sulphasalazine

psyart

Hi - have been to see the Rhummy nurse - wish I had gone before as she was brill!! All in all she feels that I am being too hard on myself!!! feels that I am depressed!! - I have accepted that this is probably true!!!! and also that the methx is probably not agreeing with me!! they have cut my dose down to 10mg for a few weeks but she also asked how I felt about going on sulphasalazine, but I said the only thing I would be worried about is if the side effects were the same as methatrexate??

Any advice on sulphasalzine - how does it seem to affect anyone who takes it??

Have got a few things to think about now - but am glad I went!! thanks to everyone who has been advicing me over the last few times I have written on here!! xxxxxxxxx

Louise xx

speedalong

Glad you had a successful appointment with rhumy nurse. Sorry don't know anything about RA drugs, but sure someone who does will post soon.

Speedalong

dorcas

Hi Louise

so glad your rheummy nurse appointment went so well
sounds like she knew what she was doing and has a good handle on what meds you need to be taking.

what a difference it makes having proper support and advice.

I was on sulphasalazine but it was years ago and I wasn't taking it in combo with Mtx so don't think I'd be any use with advice. x :? I stopped taking it as it wasn't helping my PA.

hope someone else will be able to help with more info......

Iris x

Wonkylegs

HI,

glad your nurse was helpful.

I used to take Sulphasalazine until it stopped working for me and then I went onto MTX.

The main problems I had with Sulpha were fairly mild ......I tended to have a really dry mouth all the time, and carried water around with me ..... and the drug does have a tendency to turn your wee yellow:shock: :roll: :roll: but I do know that some people have had more negative results ... I think it really varies from person to person. I never had any nausea with Sulpha unlike the MTX.

hope that helps

good luck & I do hope it works for you.
hugs
WOnky

skezier

Hi Louise,

Gad she was as nice as she seems More glad that she is helping you there as well. Its not too surprising your down at the mo, and well I was also on sulfa for 8 months. I had to come off it cus I got a major reaction to it. Now on mtx and for me that's a breeze, so far See we are all different and it might really suit you. Fingers crossed it does and that it really helps you as well. Luv and a ((( ))) Cris x

wibberley

Hi Louise,

I have been on sulpha for a few months now, and so far so good. For me, I felt the benefits quite quickly and have been able to drop my celebrex anti-inflams.

Had a bit of nausea to begin with but that soon passed, and I do feel a bit iffy if I let myself become thirsty, but nothing major........yet!

And yes, my wee is daygo-yellow too!

Lois x

munglebungle

Hi
I am on Mtx(injection) and Sulfasalzine, i didnt have any side effects on Sulfasalazine. I was on Methotrexate tablets until recently but had quite a few side affects but now things are good. Hope this helps.

psyart

thanks guys for replies - will talk to nurse again or doctor as due to go back in June! I have had quite a good weekend as on 10ml of methx instead of 15ml, so that is good!!!! a lot of what the nurse said made sense - sometimes just having someone put your fears and feelings into words makes it seem better??!!!!!

this lovely weather helps as well - lovely to feel the warm sun!!!!

hope everyone is doing ok - hugs((())) to you all

Louise xx

raybee

Hi Louise

I came off Meths in Feb and am now taking sulfasalazine. So far so good. I don't have that awful nausea, headache and general'ill' feeling I had on the meths. I feel much more like me again. Only been taking it for about 6 weeks, but I think there is an improvement. Wee is bright yellow!
I've felt much better since the weather has improved? Anyone else ? I still have pain but not so much.

I( have psoriatic arthritis)
Good luck
Rachel

psyart

raybee wrote:

Hi Louise

I came off Meths in Feb and am now taking sulfasalazine. So far so good. I don't have that awful nausea, headache and general'ill' feeling I had on the meths. I feel much more like me again. Only been taking it for about 6 weeks, but I think there is an improvement. Wee is bright yellow!
I've felt much better since the weather has improved? Anyone else ? I still have pain but not so much.

I( have psoriatic arthritis)
Good luck
Rachel

thanks Rachel - sounds just right for you!! would love to be taking something that doesnt have all those nasty side effects!!! will think about it really hard and talk to doctor again! I have PA aswell, and it is better than it was last year but side effects get me down!!!
Louise xx

dreamdaisy

Hi Psyart. I have been on sulph for ages but I still remember the initial problem I had - it caused quite substantial bruising to my legs for the first six weeks or so, then they faded, never to return! In addition to the fluorescent wee, it can also stain soft contact lenses, so if you wear those be aware. I guess that could have a deleterious effect on your eyes, hence the warning. Good luck with it. Regards, Dreamdaisy. (On its plus side, you're allowed alcohol!)