I received a copy of the letter from the hospital to my GP following my 6 month appointment on Feb 5th with Rambo the Registrar. He described me a 'a delightful lady' so I think there is a bit of buttering up going on there! The best bit though is the second paragraph which says :On examination today she has no swollen or tender joints. She had a DAS28 score of 2.35 which indicates disease remission. Review of her blood tests show her white cell count and liver function tests have remained stable. She is doing very well and remains in remission on the current medication so I have not changed them today.
I am posting this for anyone who is in despair and at the beginning of the road in diagnosing and managing their RA, which is where I was in April 2009. I was in pain, shock and a state of high anxiety about what would happen to me now I had this disease and terrified of the medications I was being prescribed to deal with it (Methotrexate and hydroxychloraquine). After getting my head round it all and accepting that it was real, I decided the only thing I could do was to be optimistic and positive that one day I would feel better than I did at that moment. Each day I would wake up and compare myself to the day before and mentally note each improvement, however slight, which helped me remain optimistic. Each time I found that I could again do something I had had to stop doing because of the RA, such as walking to work or cycling to a hospital appointment or spending a day out and about with my grandson without ending up limping at the end of it I would rejoice at the prospect of what the next day/week would bring in terms of further improvment.
I have been supported by people on this site in so many ways and that has made a huge difference to my attitude to managing my RA and I thank you all. I hope I can offer support to others so that they too can stay strong in the face of what can seem like overwhelming despair at times and help others to feel that there is hope for better times ahead.
Wishing you all love and remission - long may it last!