Protocol

elainebadknee

Hi there

Have posted another topic on here titled any adivce appreciated.....Briefly summarise got oesteochondritis dissecans in left knee which has got worse now, mobility seriously affected....Been to see specialise who said can have knee cap removed or 2nd opinion.....
Been told by someone when i next go see consultant should ask what the protocol is? I dont fully understand what this is, can anyone enlighten me? Sorry if seem a bit dim

Elaine

oneday

Hi
dont think youre dim...protocol...strange wording to use....
The thing is i once was bit doubtful about an operation and consultant said if i asked 10 different ones(consultants that is) the same question i would get 12 different answers.
Operation i was offered for my back i refused as think bit dicey area to tackle. I did ask him how many of the ops he had done to determine if competent, he didnt mind and i asked nicely!!
Sorry cant help but suggest you have a good think about it and other peeps on here who have had knee ops should be able to help you.....good luck
p.s just read your post again...i would say you want a 2nd opinion as you feel anxious and you would feel more reassured and nothing against his skill etc..then you wont put his back up,there again if he offered he obviously doesnt mind...
how about getting chatting to people in the waiting room?

oneday

go to working matters forum,thread called, one lasst drink in saloon as mellman is having a knee op and theres mention of 2nd opinion,have a chat with him!

elainebadknee

Hi oneday

Hmm its a difficult situation i find myself in here....heard a quote yesterday which said something like if i can live longer it should be without as much pain as can be avoided.............I know got to ask questions but feel am being refused tkr not for reasons being given...When you say ask people in waiting room do u mean at hospital or is that somewhere on here????

Very dim day....lol

Elaine

oneday wrote:

Hi
dont think youre dim...protocol...strange wording to use....
The thing is i once was bit doubtful about an operation and consultant said if i asked 10 different ones(consultants that is) the same question i would get 12 different answers.
Operation i was offered for my back i refused as think bit dicey area to tackle. I did ask him how many of the ops he had done to determine if competent, he didnt mind and i asked nicely!!
Sorry cant help but suggest you have a good think about it and other peeps on here who have had knee ops should be able to help you.....good luck
p.s just read your post again...i would say you want a 2nd opinion as you feel anxious and you would feel more reassured and nothing against his skill etc..then you wont put his back up,there again if he offered he obviously doesnt mind...
how about getting chatting to people in the waiting room?

frogmorton

Hi Elaine

dint know what this was so googled it.

Sounds painfull. I think you have the right to ask for a second opinion really if in any doubt at all.

Thats what I would do.

If you are confidant then go ahead and have the surgery.

Lots of people on here have had knee ops, but whether it would be the same op I dont really know, but they might.

Hope someone with a bigger brain cell than me comes along soon.

Love

toni xx

oneday

elainebadknee wrote:

Hi oneday

Hmm its a difficult situation i find myself in here....heard a quote yesterday which said something like if i can live longer it should be without as much pain as can be avoided.............I know got to ask questions but feel am being refused tkr not for reasons being given...When you say ask people in waiting room do u mean at hospital or is that somewhere on here????

Very dim day....lol

Elaine

yes, i mean waiting room in hospital, when i typed that i thought bet you think we have a forum called, Waiting Room!
i have put a note on the thread on the other forum for mellman, so hope he can help you out.

oneday wrote:

Hi
dont think youre dim...protocol...strange wording to use....
The thing is i once was bit doubtful about an operation and consultant said if i asked 10 different ones(consultants that is) the same question i would get 12 different answers.
Operation i was offered for my back i refused as think bit dicey area to tackle. I did ask him how many of the ops he had done to determine if competent, he didnt mind and i asked nicely!!
Sorry cant help but suggest you have a good think about it and other peeps on here who have had knee ops should be able to help you.....good luck
p.s just read your post again...i would say you want a 2nd opinion as you feel anxious and you would feel more reassured and nothing against his skill etc..then you wont put his back up,there again if he offered he obviously doesnt mind...
how about getting chatting to people in the waiting room?

oneday

my reply above got minged in wrong place,here it is.

Elaine

yes, i mean waiting room in hospital, when i typed that i thought bet you think we have a forum called, Waiting Room!
i have put a note on the thread on the other forum for mellman, so hope he can help you out.

elnafinn

Hi Elaine


This is a worry for you and I do understand. A medical protocol is the normal and accepted course of treatment for a specific disease or condition. It means that a plan will be put in place for treatment that will follow regular procedure.

Am I right in thinking that you would like a TKR now rather than go through this other op which you are not at all keen on. I did not know anything about this op but on googling a forum where peeps are discussing it, some thinking about it and others who had already been through it, the reading was to me, pretty damning and negative.

We are all different, it may work for you. That is what is so scary about operations. All we can have is trust and at the same time, find out as much as possible about it, positive and negative and take this info to the consultant when you next see him. You could always have a second opinion out of the county so then your present consultant would not be aware of it at all. Your gp would refer you and he would be none the wiser. I agree, not to go for too many different opinions.

You could ask your consultant if he could put you in touch with any of his patients, who were of similar age and situation as yourself, who have had this operation performed by him. He can only answer yes or no.

I do hope it all becomes easier for you soon.

Luv
Elna x

elainebadknee

Hi Elna

Ah right i see so its a course of action, plan, got it......
Well at least i can ask him that question and know whta im talking about....

I too have only read negative comments about kneecap removal and only one person on here says go for it...but the fact she had to give up work, has two walking aids and the amount of pain, physio after ops didnt really swing it for me enough to say I want that!!! I also wouldnt say i want a TKR, after seeing my own dad last year after his tkr i swore i could not undego that operation - it frightened the living daylights out of me, he was lost lots of blood, violently sick, lost conscious and was as weak as a kitten for months afterwards..........So i would not relish this op but feel i need it.....Re putting me in touch with patients who had had kneecap out isnt that infringeing on data rights????

I wish i could see him now and get this all out of the way, make decision clearer, but still got till 21 june..........Going on holiday in sept and feel will need mobility scooter to go round Eden Project.....Help!!

Many thanks for all your helpfulness....

Elaine

elnafinn wrote:

Hi Elaine


This is a worry for you and I do understand. A medical protocol is the normal and accepted course of treatment for a specific disease or condition. It means that a plan will be put in place for treatment that will follow regular procedure.

Am I right in thinking that you would like a TKR now rather than go through this other op which you are not at all keen on. I did not know anything about this op but on googling a forum where peeps are discussing it, some thinking about it and others who had already been through it, the reading was to me, pretty damning and negative.

We are all different, it may work for you. That is what is so scary about operations. All we can have is trust and at the same time, find out as much as possible about it, positive and negative and take this info to the consultant when you next see him. You could always have a second opinion out of the county so then your present consultant would not be aware of it at all. Your gp would refer you and he would be none the wiser. I agree, not to go for too many different opinions.

You could ask your consultant if he could put you in touch with any of his patients, who were of similar age and situation as yourself, who have had this operation performed by him. He can only answer yes or no.

I do hope it all becomes easier for you soon.

Luv
Elna x

elainebadknee

Hi oneday

Well i mean could do waiting room but want to know beofre i see him so im well prepared, armed with info.......I will ask mellman too thanks....

PS----Feel like a computer virgin on here....THREADS?? and yes am computer literate but hey im out of me depth here!!!..

Ta...Elaine

oneday wrote:

my reply above got minged in wrong place,here it is.

Elaine

yes, i mean waiting room in hospital, when i typed that i thought bet you think we have a forum called, Waiting Room!
i have put a note on the thread on the other forum for mellman, so hope he can help you out.

elnafinn

Hi Elaine

I am telling you this because I have had 2 knee replacements and I believe that getting a good surgeon is paramount and secondly the age of the patient. There is less chance during the op or post op complications when you have the op relatively young. The downside is that if you have to have another op years later the prognosis is not so good. I shall worry about that if/when the time arrives.

My mum too has had both knees done, and it was an absolute nightmare BOTH times for her. The first time they broke her femur, would you believe, and the second time she got a haematoma and was in hospital well over three months with 3 weeks in ICU and it was hell for her and me as I was there with her more than half of every week during that time.On both occasions she had two operations within a week. Poor love and she is still here to tell the tale. She does not remember a lot of it though, thank goodness, but I sure do.

I wish you well with all this. It really is a very difficult situation you are in, that I do appreciate.

luv
Elna x

elnafinn

Re putting me in touch with patients who had had kneecap out isnt that infringeing on data rights????

Yep, thinking about it. :oops: :roll: Perhaps he knows of someone who has written a blog on the said op performed by him, or any letters thanking him for his good work on their knee...... That way he would not have to give away any personal information about the patient.

Elna x

elainebadknee

Hi Toni

Yes i think the 2nd opinon is a must - i dont feel confident at all with going ahead with this surgery, not at all....

Wondering why on earth they recommend this as it seems to be on the whole negative results.......

Re brain cells, mine have legged it, cant even spell no more!!

Elaine

frogmorton wrote:

Hi Elaine

dint know what this was so googled it.

Sounds painfull. I think you have the right to ask for a second opinion really if in any doubt at all.

Thats what I would do.

If you are confidant then go ahead and have the surgery.

Lots of people on here have had knee ops, but whether it would be the same op I dont really know, but they might.

Hope someone with a bigger brain cell than me comes along soon.

Love

toni xx

oneday

elainebadknee wrote:

Hi Toni

Yes i think the 2nd opinon is a must - i dont feel confident at all with going ahead with this surgery, not at all....

Wondering why on earth they recommend this as it seems to be on the whole negative results.......

Re brain cells, mine have legged it, cant even spell no more!!

Elaine

frogmorton wrote:

Hi Elaine

dint know what this was so googled it.

Sounds painfull. I think you have the right to ask for a second opinion really if in any doubt at all.

Thats what I would do.

If you are confidant then go ahead and have the surgery.

Lots of people on here have had knee ops, but whether it would be the same op I dont really know, but they might.

Hope someone with a bigger brain cell than me comes along soon.

Love

toni xx

Hi
you cant spell cos your mithered thinking about things....once the rest of the peeps add to this you will start feeling little bit better about things...write down points so you dont forget etc...
i want to live in a field atm...various neighbours not got noisy sun-itis but another twit has decided to start burning stuff now!! arrh.....

elainebadknee

Hi Elna

Well yes i get the age thing to a certain extent but hey who knows how long we are here for, i mean what if i dont get to 60 and i never had my knee replacement done cos of my younger age...My obituary would read "here lies Elaine, as immobile as she was in life but now out of pain at least"!!!???? I want to live while I can to the best I can and get things like a career back on track, contribute to a pension instead of being at the mercy of the government who deem me fit enough to work and so am appealing and ESA claim when i can hardly make it to the end of my cul-de-sac without pain.....

I know too that i could have tkr and it may or may not go well but i need to be given a chance here....I suppose im accustomed to this, everything in life so far have had to fight for, will have to do this one too.....Kinda gets a tad tiring after a while.......

Thanks again for all your replies
Elaie

elnafinn wrote:

Hi Elaine

I am telling you this because I have had 2 knee replacements and I believe that getting a good surgeon is paramount and secondly the age of the patient. There is less chance during the op or post op complications when you have the op relatively young. The downside is that if you have to have another op years later the prognosis is not so good. I shall worry about that if/when the time arrives.

My mum too has had both knees done, and it was an absolute nightmare BOTH times for her. The first time they broke her femur, would you believe, and the second time she got a haematoma and was in hospital well over three months with 3 weeks in ICU and it was hell for her and me as I was there with her more than half of every week during that time.On both occasions she had two operations within a week. Poor love and she is still here to tell the tale. She does not remember a lot of it though, thank goodness, but I sure do.

I wish you well with all this. It really is a very difficult situation you are in, that I do appreciate.

luv
Elna x

janie68

elnafinn wrote:

Re putting me in touch with patients who had had kneecap out isnt that infringeing on data rights????

Yep, thinking about it. :oops: :roll: Perhaps he knows of someone who has written a blog on the said op performed by him, or any letters thanking him for his good work on their knee...... That way he would not have to give away any personal information about the patient.

Elna x

hi there

sounds awful what you are going through. 2nd opinion yes. Getting in touch with patients, well he can ask patients say if he sees them in clinic and ask their permission if you can ask them some questions. They can consent and it wouldn't be infringing on data rights.

Take care

Janie

elnafinn

Hi Elaine

I have a feeling you have things a little straighter in your mind from when you first posted and that is excellent news. If you definitely decide that a TKR is what you require, to get your life back and I am with you on that, 100%, you will have to fight your corner with one consultant or other or keep on until you find one that you feel comfortable with to perform this operation for you. They do exist.

I truly wish you well with it all.

Luv
Elna x

elainebadknee

Hi janie

Well you know seems everywhere you turn nowadays you gotta tick boxes, to work, to vote, to claim benefits if not well.....The world has gone tick box mad.......
Anyway yes thanks could ask him if he can ask patients and pass on info, worth a try anyway.....2nd opinion is a must...wish there was a forum where these consultants read them too and they could say "im not all like the one you saw"....I know theyre out there but have had my knee slapped (as indication that my thighs/legs fat), been refused steroid injections and now this.......Ironically when you get older the aim is to rid you of pain as when my dad was in for his tkr they sent a man home cos he wasnt in pain??? Dont figure does it???

Elaine

janie68 wrote:

elnafinn wrote:

Re putting me in touch with patients who had had kneecap out isnt that infringeing on data rights????

Yep, thinking about it. :oops: :roll: Perhaps he knows of someone who has written a blog on the said op performed by him, or any letters thanking him for his good work on their knee...... That way he would not have to give away any personal information about the patient.

Elna x

hi there

sounds awful what you are going through. 2nd opinion yes. Getting in touch with patients, well he can ask patients say if he sees them in clinic and ask their permission if you can ask them some questions. They can consent and it wouldn't be infringing on data rights.

Take care

Janie

elainebadknee

Hi Elna

Well yes think i always knew i needed tkr but feel its still gonna but a heck of an uphill struggle to find that one surgeon who will operate on me/see my life as it stands now.....Spoke to my sister yesterday who had tkr same age as me but in elgin hopsital Dr Grays and she said that her surgeon understood her situation but still think it had a lot to do with the fact that she knew him too and worked closely with him.....
I cant have my kneecap out its too risky, wonder why surgeons registrars said i would maybe need things like tkr halftkr, ligament surgery then he just rules me out of all those things and gives me the surgical booby prize????

Thanks for well wishes, im sure I'll be on here again whether it whinge, happy or flumaxed!!!!

Elaine

elnafinn wrote:

Hi Elaine

I have a feeling you have things a little straighter in your mind from when you first posted and that is excellent news. If you definitely decide that a TKR is what you require, to get your life back and I am with you on that, 100%, you will have to fight your corner with one consultant or other or keep on until you find one that you feel comfortable with to perform this operation for you. They do exist.

I truly wish you well with it all.

Luv
Elna x