands for a couple of years and finally a doctor in the practise took me seriously.
So been diagnosed and working on the right meds, having a bad flare up at the moment so not good really
Gxx
p.s was diagnosed with a deformed hip with OA in last year.0 -
Hi in my late forties I started getting pains in my joints which would last for about 24 hours then would go for months (I put it down to my age!) Then at 53 it was happening every few weeks, and the pain would last for a three or four days,but it was still manageable, decided to make an appointment with GP and the day before my knee just "went" at work and I couldnt walk I was taken to hospital,they thought I had damaged a tendon but when I told them about the problems I had been having with my other joints (which were actually fine that day) and the fatigue I had been having (which I had put down to pressure at work) they did blood tests, and the results of the blood tests got me referred to a Rheumy, I waited 13 weeks for an appointment during which time I deterioted quite a bit. I was diagnosed with Palindromic onset RA the day the Rheumy saw me. a few weeks after my 53rd birthday.
,but I am pretty sure I had had RA since age 47 when I first got the symptoms. lizzie0 -
I was officially diagonsed 3 years ago. But I knew I had problems with my hip for years. I had tried yoga and couldn't do some of the moves, the instructor told me that my pelvis locked and that was the problem. Plus I was also classed as a 'big stiffie' at school and no good at sports. I went to see a chiropractor about my neck and shoulder (still have problems with) and when he tried to move my hip couldn't he told me to get to docs and that started the ball rolling.
Eventually after a few disasterous consultations I got referred to a great consultant who was a 'young' hip specialist. He diagnosed that I had FAI in both hips which had resulted in OA. I have now had surgery twice in my right hip and have been told I will need a THR and have the same for the left to go through. Oh and I am 39.
anne0 -
annebr wrote:I was officially diagonsed 3 years ago. But I knew I had problems with my hip for years. I had tried yoga and couldn't do some of the moves, the instructor told me that my pelvis locked and that was the problem. Plus I was also classed as a 'big stiffie' at school and no good at sports. I went to see a chiropractor about my neck and shoulder (still have problems with) and when he tried to move my hip couldn't he told me to get to docs and that started the ball rolling.
Eventually after a few disasterous consultations I got referred to a great consultant who was a 'young' hip specialist. He diagnosed that I had FAI in both hips which had resulted in OA. I have now had surgery twice in my right hip and have been told I will need a THR and have the same for the left to go through. Oh and I am 39.
anne
Hi Anne
I'm glad that at last you are getting sorted. When my daughter was 14, she did a charity swim. It was in aid of the research into the artificial joints they use now. I was looking at a chart today at all the different artificial joints they use now.
joy0 -
I think I was about the same age as yourself when I my GP started taking me seriously, but even he messed it all up with the different dx's I got . When I think back though I think I was 35 when things started to gowrong like swollen fingers and sore necks and arms.lizzie7ne wrote:Hi in my late forties I started getting pains in my joints which would last for about 24 hours then would go for months (I put it down to my age!) Then at 53 it was happening every few weeks, and the pain would last for a three or four days,but it was still manageable, decided to make an appointment with GP and the day before my knee just "went" at work and I couldnt walk I was taken to hospital,they thought I had damaged a tendon but when I told them about the problems I had been having with my other joints (which were actually fine that day) and the fatigue I had been having (which I had put down to pressure at work) they did blood tests, and the results of the blood tests got me referred to a Rheumy, I waited 13 weeks for an appointment during which time I deterioted quite a bit. I was diagnosed with Palindromic onset RA the day the Rheumy saw me. a few weeks after my 53rd birthday.
,but I am pretty sure I had had RA since age 47 when I first got the symptoms. lizzie
Joy0 -
parky2 wrote:I was 23 (25 now) Hadnt been feeling 'well' for a few weeks. Went to visit my GP who took one look at my 'wonky' hands (which I hadnt really paid much attention to) and said he was 99% sure I have arthritis of some kind, possibly RA. Got some blood tests done and my lovely GP phoned me 48 hours later to say that my levels were very very high (didnt have a clue what he was talking about! lol) and he was referring me to a Rheumatologist but there would be an 8 week wait for an appointment. Three days later I got a phone call from hospital to ask me to come in the following day and well it all started from their! All very quick...........now the meds side of thing.......pity that hasnt been so quick! Lol!
Hello Parky.
Yes, getting meds side of things does take a long time to work out. Trying this and that. What meds are you taking?
You were certainly very young though You don't say how it affects you. Do you manage to go to work?
Why don't you pop into the cafe sometime. We have quite a laugh and we're crazy. Perhaps the bar would be better.
If you have nights you cannot sleep or whatever, you can always look on the forums and you will see who is on site at the bottom of the page.
Good luck0 -
madness1985 wrote:2008 aged 23 .. a few months after loosing my mum. its 2year anniversary this year!
Hello madness
It's sad losing your mother - for anyone it is. losing your mother is the worst. No doubt you have had it said to you many times "It will get better you know". It doesn't with me and my mother died in 1983 when I was 35. At least I was a bit older than yourself. I could never bring myself to go back to thehouse at first. It was difficult.
I was adopted mind you, but there was such a strong bond between us and now, as I go about daily living, I always have the feeling she is standing behind me, looking out for me. I find that a comfort somehow.
Perhaps you think this is a load of twaddle, I do go on a bit.
It must be difficult not to have your mother helping you at a time like this, but hope you are getting on with your meds OK. At least you can find plenty of friends on here and fellow sufferers who can help you.
Joy0 -
bertyboy wrote:i have had achy knees with no strength in them for a good few years hills were a no no some days , spent five years on building sites going up and down stairs with buckets of water and vacuums and various other things lots of climbing on and of kitchen tops lots of kneeling would get home and they would both be twice the size so finally thought it was time to go Dr the rest is history , but it is in most of the family in one form or another
Hello Berty. having a rest from the cafe. I think you enjoy it there.
I can remember back to the time when my Gran and my Mum use to stuff this orange woolly stuff under their clothes to keep the fibrositis from hurting so much. Gran taking her morning Epsom Salts saying that it helped her. All my great aunts suffered but they still managed to keep on knitting or making lace.
It really was a case of getting on with it in those days. Joy0 -
jaspercat wrote:Hi, my RA started with pains in my hands when I was 37, I saw the gp who put me on Naproxen, things didn't improve over a period of some months, I was then referred to a Rheumy who in one visit diagnosed RA, the one medication that worked caused me problems with my blood so I had to try something else, they are still struggling to find another medication that works love Jaspercatxx
Hi Jasper. I use to have the occasional swollen fingers from time to time when I was in my thirties. Never really thought about it until now. My hands use to puff up quite a lot and as I use to get "Chilblains" on my feet, thought it was probably that on my hands. Perhaps it was arthritis back then.
Joy0 -
Hi,
I was diagnosed in with PSA in 2005 age 28. But I'd had back problems for a few years (3 or 4?) and feet problems since I was in m late teens. My psoriasis started age 12 or 13. This is an interesting topic - I have been told that most people diagnosed with PSA it happens between 30 and 50 so maybe I'm just an early starter!
KT0 -
scottishlass wrote:I was diagnosed with RA,Dec 07.aged 45,now just over 2 years later im on an uncountable amount of tablets and 2 injections a week :roll: And im hanging on to my ward based staff nurses job by the skin of my teeth
With hindsight tho,im sure my symptoms first appeared aged 30 after my daughter was born,but as it was only my wrist that was affected,and it was very intermittent,GP thought it was probably pregnancy related carpal tunnel syndrome then.
Hello Scottishlass. See you were awake well into the night last night. Does the pain keep you awake? It does seem like you are endlessly pill popping and I bet most of those are to keep you going at work. You are very brave doing the job that you do. It gives your life some meaning I'm sure and I can imagine that it would be such a wrench to let go of it. I tend to try and think back to all the times that I had twinges and times off work for flu when it was possibly early flare ups with arthritis and PMR. I can remember joints seizing up years ago now. With such busy lives we tended to try and cope but then, wham, one day your body jolts you into believing that something is dreadfully wrong. Unfortunately, some of the replies on this thread are from very young people. Something has got to be done to bring a cure to these sufferrs.
Anyway, if you are awake another time why don't you join us on Chit Chat and have cream bun and coffee. You don't put any calories on with these kind. Joy0 -
Hi Lynn
Yes I think we should celebrate it, why not, it has become a very close friend
How do we go about celebrating. Can't really drink much, could open a bottle of champagne. Is that allowed do you think?
Joy0 -
I had problems with my hip from when I was 16, never told anybody, the doctors say my hip were out of place when I was born , it all came to ahead in 2007 when I fainted and could not get up , Hazel made an appointment to see a gp the next day , he sent me to physio , they sent me striaght up to hospital for x rays were oa was dignosed.
Mike R & Hazel & Mike JRMike R & Hazel & MikeJR0 -
barbara12 wrote:What a good question Joy,
I thought i had only had OA for around 2 years, till I went back over my medical records, and realised that i had problems in my 20s. my GP said that this can somtimes happen, and you can get a reprive, then it shows it ugly head again
Barbara x
That's good that we can now go over our medical records. Once upon time we were all left in ignorance.0 -
parky2 wrote:I was 23 (25 now) Hadnt been feeling 'well' for a few weeks. Went to visit my GP who took one look at my 'wonky' hands (which I hadnt really paid much attention to) and said he was 99% sure I have arthritis of some kind, possibly RA. Got some blood tests done and my lovely GP phoned me 48 hours later to say that my levels were very very high (didnt have a clue what he was talking about! lol) and he was referring me to a Rheumatologist but there would be an 8 week wait for an appointment. Three days later I got a phone call from hospital to ask me to come in the following day and well it all started from their! All very quick...........now the meds side of thing.......pity that hasnt been so quick! Lol!
What do you mean the med side of it? Trying to get the right sort that suit you. It does take a time and you will always get some side affects.
What meds are you on? I am on Methotrexate injections and Tramadol Slow Rlease for the apin. I also take Pregabelin and a small care takers dose of sterods for another complaint I have.
I am having Chiropractitioner sessions for my OA and bursiitis.
I don't think I will ever be pain free but I am learning to live with it all good luck0 -
jenzie06 wrote:I was 15yrs and had really painful feet every morning then woke up with a very sore and swollen finger. Thought I'd broken in my finger in my sleep. Eventually I had a RA and Fibro diagnosis after about 5yrs.
Hello Jenzie06.
What an awfully young age to start it. Must take a lot to come to terms with.
Not good that it took so long to dx it all. What meds are you on?
My husband has very sore feet when he wakes up each morning and finds it hard to walk. He's nearly 70 though and has diabetis. You have to be careful with your feet then. I was wondering though if he might have RA. Would be nice to know what ishappening and he is seeing a podiatrist tomorrow, so she might know.0 -
princess01 wrote:I started having pains in my hands and stiff feet when I was about 18/19. I got diagnosed at 21 with inflammatory arthritis. They're still not sure what type, probably RA.
There are so many types of arthritis. Have you been referred to a rheumatologist at the hospital. You need to be, especially so young.; You need to make sure you don't cause any joint damage if you have RA. See you gp and get a referral justin case you haven't done so yet.0 -
Hi
I was 42 when I really started to notice it, although I didn't know what it was for another year. However, I think I had been showing signs and feeling knackered for about 6 years before that.
B x0 -
An interesting question! I first went to the doctor when I was 25, he said I had a spot of OA, but thinking about it I had pains in my earlier years, my mother used to say they were growing pains.....
So, at 54, OA involves all my body except my upper spine. But why, will never be answered, I suspect.
8) Its a grin, honest!0
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