Update from Fester
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fester
Member Posts: 98
Went to see physio yesterday for the first time after the best part of 18 years or more. Started chatting to me about my health and general family life, started crying again! then she told me my mri results for my neck had arrived, i thought she meant my lung function test results (next stage is now a ct scan) for some reason (strange side effect of gabapentin that memory loss lol).
Anyway short of it is she will not touch my neck until she has seen my consultant as she is extremely worried about the results and that i'm to wear my collar all the time even in bed. Turns out from what little she told me my A.S has caused quite abit of damage which apparently almost looks like a fracture on my neck xrays and mri, don't know really until i go before the man which i suspect will be very soon by the sound of it.
She gave me some breathing exercises to try and increase my ribcage expansion, turns out i'm not getting enough oxygen into my blood stream which is probably why i'm tired out after just tidying up or cooking.
Basically at the moment i'm a mess she asked me why i stopped doing my exercises over the years and i told the truth that i became complacent and just felt nobody cared about my condition especially when i was discharged from rheumy consult 17 years ago because i was on ibruprofen which then later damaged my stomach with long term usage.
So lesson learned the hard way now paying for my mistake i suppose even Gill tells me its my own fault for not doing something earlier though she's done nothing but cry since i told her yesterday as she's thinking the worst and that i may need neck surgury which is a good possibility.
more news as it comes, watch this space, yea i'm trying to stay upbeat even though i scared stiff at the thought of possibly more surgury :roll:
Steve.
Anyway short of it is she will not touch my neck until she has seen my consultant as she is extremely worried about the results and that i'm to wear my collar all the time even in bed. Turns out from what little she told me my A.S has caused quite abit of damage which apparently almost looks like a fracture on my neck xrays and mri, don't know really until i go before the man which i suspect will be very soon by the sound of it.
She gave me some breathing exercises to try and increase my ribcage expansion, turns out i'm not getting enough oxygen into my blood stream which is probably why i'm tired out after just tidying up or cooking.
Basically at the moment i'm a mess she asked me why i stopped doing my exercises over the years and i told the truth that i became complacent and just felt nobody cared about my condition especially when i was discharged from rheumy consult 17 years ago because i was on ibruprofen which then later damaged my stomach with long term usage.
So lesson learned the hard way now paying for my mistake i suppose even Gill tells me its my own fault for not doing something earlier though she's done nothing but cry since i told her yesterday as she's thinking the worst and that i may need neck surgury which is a good possibility.
more news as it comes, watch this space, yea i'm trying to stay upbeat even though i scared stiff at the thought of possibly more surgury :roll:
Steve.
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Comments
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Hi Steve
Gosh what a shock for you :shock:
I hope you get your apt with the man who knows as soon as possible :shock:
Poor Gill too - sounds as though she is really worried and now you have to reassure her too
If I were you I'd get on the phone and try to see when you will be seen :shock:
you take care and keepo the collar on...oh yes...and don't forget to breathe :shock:
Love
Toni xx0 -
They should have taken more care of you over the years.I understand how you felt being discharged all those years ago.Anyway now you have to start fixing these things, today is a new day and you have your lovely wife to think of too....
Elizabeth xNever be bullied into silence.
Never allow yourself to be made a victim.
Accept no ones definition of your life
Define yourself........
Harvey Fierstein0
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