I have PA which affects nearly all of my joints, I also have OA in my spine and neck and to cut a long story short i have been unable to tolerate Methotrexate and now my Leflunomide has had to be stopped. Both meds gave me abdominal pain, nausea,extremely bad head, overwhelming tiredness to the point where i could only sit in the chair and do nothing and generally made me feel like a zombie.
I also (unsurprisingly ) didn`t feel any benefit pain wise, from taking either.
At present i`m only taking pain killers and anti`inflammatories and although i feel more like myself, i know i need something else in order to damp down this b horrible disease. After 14 months of this i am still in the same position and really fed up.
I`ve just been advised that my DLA application which had been refused and gone to appeal has now been changed in my favour and i have got the lowest care component and nothing for mobility. I`m afraid to appeal again in case they take it off me.
I am seeing the R Consultant on Tuesday and she is going to tell me where i go from here. Has anyone any advice about what questions i should be asking re treatment ? :idea: