what a day

lucymum
lucymum Member Posts: 113
edited 31. Mar 2010, 15:31 in My Child Has Arthritis
well we went to the clinic today and Lucy's flare is worse, she isas bad as she was when they first saw her, withdrawn and overall ill!!!

:(

from 12 they have been talking about keeping her in to do iv antibiotics as the mtx is not gonna work for at least another 4-6 weeks!!!

well i was running trying to ring everyone trying to get cover for my other 2 as hubby was on a double and is tomorrow and no one was answering their phones!!!!!!!! ahhhhhhhhh

They allowed us to go home at 2 to sort out and when i rang at 3:30 they had decided to do Lucy a higher does over 2 days as an outpatient rather than 3 days as an inpatient, so that childcare was not as much an issue!!!!
I love them, they are amazing and have bent over backwards accomodating us, especially as Lucy did not have an appointment for another 4 weeks and only got seen on the offchance!!!
I just hpe it helps, at the mo it feels like we r back to square one!!! x x x

I hope u r all well and ur kids have a fit and well easter holl
HUGS TO U ALL X X X X X