Premature It Worked.

dreamdaisy
dreamdaisy Member Posts: 31,520
edited 8. May 2010, 10:14 in Living with Arthritis archive
One of my early posts queried whether my humira jab had worked. After 13 days of real discomfort I realised it hadn't and did it on Monday. (I'm currently on fortnightly injections). Felt better on Tuesday, now it's all gone to hell in a handcart. This is my third shot at an anti TNF: the first lasted for three infusions (infliximab) the second for five months, before causing great liver problems (enbrel) and the humira nine months. I have puffy toes, ankles and hands (ALL HOT) but my knees (the original source of all the problems) are still relatively small and STONE COLD. Strewth, I'm hacked off with all of this.

I have done without preds for nearly a month now (after three years of swallowing the only lovely meds that work - you can keep sulph and meth) but tonight I'm giving in. I am going to have a lovely dose of 20mg because I know it will sort it out. **** the docs, **** the warnings, **** the impending osteoporosis, **** moon face, **** the weight gain, **** it, **** it, **** it. This is what it's come to. My treat is now - tahdah! - prednisolone. Dreamdaisy
Have you got the despatches? No, I always walk like this. Eddie Braben

Comments

  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
    Hi DD
    What can I say...I sought of understand where you are coming from....at the min I have OA...with test going on for RA..like a lot of people on here I suppose.
    But things suddenly come to a head ..and I think shall I just take what helps me :roll:
    I really hope you get sorted very soon..wish I could help more...
    you take care
    Love
    Barbara xx
    Love
    Barbara
  • annie_mial
    annie_mial Member Posts: 5,614
    edited 30. Nov -1, 00:00
    DD, know exactly where you are at. However, after 8 years of taking pred in various doses am just barely getting over an immense reaction to it.......something I've never had before and it wasn't pleasant. Am now being weaned off it, or at least down to a manageable dosage (again).

    Doubt if it will stop me upping the dose if things get to crisis in the future.

    Annie
  • ironic
    ironic Member Posts: 2,361
    edited 30. Nov -1, 00:00
    Hi DD. Gosh you are really going through it. :( I'm not much help with the meds, but I hope tomorrow is a better day for you.
    Awful when fingers and toes hurt. Thinking of you.

    Lv Ix
  • frogmorton
    frogmorton Member Posts: 30,057
    edited 30. Nov -1, 00:00
    Oh Daisy

    I am so very very sorry :(

    Poor poor you :(

    I hope that the pred gave you the night off from it all at least.

    999000 for you.

    Sorry dont knwo what to say.

    Except take care

    Love

    Toni xx
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    Thank you all for your kind words. I am in a tremendous sulk so will go away for a little while (from here) to try to restore my usualy, bouncy self. :cry: DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • frogmorton
    frogmorton Member Posts: 30,057
    edited 30. Nov -1, 00:00
    Ok DaisyD

    Please look after yourself - we will all be wishing you the best.

    We will look forward to hearing from you as soon as you are able and yes - back to your usual happy self - though we will like you anyhow :wink:

    Love

    Toni xx
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
    dreamdaisy wrote:
    Thank you all for your kind words. I am in a tremendous sulk so will go away for a little while (from here) to try to restore my usualy, bouncy self. :cry: DD
    Dont be gone to long..will you :)
    Love
    Barbara
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
    Oh DD,

    Sorry your feeling less than buoyant and well can't help just leaving a ((( ))) and a hope this week was a blip for you. Cris x
  • wibberley
    wibberley Member Posts: 421
    edited 30. Nov -1, 00:00
    Hiya DD, so sorry that it hasn't worked well for you.

    I fully understand you wishing to retreat for a while - hope you feel a bit better soon.

    Hugs,

    Lois x
  • tillytop
    tillytop Member Posts: 3,460
    edited 30. Nov -1, 00:00
    Hi DD - soooo sorry that Humira is not now working for you. Don't know what to say except that, like many others here I can fully appreciate your desperation and the awful "oh God where do I go from here" feeling. Hopefully the Prednisolone will give you the immediate relief you need to give you time to regroup and figure out what to do next. Please post an update when you feel able cos I know we'd like to know how you are doing. Thinking of you lots. Tillyxxx
  • annie_mial
    annie_mial Member Posts: 5,614
    edited 30. Nov -1, 00:00
    DD, just caught up with this..........what a @#$%^$#!

    Hope you get some help soon........in the meantime, well, I usually crawl under the carpet and stay there!

    Annie
  • trisher
    trisher Member Posts: 9,263
    edited 30. Nov -1, 00:00
    Hi DD

    Go under the duvet until you feel better. Hope you feel better soon though.


    Trish xx
  • speedalong
    speedalong Member Posts: 3,315
    edited 30. Nov -1, 00:00
    Hi Dreamdaisy hang in there girl, hope you feel better soon.

    Speedalong
    xxx
    I have had OA since mid twenties. It affects my hips and knees. I had a THR on the left aged 30 and now have a resurface-replacement on the right - done May 2010.
  • carolanivey
    carolanivey Member Posts: 64
    edited 30. Nov -1, 00:00
    dreamdaisy wrote:
    **** the docs, **** the warnings, **** the impending osteoporosis, **** moon face, **** the weight gain, **** it, **** it, **** it. This is what it's come to. My treat is now - tahdah! - prednisolone.

    ((hug)) Sometimes, you just have to choose the lesser of several evils. I totally understand! The good news is, your bone mass can be monitored and the minute something starts to show up, you can nip it in the bud with bone-building meds before it becomes full-blown osteoporosis.

    I hope you're feeling better soon!

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