sulfasalazine

handsy
handsy Member Posts: 209
edited 4. May 2010, 17:16 in Living with Arthritis archive
Hi to everyone, A quick question I know a lot of you take this I have just been put on this and any advice or expirience's would be a great help.

Thanks in advance :?:

Comments

  • wibberley
    wibberley Member Posts: 421
    edited 30. Nov -0001, 00:00
    Hi Handsy,

    I've been on it since January and it's been great for me....so far! Had a touch of nausea in the first month but that's now gone. It's important to drink lots of water to prevent kidney stones and you may have noticed that your wee is now a shoking yellow colour.....that's normal!

    I will keep my fingers crossed that you see good results with it,

    Lois x
  • bailey27
    bailey27 Member Posts: 689
    edited 30. Nov -0001, 00:00
    Been on it since November, dont feel any different for taking it. Hoping to start somehting different next month when I see the rheumatologist,.
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -0001, 00:00
    Been on it for years as part of my treatment for PA. It keeps the P at bay, not that I ever had it badly. It does make your wee a strange and awful colour - it can also stain soft contact lenses and initally may cause bruising. I bruised wonderfully when I first started it in 2001. That stopped within a few weeks. Good luck with it. Dreamdaisy
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • tillytop
    tillytop Member Posts: 3,460
    edited 30. Nov -0001, 00:00
    handsy wrote:
    Hi to everyone, A quick question I know a lot of you take this I have just been put on this and any advice or expirience's would be a great help.

    Thanks in advance :?:

    Hi Handsy
    I took it for about 12 years. I had very bad headaches and nausea for the first few weeks but that disappeared once my body got used to it and I had no probs with it after that. Hope it works for you! Tillyx
  • frogmorton
    frogmorton Member Posts: 30,325
    edited 30. Nov -0001, 00:00
    Hi John

    No experience of this one - just wanted to say hi as I havent seen you for a bit :)

    Hope all is well with you

    Love

    Toni xx
  • tkachev
    tkachev Member Posts: 8,332
    edited 30. Nov -0001, 00:00
    Hi Handsy,

    Had these for years. They worked really well for 3 months then didnt seem to make any difference. I am still taking them though as I understand they work in combination with MTX and Humira.
    when I had my THR last July I had to increase the dose to 3 tablets twice a day as had to come off the other two(due to lowered immunity risks associated with the operation).

    Elizabeth
    Never be bullied into silence.
    Never allow yourself to be made a victim.
    Accept no ones definition of your life

    Define yourself........

    Harvey Fierstein
  • louiserichard
    louiserichard Member Posts: 52
    edited 30. Nov -0001, 00:00
    I am on this drug - mine doesn't seem to be working yet thou.

    I'm currently on 4x500mg a day (2000mg a day in total).

    What sort of dose is everyone else taking? and how long did you find it took to start working?
  • bailey27
    bailey27 Member Posts: 689
    edited 30. Nov -0001, 00:00
    Hi
    I started off on a lower dose and increased weekly. I am now taking 3 tablets twice a day but still dont feel any different for being on it. My GP told me that this is the first line of DMARDs they use as it has less side effects than the others. Hoping to try something different when I see the rhueumy next a s I hate taking tablets especially when they are not helping.
  • clarelouise1
    clarelouise1 Member Posts: 43
    edited 30. Nov -0001, 00:00
    Hi, I've been on this for a few months and they have put me up to 6 tablets a day but its not keeping mine under control. It makes my sweat orangey/yellow and my wee bright yellow but apart from that and a bit of nausea it hasn't give me any side effects. Hope it works for you :P
  • louiserichard
    louiserichard Member Posts: 52
    edited 30. Nov -0001, 00:00
    Hi, I've been on this for a few months and they have put me up to 6 tablets a day but its not keeping mine under control. It makes my sweat orangey/yellow and my wee bright yellow but apart from that and a bit of nausea it hasn't give me any side effects. Hope it works for you :P

    Ooooh yes I have bright day glow yellow wee - its grose isn't it. Luckily haven't had any other side effects thou so I guess this one isn't so bad!
  • robertls
    robertls Member Posts: 2,304
    edited 30. Nov -0001, 00:00
    I've been to see my Rhummy today, and she's decided to add Sulphasalazine to my MTX..........and other 'bits'.............

    So bright yellow pee ?????

    The excitement of Arthur life eh???

    Rob x
    Roba045.gif
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -0001, 00:00
    Oh it just gets better and better! DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • deborahjane
    deborahjane Member Posts: 120
    edited 30. Nov -0001, 00:00
    i have been on this for 10 years but also on methotrexate for 8 years so don,t know which one is working the best really,the only side effect i have is comming out in rash when out in sun too long.which isn,t very often as we dont have much sun. :P