back to the gp's tomorow

jordansmum

hi guy's well after a day where i have done nothing but cry because even the thought of moving hurts so much iv'e decided that even though it's only been 1 week since seeing the ortho's and having my 3rd injection i can not stand anymore i have had it i can hardly move so i'm off to the doctors tomorow even though the ortho's said 6 weeks i cannot stand it anymore. but i just don't know how to describe the pain as it is right the way across the joint it's in the groin then the pain moves and feel's like bone ripping through flesh in the middle of the joint then the outer of the joint is so painful to touch i just don't know what to do with myself sorry to moan but somehow it helps to talk to you guys.
jenny

speedalong

Hi Jenny - that sounds terrible. I'm glad you are going to the docs tomorrow - you definitely cannot carry on like that.

Tell the doc exactly what you told us ie

i cannot stand it anymore. .....

the pain as it is right the way across the joint it's in the groin then the pain moves and feel's like bone ripping through flesh in the middle of the joint then the outer of the joint is so painful to touch i just don't know what to do with myself

That is a very vivid and clear description of what you feel and how it is affecting you.

sorry to moan but somehow it helps to talk to you guys.

and that is what the forum is for. So don't apologise!!

hope you manage a few hours sleep.
Good luck tomorrow. Tell it as it is!!

Speedalong

elnafinn

Dear Jenny,

Please, please do not apologise - no one on here should feel they should say sorry, when in excrutiating pain.

You say to your gp tomorrow what you have said in your posting. It sounds horrenduous. Please do not back down, take what you have written to us, to your gp. Show him, if you cannot read it out.
The fact that you have only waited one week when the consultant said give it 6 weeks, speaks volumes.

You have a son diagnosed with arthritis and other children too. You have so much on your plate. I so feel for you.

Please try to be firm at the appointment, even if you cry - that does not matter one jot. Just get it across to the medic how it is for you at this time..... please.

I wish you well,

Luv
Elna x

jordansmum

oh thanks guy's i feel soooo much better after talking to you all i wish you were my gp but alas he will see my face here me say ''it's my hip again '' and then just write another prescription or tell me it's to soon but hey we will see god bless you all

jenny

dorcas

Hi Jenny,

I am so sorry you are still in such severe pain......you are quite right going in to see the doc tomorrow as waiting over the weekend with the level of pain you're experiencing would be unthinkable

Be prepared for the appointment and as Elna and speedalong have both so helpfully said ...write it all down (include also the stresses and worry you've been dealing with in the family and your own health) and if easier for you do it as a list and hand it over to the doc!

Is it possible to have someone go with you tomorrow for moral support? it can be helpful to have someone there who can speak up if you leave anything out. :?:

I am concerned that you maybe don't have the chance to rest with all the responsibilities you have.? rest is also an important part of any arther treatment especially during a flare, and I have not read anywhere that you have been able to rest up from before and after your injection?

Don't see crying as a weakness...it isn't. It keeps us balanced when overwhelmed and I personally feel it helps when pain is becoming too severe.

Your doc may suggest that more time is needed for the steroid to work...but ....not everyone does benefit from injections and with your level of pain it is not acceptable 'to wait and see'. I hope this is not what is suggested (and I'm OTT) but am mentioning it so that if need be you're prepared to defend your corner and insist on getting help.

Sending you lots of love and strength for tomorrow. We really do care about you, Iris x

elnafinn

Dear Jenny

As Iris says, "defend your corner" if the gp starts getting on his high horse. You are a special and important person to many and whether/if the steroid takes time to work, you cannot carry on in the meantime suffering like you are at present. If you cry it does not matter. Perhaps that will make the gp sit up and take note.

Imagine we are all behind you at your appointment tomorrow giving you courage.

Luv
Elna x((()))

dachshund

Hi Jenny.
i feel so sorry for you. you dont need all that pain
you have enough pain and every day things to put up with.
i hope everything is sorted out for you and you are helped.
good luck. joan xx

maria09

Hope it went well at GPs
If you cant moan on here where can you
We all know what its like to be in so much pain
look after yourself
Love Maria

jordansmum

hi guy's thankyou all for your kind messages of support it really has helped me today. I went to the gp and he took one look at me and said'' i don't think the injections worked has it '' i then burst into tears and told him everything :shock: it is most unlike me but i am glad i did he is going to refer me back to the ortho's as soon as he has had the report from them but in the mean time has changed my pain relief to co-dydramol.You are right about having rest though but it is impossible i do not drive so walking for me or waiting for hubby to come home is my only option not easy when my son with asbergers syndrome is so demanding and because it now takes me forever to get anywhere it's like a merry go round which i get off at the kids bed time have a bath then try to get some sleep myself but hey it won't be forever i'm sure. Gosh reading this back makes me look a right one :oops: :shock: .Must get the boy's bathed ready for bed speak later.
jenny

speedalong

Hi Jenny,
have you thought about hiring a mobility scooter?? Even if you only rented one for a few weeks to enable yourself some recuperation time. I have tried them out this holiday at various venues and it has meant I can take S (has ASD) for longer, faster walks and still have energy (that is probably pushing it - but a bit of reserve) left to cope with the routine care stuff afterwards.

I've been doing my homework to see if I could have one at home for a few months and then can take S for "walks" in the evening.

Do you have a garden and trampoline and things like that to help wear him out (I seem to remember you saying something about finding supervising him exhausting in the garden ...??) Boys, especially boys with ASD are like labradors - they need regular exercise ... no mean feat for us with compromised mobility.

Speedalong

dorcas

Hi Jenny,

I'm glad that the appointment went well and that your doc is being so supportive and has given you something to help with the pain until you see the ortho again.

It would be good if you were able to get more rest but it isn't easy with very active kids to look after!

Hope you have a better weekend with the meds keeping the pain tolerable and can may be sneak the odd hour to rest.

let us know when you get your next appointment. Iris x

tkachev

jordansmum wrote:

hi guy's thankyou all for your kind messages of support it really has helped me today. I went to the gp and he took one look at me and said'' i don't think the injections worked has it '' i then burst into tears and told him everything :shock: it is most unlike me but i am glad i did he is going to refer me back to the ortho's as soon as he has had the report from them but in the mean time has changed my pain relief to co-dydramol.You are right about having rest though but it is impossible i do not drive so walking for me or waiting for hubby to come home is my only option not easy when my son with asbergers syndrome is so demanding and because it now takes me forever to get anywhere it's like a merry go round which i get off at the kids bed time have a bath then try to get some sleep myself but hey it won't be forever i'm sure. Gosh reading this back makes me look a right one :oops: :shock: .Must get the boy's bathed ready for bed speak later.
jenny

Hi Jenny,
i didnt realise you had a son with aspergers. i have 2 with ASD. A few years ago I was absolutely worn out supervising my son in the garden.I had to sit for hours trying to calm him down when I really wanted and needed to collapse in bed,and then hobble after him was so painful. I dread each summer although each year has got easier. My Oh has to do all the trips out as son is mad on tube trains, and thankfully he likes to do this(but hates housework!).So I really understand where you ar coming from. As speedalong knows he has to sleep in my bed cos I cannot do he supervising stuff. Older son more aspergers and has become more independent thankfully. But it is vey hard work and you need to concentate to getting better in order to cope.Gosh it is all coming back to me but yes IT DOES GET BETTER.
Best wishes
Elizabeth