ACTEMRA...anyone??!

sarsoura_a

li am 22 years old..i have RA(still disease) from about 10 years, i have tried almost everything..metothrexate(didn't well work),arava(had a baaad effect on me),remicade(no improve),humira(had it about 4 times but had lots of problems with purchasing it and without good effects also),i am taking cortancyl(prednisone) from about 10 years with dose of 5 mg/day,it's not helping but better than nothing, and it has lots of bad effects on my blood test last time,so lately i tried actemra and i had allergy on it( i had red rach on my neck and face with swollen eyes)so i stopped it and took an anti-allergic medicine and didn't continue the shot, although i have been really hoping from this drug because i heard it's really different from all the others, anyway i don't know if am going to have it again or no,still waiting my doc to decide....did anyone tried it and had allergic reactions? really need help with people with experiences.? :roll:

skezier

Hi Sarsoura,

I can't help you but just wanted to say welcome to the forum, they are a nice lot here. I wonder if talking to the helpline folk would help you? They are very good and the number is at the top of the page. Its all so hard while they try and find something to help you and I do hope they will find something that works for you soon. take care and nice to meet you, Cris

frogmorton

Hi Sarsoura

Sounds like you have been really unlucky with your meds.

Like Cris I have no experience of this medication - so cant help much.

I will offer you my support though and hope that the doc has some ideas to help.

It's awful when you're banking on something working and it does the exact opposite

Sympathy and love

Toni xx

sarsoura_a

skezier wrote:

Hi Sarsoura,

I can't help you but just wanted to say welcome to the forum, they are a nice lot here. I wonder if talking to the helpline folk would help you? They are very good and the number is at the top of the page. Its all so hard while they try and find something to help you and I do hope they will find something that works for you soon. take care and nice to meet you, Cris

10x

sarsoura_a

frogmorton wrote:

Hi Sarsoura

Sounds like you have been really unlucky with your meds.

Like Cris I have no experience of this medication - so cant help much.

I will offer you my support though and hope that the doc has some ideas to help.

It's awful when you're banking on something working and it does the exact opposite

Sympathy and love

Toni xx

yeah reallyyyy such a bad luck!! hahaha still hoping anyways 10x