Back from the rhmy Appointment

madness1985

Hi all,

Im seeing my normal rhmy tommorrow it may be my last appointment. Im sick with worry ive not been eating this week because im so worried about it. I dont think ill sleep at all tonight im so worried about it i just dont want to go but my dad and partner are making me go.

x

lindalegs

So sorry you feel like this but please go Madness, your Dad is right, can you take him with you?

Luv Legs

madness1985

Hi,

My dad and Partner are coming with me because my gp told my partner to come today when went to see her on a different matter. So now i have no choice. I just dnt want togo :-(

dorcas

madness1985 wrote:

Hi all,

Im seeing my normal rhmy tommorrow it may be my last appointment. Im sick with worry ive not been eating this week because im so worried about it. I dont think ill sleep at all tonight im so worried about it i just dont want to go but my dad and partner are making me go.

x

Hi madness,

first of all forgive me if I'm asking the obvious (I haven't been on the forum much the past few days and have missed a lot) but what exactly is it about this appointment that you are so worried about?

I find that it helps to talk through what is troubling me; then I can get things into perspective and deal with what was causing me to feel that way/ make decisions and move on from there.

So, if you want to share with us what you are worried about we will listen and support you.

Iris x

madness1985

Hi Iris,

I have a major phobia of needles which im aving theropy for at the moment as well as seeing pysc about my depression. The problem is he had blood from me when i was diagnoised with RA but since hes not had any blood he nos i have a problem and am recieving treatment but i feel guilty/like im letting him down/ like hes going to have a go at me ect. Ive tried to get bloody today after my theropy but still just could not get any, its worse now because since the original blood test ive lost alot of weight and when they tried last the vein collapsed and this was with a blood pressure machine around my arm (tornaqay wasnt enough due to blood test). My go got the needle in n my vain just collapsed. I feel awful.

Also because of the fact that i just dont get on with my rhmy we got off on the wrong foot. I feel like a naughty child when i see him im always the youngest in clinic.

x

skezier

Oh Madness I am sorry your feeling so bad about it. A (((( )))) and will be thinking of you as well. Cris x

dreamdaisy

Try to prove to him you're not a naughty child by acting like an adult, and in the process making life better for you, your partner and your dad.

None of us like these appointments, being permanent guinea pigs for drugs and pin cushions for the bloodsuckers in pathology but it's all designed to get us well and we have to play our part in that. I agree that it is a miserable existence (and some are so good at piling on the misery for themselves and others - doesn't that make you cross?!) but it's what we have to do, this is our lot and we have to get on with it.

You say you don't want to see him again - so if you don't, you leave the whole thing feeling down about yourself and he will have his opinion of you confirmed. Don't do that - go and see him and put the daemons to rest. The more you fret, worry and immerse yourself in the misery of it all the worse it is.

I'm a complete coward in blood tests. I don't watch - I hate the thought of seeing what's going on. Within 20 seconds it's over and it's never as bad as I fear. Good luck - we'll be thinking of you. Let us know how it goes. Dreamdaisy

madness1985

Well i went to my appointment! I saw the Rhmy nurse first who has told me they do not want me to transfer and has refered me back to hydrotheropy pool to try and get abit more movement.

I then saw my Consultant. He says he nos im doin my best and apreciates the theropy is hard going. Says he wont be disacharing me from the clinic because he feels he can help. He seems to have a full plan ready for action once bloods are done again. He said my hands look worse than 3 months ago. He said he hope my phobia is overcome soon and that he thinks my quality of life is low and i may never be back to what i was before hand.

He did say today that he really wants to help me and believes he can at the very least make life less of a stuggle. I explained i have lost my confidence.

Take care

x

lindalegs

Well done Madness. I'm so glad you went. It took alot of courage It seems you have a good medical team trying to help you so it'll be worth sticking with them.

You must take one day at a time.

Thanks for letting us know how you went on.

Luv Legs

frogmorton

Hey Madness

well done you!! You did it and it paid off I think.

He had a plan all along and knows you are trying. I share your phobia and make a fool of myself if I have to go near a needle. More bloods out than in actually, but the sight of the blue tray with the equipment on it is enough.

I am having jabs on monday and have some valium to take to even get there. My EX MIL will be holding me down - my bro and hubby do this at times too.

I faint... do you??

Hey I hope I'm not making thsi worse but if you can overcopme it maybe so can I incase I ever need to :oops:

Well you keep at it and let us know how you get on.

Love

Toni xx

madness1985

Thanks both.

Toni, I crnt even get out my front door, i fear the nurse who does bp/weight ect as she also does blood! I go dizzy and just cry n scream! My phobia comes from my school friend having her meningits jab (we all did) and the needle snapped in her arm and then my nan kept shoing me her bruising from her needles from a young age as shes diabetic and just wips her skirt down n jabs herself much to my horror and then being sick! Ive come along way ive actually held a needle! One day ill walk in and we will both be rejoicing! Ive never fainted thank goodness!

I actually informed him that i didnt want to go to see him :oops: which he found quite funny and said dont worry i know your trying!

x

dreamdaisy

Well done to you - all that fretting and worrying - why? It sounds more positive than before and that has to be a good thing.

Some of us on these forums have a rougher ride than others but it isn't a race or a competition to see who is worst off. We each have our different strengths and weaknesses and we are good at propping each other up! Return the support you receive, note when others are feelling down or are dreading appointments and send them a little note of encouragement. It does help, and what goes around comes around! Dreamdaisy.

salamander

dreamdaisy wrote:

Well done to you - all that fretting and worrying - why? It sounds more positive than before and that has to be a good thing.

Some of us on these forums have a rougher ride than others but it isn't a race or a competition to see who is worst off. We each have our different strengths and weaknesses and we are good at propping each other up! Return the support you receive, note when others are feelling down or are dreading appointments and send them a little note of encouragement. It does help, and what goes around comes around! Dreamdaisy.

What's this about?
S

skezier

Hi Madness,

Well done for going and its so good to see he will help you Sometimes you just need someone in your corner.

Needles I am ok with but cannula's I am sick of and go rigid and tense which doesn't help. I do have a phobia and know how hard it is to control but really hope you can find a way to let it be bearable.... maybe counselling (you too Toni) I had some for my phobia and it has at least given me a frame work to try and hold it in check.... doesn't always work though A ((( ))) and a hope for you. Cris x

madness1985

Hi Cris,

I am having counciling at the moment for my needle phobia i have it once a week for 2 hours per session. Its called EMDR its ment to be really effective. The councilour basically makes u follow the finger and talks about your first memory and slowly goes through each picture to clear the bad memory and turn it in to a positive, by whatching the images going past it focuses on feelings in the body in away as you talk through the image you get pains through the body n u learn to deal with the pain and elimate it.

For example when talking through my nan i got pains in my stomach which related to were she injected her self. Thats how it works for me, i am making progress and hope to have blood soon to get me sorted out.

Thanks everyone for your support it was really hard for me to go today and i apreicate your kind words.

x

dreamdaisy

Well done madness, another positive (the EMDR counselling). You are tackling these things well - good for you. DD

skezier

Hi Madness,

That sounds better counseling than I had.....Mines over rats, get breathing attack the lot and well I might look into this one. Thanks flower and good luck with it. W will all be routing for you you know. Cris x

frogmorton

Wow! Madness I like the sound of that

My teeth chatter too and I jibber and swear!!!!! he he!!

If it works will you tell me?

I used to be a blood donor till I had My eldest child and they couldnt get lines in (cris I do not know how you do it!) - I am very very proud of you......


holding a needle

Well done

Love

Toni xx

skezier

Hey Toni I really is up against hobson's choice One more day.......

Thanks madness as soon as my brain finds it works I shall see and well I have to do something as I have lost the hold on my phobia and have real problems with imaginary ones again..... ((( ))) and shall be beside you for your next blood test and give you strength I promise. Cris x

carolanivey

Not much I can add except to send you a hug and a "bravo" for getting through the appointment!

As for the needle phobia, don't be too hard on yourself. We all have our unique "things" to deal with. Believe it or not, I have a phobia of calling people on the phone (except maybe my mom)! I literally get short of breath and sometimes even have trouble calling for a doctor appointment!

Take it one baby step at a time. You'll never look forward to a test, but hopefully you'll get to the point you can endure it - and reward yourself afterwards.