DLA

controversial
controversial Member Posts: 24
edited 11. Mar 2010, 11:24 in Living with Arthritis archive
Hi,
I sent off to appeal my DLA rejection nearly three weeks ago, and haven't yet heard back, so I am going to involve my MP.

Today I've recieved a letter from my doctor for university, recommending I can work from home, due to 'immobility, and joint pain'.

Is it worth forwarding that to DLA, and my MP?

I'm feeling so lost with this. I spent all day crying...My OH gets no help to look after me, and we are struggling financially, as I can't do anything. I'm worse then I've ever been, and although the doctor did write back, he didn't have much to say, only an apology and a recommendation for a phone appointment that I haven't yet managed to get!

I'd really appreciate some support, if anyone is around? Sorry to be a pain...

Comments

  • angel1
    angel1 Bots Posts: 1,464
    edited 30. Nov -1, 00:00
    You are not a pain, that title is reserved for Arthur!

    I am so sorry that you are suffering on so many levels. It may help you to know that you are not alone. I hope so.

    I only know what I read on here about DLA, but I would imagine that anything that you feel supports your claim, should be sent off.

    Lots of people seem to get the best support from Citizens Advice, and maybe you could make an appointment to see them

    Keep posting on here, and you will, at least, find lots of support. Also, you may want to call the Helpline - number top right hand corner........I wish you all the very best......Ange.
  • dorcas
    dorcas Member Posts: 3,516
    edited 30. Nov -1, 00:00
    There's always someone ready to listen here....and don't apologise for posting. You are not a pain :!: but going through a really tough time and needing support, which is really understandable.

    As Ange said get in touch with CAB....to help not only with the DLA appeal but maybe talk through other financial pressures you're having just now because of arther. Perhaps to look at other benefits?

    Write to your MP or email him/ her..which is quicker (at least that's what I've found) and explain the difficulties you're having. Any support for the DLA appeal will be useful.

    If you are finding it impossible to phone the doc could your OH go down to the surgery and ask for a house visit? you should not have to suffer pain on top of everything else.

    I'm so sorry you and your OH are having such a lot to deal with....keep posting. we are here for you. Irisx
  • chris7
    chris7 Bots Posts: 2,696
    edited 30. Nov -1, 00:00
    Hi

    So sorry you are having such a bad time. I can't advise on DLA but do know how much stress and grief it has caused so many people on here. You really do have my sympathy and hugs ((( ))). It must be so frustrating to feel you are in such a battle but try not to feel alone with it. Those that can help will offer practical advise when they can so do keep posting how things are.

    Just wanted to call in here to acknowledge your post and add my hugs and best wishes. I really do hope tomorrow is a brighter day for you.

    Chris
  • jenzie06
    jenzie06 Member Posts: 708
    edited 30. Nov -1, 00:00
    Hey,
    Sorry you are having a crappy time at the moment. Def email your MP and contact CAB. Trying to claim anything at the minute is difficult and stressful. Have you thought about contacting your local social services department? Under the adult social care section of ss they are obliged to assess anyone who is considered 'disabled'. There might be something they can offer to help? They can also assess your OH as a 'carer' (I hate that word) to see if they can offer him some relief and support. I've just started the process but its worth a look. Oh, and do your research before you ring as the council 'helpline' is not always that great if you get someone who doesn't know what they are talking about. Might be worth a try?
    Keep your chin up chuck!
    Jen
  • bubbles
    bubbles Member Posts: 6,508
    edited 30. Nov -1, 00:00
    Hi
    I know exactly what you are going through, the DLA are a law unto themselves, as I know only too well. I am on my fourth go now, at getting them to understand that some illnesses are progressive, long term and that care needs increase, which means the partner / carer requires some sort of recognition as well as the person who is disabled.

    The DLA need to know how much time is spent on your care needs, day and night, if you are safe to prepare and cook a main meal for yourself, if you are at risk of danger to yourself and others. How far you can walk without being in pain or discomfort. It is based mainly on the amount of care and supervision that you require, rather than the illness alone.

    Any supporting evidence that you have, is worth sending to them, asking for it to be taken into account, with your request for a review. Write details of all aspects of care that you need and how long it takes each time you need that care. Any Drs letters should be included too, ask your GP to write a letter, ask the Consultant again, they should be understanding enough to know that the battle with the DWP can be protracted and very distressing.

    The carers organisation is very supportive, www.carers.org will give you an idea of who can help in your area. They will visit you in your own home and also get Welfare Rights involved, to support your case and offer advice.

    Don't give up though. I know I did, for about a year, thinking there was nothing else I could do, but no, I will not give up and neither must you. Tell them as it is, you deserve the help. If we have to to to appeal then we will, we can go together :lol: United we stand, well, sway and hobble.
    XXX Big hugs,
    Bubbles.
    XX Aidan (still known as Bubbles).