Here I go again sorry for moaning again!!!!!

theresa4

If it isnt enough that my life is restricted by arthur hanging on my coat tails dragging me back I keep getting infections which prevent my treatment.
I was supposed to start my new treatment (biologic) and have a steroid jab today but the ear infection I thought had cleared last week has kicked back in yesterday with a vengeance so the rheumy nurse just told me cant have either this week
I had plans for next week as my pain would have been reduced if not gone (well pain on holiday for 4 weeks ) now I feel so depressed and angry that my body has just put the brakes on everything again. I havent had a steroid since last October so havent felt well or pain free since November my life feels like its on hold. I know I shouldnt let this get me down but its so hard (sorry for moaning on again!) I just want to be able to do things for myself for a change and help my hubby for a few weeks to ease the pressure he is under. I feel like such a burden, Ive had such a bad few days I can barely walk and tramadol is my best friend again (whcih makes me very dopey). I cant dress myself st the mo and just feel useless.
I know its temporary til the infection clears but because of my holiday the treatment has to be worked out so will probably be end of month when I can start treatment now. I hope my daughter doesnt give birth early otherwise I will be of little use to her
Thankyou for listening

frogmorton

Hi theresa

When can you go back to see nurse for the jab?? Maybe it can be done as soon as? Blumin ear infection eh?

Bet you are devastated. Blumin arthur - I thought I had him at the moment waht is he like - must be female as he is multi-tasking I missed a weekend in Ross on Wye

Yours sounds a bigger holiday though.

You do alos have something to look forward to????? A grandbaby??? How wonderful - when is he/she due?

I do hope the ear infection clears up soon and you can be biologicked and jabbed.

LOve and hugs

Toni xx

theresa4

HI Toni
Its a 2 week holiday to Tenerife didnt get there last year due to my hubby having working commitments (he got some jobs after 6 months out of work in building trade) and my kids didnt want to travel with just me at 13 and 15yrs as they were worried about my health and how we would manage so missed out. (its a timeshare weve been going foe 12 years )Arthur is not going to win this year!!!!

The baby is due at the end of this month and all scans point to a little girl My daughter is taking it all in her stride so far.

I dont know whats happening about the steroid as the rheumy nurse wasnt very talkative this morning she said she was swamped under paperwork (made me feel like a bit of a nuisance). I have to ring her on Friday to see how Im feeling then and we will discuss things then I suppose :?

dreamdaisy

Oh poor you. I think this is one of the greater frustrations that we face, the drugs that are used to treat the arthritis leave usopen to other infections that either don't heal completely or take ages to go away.

This is not your fault. You are not responsible in any way, shape or form. Try to remove the feelings of guilt (difficult I know) because then, perhaps, a more positive energy will flow and lead to faster healing and then lovely steroids and anti TNF.

There are good times ahead - focus on those, the excitement of a new life, that's grand. DD

carola

Hi Theresa

Please don't feel guilty. You are battling on and you will win and get over these infections and will then have well deserved pain relief.

Don't say you feel useless. I bet to your Hubby, Daughter, Friends and Family you are a tower of strength for them and they have nothing but admiration for you fighting Arthur.

Rest and keep smiling
Carol

angel1

That`s not moaning Theresa! That`s someone more concerned for her family than for herself, and it always shines through in your posts.

You must know too, that worrying and fretting won`t help any of your health issues. So, keep letting everything out on here, and talking things through with your family.

I wish you a wonderful holiday........Ange.

hileena111

Hi you're not moaning...letting off a bit of steam maybe.....we are all entitled to do that on here LOL
I know to a certain extent what yopu must feel like....aftermy THR I felt such a burden to my poor hubby who never said a word but He had to dress me well the bottom half anyway
Love
Hileena

speedalong

Sorry you are having a tough time, hope ear infection clears up fast and you can have meds you need. ENjoy hols and focus on the imminent new arrival - how exciting.

Speedalong

tillytop

Hi Theresa, just read your post and am so sorry you are having such a horrible time – and so glad that you feel able to “vent” on the forum where you know people will understand what you are going through. As others have said, you have enough to deal with with the pain and physical problems you have, without the guilt about the effect on your family as well. My husband who, like yours, takes on everything else uncomplainingly when I am unable to do very much now gets really cross with me if I start to feel guilty (in a nice way) because he says that the guilt and frustration will not help me to get better which is what he really wants for me more than anything. I think that is very wise and sounds as if it is very true in your situation as well.
I really hope that you do manage to get your holiday – even if you are unable to do as much as you would have liked, the r and r can only help to get your infection better so you can have your “fixes”and can hopefully be well enough to enjoy your new baby grand-daughter when she arrives.
Hope too that the conversation with the rheumy nurse today is more positive.
Thinking of you. Love Tilly x

dreamdaisy

Hello theresa4. I hope things are a little brighter today. Thinking of you. DD

frogmorton

Hi Theresa

You ringing teh nurse today??

Hoping you are able to get some help.

LOve and hugs

Toni xx

theresa4

HI THankyou all for your replies, Im still not doing very well my ears are still painful but im seeing my GP on tues (he doesnt work mon). My joints feel like Ive been beaten with a sledge hammer :roll: but hey life goes on :roll:

My rheumy nurse was "snowed under with paperwork" so a little short with me but did admit it "couldnt be helped" I felt great! :roll: :? I was supposed to update her yest but didnt see the point as the infection hasnt cleared will email her today as I dont feel like hearing Im a pain in **** again (ok Im paraphrasing here )
The hol is in July so hopefully the steroid will sort me out for that if I ever get it. As for my treatment I will have to be a week clear of antibiotics before i start so everyone fingerws and toes crossed that the antibiotics work this time
On the upside my mortgage insurers have advised tehy will review me again in 6 months as I passed my disability questionnaire :roll: Lucky me. Wish I could work and as the months (years) pass I feel like it will never happen again. I cant get used to the pregabline so my concentration is terrible Ive even lost track of ewhat Im writing here :roll: oh to read a book again! I am part of a book club and so far sort of managed but this next one is Daphne and I cant get past the first few pages before Ive forgotton everything the girls will have to be understanding I suppose.

Anyway Ive taken up enough of your time today many thanks for all your replies so good to have you all here xx
Much love and hugs to you all
(((())))
Theresa

skezier

Hi Theresa,

I missed this and do apologize :oops: A belated ((( ))) and so many hopes that you do start to feel better soon.

I have been on pregabalin for over 2 years now and your right they can take a bit of getting used to but worth persevering with (or a least for me they were). I didn't go up weekly cus I went off with the fairies too much so or me it was 75x 3 a day for at least 3 weeks then 75twice a day and 150 at night and well its not necessary to have the 3 week uping if you have trouble with it...... I now can do 2x 300 but I tend to do 2x 200 cus well.....I really hope that been of some help?

I really do hope that it all gets better and easier for you and hey maybe its just not a very good book for you? Another ((( ))) and I am so sorry I am late seeing this. Cris x

speedalong

Hi Theresa, hope the earache is improving. S had a terrible time with an ear infection in each ear awhile back. Have you tried a luke warm wheatie bag against it.

Speedalong