Really good rheumy appointment

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theresa4
theresa4 Non-active member Posts: 696
edited 7. May 2010, 07:48 in Living with Arthritis archive
As I went to my rheumy appointment today very nervous after my rheumy appointment from hell last month. This was such a different appointment. The doc spent 45 minutes with me, letting me speak, asking about the impact on my life, asking my opinion on whether the biologic Im on works for me, It was lovely (ok I have RA and am in pain etc.. but I so appreciated the gentleness and thoroughness of this doc). She was suprised when I made a point of thanking her for everything when I left. I am now changing to another drug shortly so fingers crossed that will work., and I can have a steroid next month before my grandchild is born which should last for my holiday the month after. I dont feel any better physically but at least I feel like Ive been listened to.

Love to all
Theresa
There are many things in life that will catch your eye, but only a few will catch your heart...pursue those. --Michael Nolan



Theresa xxx

Comments

  • dreamdaisy
    dreamdaisy Non-active member Posts: 31,520
    edited 30. Nov -0001, 00:00
    It makes such a difference doesn't it? I'm glad that today went better for you, let's hope they're all like that in the future. Is she a new doctor to you? Can you stay with her? Dreamdaisy
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • theresa4
    theresa4 Non-active member Posts: 696
    edited 30. Nov -0001, 00:00
    dreamdaisy wrote:
    It makes such a difference doesn't it? I'm glad that today went better for you, let's hope they're all like that in the future. Is she a new doctor to you? Can you stay with her? Dreamdaisy

    No unfortunately its just the luck of the draw. She is one of the people under my consultant. fingers crossed I get lucky again.

    theresa x
    There are many things in life that will catch your eye, but only a few will catch your heart...pursue those. --Michael Nolan



    Theresa xxx
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -0001, 00:00
    Hi Theresa
    I am so glad this appointment went so well for you, it really does make a difference, when you get treated with humanity.
    I do hope things continue to improve for you, I have my first rheumy appointment in June, and I am not sure what to expect.
    You take care
    Love
    Barbara xx
    Love
    Barbara
  • ironic
    ironic Non-active member Posts: 2,361
    edited 30. Nov -0001, 00:00
    Hi There, I was so pleased you had a good appt this time. It makes all the difference when you can talk to someone who actually listens to what you have to say. Hope the new meds work for you. keep us posted. Lv, Ix
  • theresa4
    theresa4 Non-active member Posts: 696
    edited 30. Nov -0001, 00:00
    It was really good to sit there and be able to discuss all the problems I am having and she was really good about asking questions that no one really wants to ask like how it affects my relationship with my hubby etc.. :wink: She did say as its my 4th anti TNF of a similar kind it might not work but it will pass the time til another new one is authorised.

    She also said that as I am seronegative RA the disease will be milder, I queried this as Im so sick of hearing its milder when my mobility and pain and swelling are horrendous. She clarified this point saying that although Im less likely to get severe deformity of joints it doesnt mean my disability will be less severe. They consider minimal joint damage milder disease but not less disabling. So aesthetically I will be better off :D It was good to finally understand the distinction between the two and feel less of a fraud for being in so much pain with milder RA :roll:

    Love Theresa
    There are many things in life that will catch your eye, but only a few will catch your heart...pursue those. --Michael Nolan



    Theresa xxx
  • tkachev
    tkachev Non-active member Posts: 8,332
    edited 30. Nov -0001, 00:00
    That is good news
    Teresa,

    Please dont ever feel like a fraud. I know it is difficult with the way peeps treat you but they really should know better.

    Elizabeth
    Never be bullied into silence.
    Never allow yourself to be made a victim.
    Accept no ones definition of your life

    Define yourself........

    Harvey Fierstein
  • woodbon
    woodbon Non-active member Posts: 4,969
    edited 30. Nov -0001, 00:00
    Hi, I'm so glad that you've found a good rheumy. If you have the information about your illness, I think it helps you cope with the pain and problems it causes. Love Sue
  • dolittle
    dolittle Non-active member Posts: 240
    edited 30. Nov -0001, 00:00
    Great news, Theresa. I'm please for you too. What a difference it makes, eh. I wish these docs understood that.
    Dolittle
  • frogmorton
    frogmorton Member Posts: 30,425
    edited 30. Nov -0001, 00:00
    Good news Theresa

    Glad you had such a good consultaion and that things are much clearer now.

    Good that she was happy to discuss the impact it has on your life with the hubby as well as opther lesss embarassing issues.

    I found that info about the sero-neg useful too :)

    Love

    Toni xx

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