Really good rheumy appointment
theresa4
Member Posts: 696
As I went to my rheumy appointment today very nervous after my rheumy appointment from hell last month. This was such a different appointment. The doc spent 45 minutes with me, letting me speak, asking about the impact on my life, asking my opinion on whether the biologic Im on works for me, It was lovely (ok I have RA and am in pain etc.. but I so appreciated the gentleness and thoroughness of this doc). She was suprised when I made a point of thanking her for everything when I left. I am now changing to another drug shortly so fingers crossed that will work., and I can have a steroid next month before my grandchild is born which should last for my holiday the month after. I dont feel any better physically but at least I feel like Ive been listened to.
Love to all
Theresa
Love to all
Theresa
There are many things in life that will catch your eye, but only a few will catch your heart...pursue those. --Michael Nolan
Theresa xxx
Theresa xxx
0
Comments
-
It makes such a difference doesn't it? I'm glad that today went better for you, let's hope they're all like that in the future. Is she a new doctor to you? Can you stay with her? DreamdaisyHave you got the despatches? No, I always walk like this. Eddie Braben0
-
dreamdaisy wrote:It makes such a difference doesn't it? I'm glad that today went better for you, let's hope they're all like that in the future. Is she a new doctor to you? Can you stay with her? Dreamdaisy
No unfortunately its just the luck of the draw. She is one of the people under my consultant. fingers crossed I get lucky again.
theresa xThere are many things in life that will catch your eye, but only a few will catch your heart...pursue those. --Michael Nolan
Theresa xxx0 -
Hi Theresa
I am so glad this appointment went so well for you, it really does make a difference, when you get treated with humanity.
I do hope things continue to improve for you, I have my first rheumy appointment in June, and I am not sure what to expect.
You take care
Love
Barbara xxLove
Barbara0 -
Hi There, I was so pleased you had a good appt this time. It makes all the difference when you can talk to someone who actually listens to what you have to say. Hope the new meds work for you. keep us posted. Lv, Ix0
-
It was really good to sit there and be able to discuss all the problems I am having and she was really good about asking questions that no one really wants to ask like how it affects my relationship with my hubby etc..
She did say as its my 4th anti TNF of a similar kind it might not work but it will pass the time til another new one is authorised.
She also said that as I am seronegative RA the disease will be milder, I queried this as Im so sick of hearing its milder when my mobility and pain and swelling are horrendous. She clarified this point saying that although Im less likely to get severe deformity of joints it doesnt mean my disability will be less severe. They consider minimal joint damage milder disease but not less disabling. So aesthetically I will be better offIt was good to finally understand the distinction between the two and feel less of a fraud for being in so much pain with milder RA :roll:
Love TheresaThere are many things in life that will catch your eye, but only a few will catch your heart...pursue those. --Michael Nolan
Theresa xxx0 -
That is good news
Teresa,
Please dont ever feel like a fraud. I know it is difficult with the way peeps treat you but they really should know better.
ElizabethNever be bullied into silence.
Never allow yourself to be made a victim.
Accept no ones definition of your life
Define yourself........
Harvey Fierstein0 -
Hi, I'm so glad that you've found a good rheumy. If you have the information about your illness, I think it helps you cope with the pain and problems it causes. Love Sue0
-
Great news, Theresa. I'm please for you too. What a difference it makes, eh. I wish these docs understood that.
Dolittle0 -
Good news Theresa
Glad you had such a good consultaion and that things are much clearer now.
Good that she was happy to discuss the impact it has on your life with the hubby as well as opther lesss embarassing issues.
I found that info about the sero-neg useful too
Love
Toni xx0
Categories
- All Categories
- 12.8K Our Community
- 10.1K Living with arthritis
- 825 Chat to our Helpline Team
- 2 Surgery - Pre and Post
- 495 Coffee Lounge
- 3 Exercise Resources - view only
- 35 Food and Diet
- 238 Work and financial support
- 6 Want to Get Involved?
- 197 Hints and Tips
- 413 Young people's community
- 13 Parents of Child with Arthritis
- 43 My Triumphs
- 131 Let's Move
- 37 Sports and Hobbies
- 245 Coronavirus (COVID-19)
- 22 How to use your online community
- 45 Community Feedback and ideas