Pain management seminar
woodbon
Member Posts: 4,969
Hi
I'm back from the Pain Clinic. The Pain Management seminar was 90mins of a Pain Pyscologist and a Pain Nurse, I think, talking about what pain is and how it effects people.
It was a mixture of people, with all sorts of things, like back pain, ME, Fibromyligia, OA in the spine. We where told that our pain was real but that it was caused not by any injury as such but a fault in the nerves in the area that had problems in the past and hadn't recovered. We were given exercise sheets with basic streches and told to find an exercise like swimming or yoga anything at all.
We also had to learn to pace ourselves by doing little bits and bobs rather than finishing a task, breaking it up. That pacing would allow us to get quicker and do more as time went by. Also we would get stronger with exercises and have less pain, but not to exercise if we felt our old pain get worse. Knowing when to stop. I'm not really very sure that the ideas are helpful. Some I already do, others are way outside anything I'd try, unless really sure I'd not hurt myself. For instance playing tennis and badminton for short periods is mentioned!!! They seemed to be saying all the pain can be managed by increasing the fitness level and learning to let yourself except more pain. Painkillers are not good and don't work on any long term cronic pain.
I sound very anti, but thats because it was so different from anything I've been told before and their seemed to be an attitude that in time we can all do more, even if we can't go back to our old selves we should be relaxing into the pain and accepting some of it. I also don't buy the anti painkillers thing.
They didn't say we didn't have pain, they said that we did and it was the problem and we were in a circle of pain stopping us doing things, the body less fit so not able to do as much. This is true, but the answers so far seem odd. They also contridicted themselves by saying that if we carry on doing too much the pain will get worse. I felt confused. I think it was perhaps, not put over very well.
I'll think about it a bit, later as I'm tired now and not at my best to make judgements.
Love Sue
I'm back from the Pain Clinic. The Pain Management seminar was 90mins of a Pain Pyscologist and a Pain Nurse, I think, talking about what pain is and how it effects people.
It was a mixture of people, with all sorts of things, like back pain, ME, Fibromyligia, OA in the spine. We where told that our pain was real but that it was caused not by any injury as such but a fault in the nerves in the area that had problems in the past and hadn't recovered. We were given exercise sheets with basic streches and told to find an exercise like swimming or yoga anything at all.
We also had to learn to pace ourselves by doing little bits and bobs rather than finishing a task, breaking it up. That pacing would allow us to get quicker and do more as time went by. Also we would get stronger with exercises and have less pain, but not to exercise if we felt our old pain get worse. Knowing when to stop. I'm not really very sure that the ideas are helpful. Some I already do, others are way outside anything I'd try, unless really sure I'd not hurt myself. For instance playing tennis and badminton for short periods is mentioned!!! They seemed to be saying all the pain can be managed by increasing the fitness level and learning to let yourself except more pain. Painkillers are not good and don't work on any long term cronic pain.
I sound very anti, but thats because it was so different from anything I've been told before and their seemed to be an attitude that in time we can all do more, even if we can't go back to our old selves we should be relaxing into the pain and accepting some of it. I also don't buy the anti painkillers thing.
They didn't say we didn't have pain, they said that we did and it was the problem and we were in a circle of pain stopping us doing things, the body less fit so not able to do as much. This is true, but the answers so far seem odd. They also contridicted themselves by saying that if we carry on doing too much the pain will get worse. I felt confused. I think it was perhaps, not put over very well.
I'll think about it a bit, later as I'm tired now and not at my best to make judgements.
Love Sue
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Comments
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It's always good to hear a different take on things but I always bear in mind these things may be run by people who may not experience the pain levels we do, or how they fluctuate. As posted elsewhere I note there is a good article on pain management in the Daily Mail today, and that runs along similar lines. Frame of mind is important and when I'm brighter psychologically I cope with the pain better - everyone does. Rest now, go to the next one, and please report back! They don't run these courses in my area any more, which is disappointing. DreamdaisyHave you got the despatches? No, I always walk like this. Eddie Braben0
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Hi, Yes I agree, to some level it is very important realise that pain can be helped by attitude, and it is important to learn how to cope, I think my main feeling was that it would work better done on a smaller basis, as indeed the nurse I orginally saw said it was, with 4 people, and interactive discussion. At the beginining we were told that we had to be finished before 90 mins as the next group was due then, but thats the NHS now, I suppose that its too expensive to do things differently. Just a bit conveyor belt ish & rushed.
Next time its relaxation techniques, which will, I think be much more interesting and useful. Thats in a fortnight.
I think I'm feeling a bit on edge tonight as I have driven 30 miles today and my neck is sore and the pain going down my arms, sorry to moan on. It was interesting I must admit and I'm not sorry I went, apart from the pain!!! :?
Love Sue
PS I've just read the article in the Daily Mail and it is the same sort of thing that I went to today. It's certainly worth reading. Sue0 -
Several years ago, I was involved, as a Counsellor, in one of these courses. At the time, Arthur had not attacked me, so I was coming at this from a completely different angle than I would today. I did see some good levels of success, although I sensed confusion too. I also felt that we lost people, because they feared that their pain relief might be taken from them. We dealt with the depression that comes from constant pain, and this did definitely help a lot. All in all, it was meant to re-educate people, and convince them that pain did not have to rule their lives.
I`m still undecided, although I am a great believer in positive thinking. I also think that emotional pain manifests itself physically. I would advise that you continue, whilst keeping an open mind. I would be really interested in hearing how it works out for you Sue.........Ange.0 -
Hi Sue,
It sort of makes sense of what the pain consultant told me actually. She says long term pain you become over sensitive to.... she didn't mean there was no pain she just meant your so sick of it you notice it more. She was on about the nerve endings and well it would make sense as to why the pregabalin works so well for me as well.
The relaxation/ meditation class might really help cus well if I really feel ill or hurt I go off somewhere and it help cus well for me keeping the mind free f the pain means I do better. Let us now how you get on please and thanks for your post cus it sort of explained what the consultant was saying better to me. Luv and a ((( ))) Cris xx0 -
Chirs,
I.m pleased you found my post helpful. After 24 hours, I think that things are sinking in! My main moan is that it was very rushed with little time for questions and that was because they had another class waiting to come in after we finished. I expect the they have very limited bugets and have to make the most of their time.
Love Sue0 -
Pain management is a total croc.0
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There's nothing like an open mind and yours is nothing like an open mind! One of the most common comments on these threads is that what works for one may not necesarily work for another. Obviously it hasn't worked for you - can you explain why? Some people do benefit from being taught coping strategies, relaxation skills, hell, just even being told why it is as it is. Please don't put them off trying. You never know until you try. DreamdaisyHave you got the despatches? No, I always walk like this. Eddie Braben0
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Hi Greenlady,
I am sorry it didn't work for you flower. Its sometimes down to who you see..... Some people can connect and some can't. I know when I went back to the pain clinic I felt she was telling me the pain was in my head....... I went on the defensive but she wasn't really saying that she was trying to explain that nerves constantly bombarded with pain get over sensitive. It means the pain is very real but its also possible to do a bit of relaxation and in my case drift out so it becomes manageable.......
Could you see a better one do you think? Constant pain is horrible and I wish you lot didn't have it. Don't give up and well hopefully you will find something that helps for you. I often think you make your own way through it all and its not much of a journey is it? A ((( ))) and a hope for better days all round. Cris x
Hi Sue,
I kinda taught my self lot of it and though I went on a pain management well it was combined with challenge arthritis course to be honest I had been doing it for years but it was good to know I was on the right road..... Hey you wait for the relaxation meditation one...... get that sussed and it really helps, mean really helps. Luv Cris xx oh any news on your follow up appointment yet with the rumo?0 -
greeneyedlady wrote:Pain management is a total croc.
That is your opinion, and you are more than entitled to it.
However, I feel that it is unhelpful to make such a sweeping statement on this Forum, without giving your reasons for thinking this way.
Sue, who started this thread, is a lady I respect very much. She suffers constant pain, but is always ready to help with advice for others. Rather than just taking a negative view of her pain, she is trying every avenue open to her, to help alleviate it. I admire her for this......Ange.0 -
greeneyedlady wrote:Pain management is a total croc.
It does work for many. I am sorry if you are having a particularly bad day.
Elna xThe happiest people don't have the best of everything. They just make the best of everything.
If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.0
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