Is it just me??

bailey27

Hi

Had a drs appoitnemnt this morning as I wanted clarification as to what is going on with referance to the rheumy dept and my cancelled orthopeadic apt - aswell as my rheumy telling me i needed to stop taking my pred so it is more visible on the scan.
I have reduced my red from 15mg to 10mg adn my hands are horrible, all the knuckles have swllen up so much they are bleeding. Went to see my gp and told him the effect the reduction pred was doing, he didnt even look at my hands and just said to put the dose back up until 2 weeks before the scan.

I know people say it ut I really do feel just like number nd that I am invisible It makes me want to stand in front of them and shout '' I human, In pain please Help me!!'''

From the gps to the consultant I often feel like burden on them and that they dont care.

It really gets me down as I feel I am not making any progress - anyone else feel like this??

skezier

Hi Bailey,

Sorry its all a bit up in the air for you. A ((( ))) and a hope it soon gets sorted.

Lie you I feel like a number and a niecience at times but thankfully I have managed (after 12 years of bad) to change doctors and well I do have an amazingly good rumo and pain clinic consultant but the other..... I don't know what the cure is but sometimes I feel like writing to them just to say how bad they have made me feel..... Never have though. Again I hope they will soon sort you out. Cris x

elnafinn

Dear Bailey

First of all, it is not just you. You are not alone with feeling like a number, but you have to start making a noise and not just taking it all. I appreciate this is difficult when you feel so unwell but when you are at these appointments that is your time with the medic and you should come away not feeling it was all a waste of time. You help to pay their salaries, remember that.

I really feel that you are going and have been going through such a bad patch for so long, that you have to begin, and I have said this to you before , to become more authorative, if you possibly can. The medics do get into this number mode and I suppose they have to, to a certain extent, or they would soon crack up. But sometimes they take it too far. You have to say to them, what you are saying to us, "I am a person, in terrible, pain, please help me, I am desperate." Surely the person, to whom you addressed this to, would sit up and take note. How could they not. Why not try it, you are not being impolite, you are stating an obvious fact.

Luv
Elna x